Development of the Adult PedsQL™ Neurofibromatosis Type 1 Module: Initial Feasibility, Reliability and Validity

Table 2 Reliability and descriptive statistics for the adult PedsQL™ NF1 module

Domain	Items	Sample	Mean ± SD	α
Physical Functioning	7	133	63.21 ± 28.75	.93
Emotional Functioning	5	134	51.53 ± 25.10	.92
Social Functioning	2	134	60.91 ± 27.40	.73
Cognitive Functioning	5	134	52.42 ± 25.14	.94
Communication	3	127	66.21 ± 27.38	.84
Worry	6	127	42.66 ± 24.83	.83
Perceived Physical Appearance	3	126	38.96 ± 33.41	.90
Pain and Hurt	3	127	53.61 ± 33.03	.93
Paresthesias	2	127	58.86 ± 31.38	.87
Skin Irritation	5	127	65.39 ± 25.03	.83
Sensation	4	124	67.14 ± 24.16	.72
Movement and Balance	4	125	72.60 ± 27.88	.91
Daily Activities	12	124	89.38 ± 20.09	.96
Fatigue	3	124	51.75 ± 28.42	.90
Treatment Anxiety	3	124	75.20 ± 25.95	.87
Total Score	67	134	63.07 ± 17.86	.97

Higher values equal better health-related quality of life. SD, standard deviation; α, Cronbach’s coefficient alpha.

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