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Table 1 Demographic data of the study sample (N = 89)

From: Quality of life among parents of children with phenylketonuria (PKU)

 

Total sample (N=89)

Gender

  

of caregivers

Female

76 (85.6%)

Male

13 (14.6%)

of children

Female

46 (51.7%)

Male

43 (48.3%)

Age (years)

  

of caregiver

Mean

39

SD

6.9

Range

22-59

of children

Mean

9.0

SD

5.2

Range

0.8 – 19.2

Ethnicity

Caucasian

88 (98.9%)

caregivers

Other

1 (1.1%)

Marital status

Married

78 (87.6%)

Divorced/ single parent

11 (12.4%)

Employment status of caregiver

Employed

66 (74.2%)

Unemployed

23 (25.8%)

Education of caregiver

Lower secondary school/ secondary school (8-10 years)

57 (64.1%)

 

General qualification for university entrance/ university diploma (>10 years)

32 (35.9%)