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Table 1 Origin of items added to the MIDAM in order to create the MIDAM-LTC

From: Assessing the validity and intra-observer agreement of the MIDAM-LTC; an instrument measuring factors that influence personal dignity in long-term care facilities

Theme from qualitative study[[22],[29]]

Items already in MIDAM[[27]]

Items added to create MIDAM-LTC

Treatment of nursing home staff

- I am not treated with enough respect by caregivers (e.g. doctors, nurses)

- I feel I’m not being taken seriously because of my age or illness

 

- Doctors do not pay enough attention to my wishes

- The nurses have little time for me

Living circumstances in nursing home

- I have insufficient opportunity to live as I wish according to my beliefs or religion

- I miss my home, my things, my loved ones and the familiar environment that I left behind

  

- I have little opportunity to shower

  

- My room in the nursing home is small

  

- I find it difficult to adjust to the rhythm and habits of the nursing home

Living in a group

- I have little privacy

- I find it difficult to eat or sit in the living room with 'unknown’ others

  

- I have little contact with the other nursing home residents

Limited capacity of nursing home staff

 

- I often have to wait a long time before I receive help

  

- There are a lot of different nurses caring for me

  

- I feel guilty if I have to call on the nurses a lot

Sense of belonging to others

- I receive little attention and care from the people around me

- I no longer feel part of society

 

- I feel worthless for my friends and family

 

Sense of meaning

- I have the feeling that I have not made any meaning or lasting contribution during my lifetime

- I am bored and every day feels the same to me