Skip to main content

Table 1 Description of quality of life instruments in long-term breast cancer survivors.

From: A systematic review of quality of life instruments in long-term breast cancer survivors

Instruments Domains (Items) Domain description Ferrell's QoL domains * Scaling & scoring/Administration
    Ph. Ps. So. Sp.  
Disease-specific measures
Body Image and Relationships Scale (BIRS) [14] 3 (32) Strength and health; Social barriers; Appearance and sexuality   5-point Likert scale; 1 (Strongly disagree) to 5 (strongly agree).
Total and subscale score = summing all item scores. Higher score indicates greater impairment.
Self-administered
Cancer Rehabilitation Evaluation System Cancer-Short Form (CARES-SF) [15] 6 (59) Global CARES-SF; Physical; Psychosocial; Medical interaction; Marital relationship; Sexual concerns   5-point scale ranging from 0 ("not at all"; no problem) to 4 ("very much"; severe).
Higher scores represent poorer QoL.
Self-administered
European Organization for Research and Treatment of Cancer (EORTC QLQ-C30) [1618] 10 (30) Functional domains: Physical; Role; Emotional; Cognitive; Social; Global QoL
Symptom domains: Fatigue; Nausea/vomiting; Pain
Single-item domain: Dyspnea, appetite loss, sleep disturbance, constipation, diarrhoea
  Physical and role function, dichotomous (Yes/No); Global QoL, 7-point scale; Other items, 4-point Likert scale ranging from 1 (not at all) to 4 (very much).
Scale scores = mean of item scores, rescaled to 0 to 100, with higher function subscale scores indicating less dysfunction and higher symptom subscale scores indicating more dysfunction.
Self-administered, interviewer-administered.
Time to administer: 15 min.
European Organization for Research and Treatment of Cancer-Breast Module (EORTC QLQ-BR23) [19] 8 (23) Body image; Sexual functioning; Arm symptoms; Breast symptoms; Sexual enjoyment; Systemic therapy side-effects; Future perspective; Upset by hair loss     4-point scale ranging from 1 (not at all) to 4 (very much).
Scale scores = mean of item scores, rescaled to 0 to 100.
Self-administered, interviewer-administered
Ferrans and Powers's Quality of Life Index-Cancer Version (QLI-CV) [20] 2 (70) Satisfaction with various domains of life (Part 1): Health and functioning; Socioeconomic; Psychological/spiritual; Family
Importance of the same domains to the subject (Part 2): Health and functioning; Socioeconomic; Psychological/spiritual; Family
6-point Likert-type scale ranging from 1 (very dissatisfied) to 6 (very satisfied) for PART 1, and 1 (very unimportant) to 6 (very important) for PART 2.
Overall & Subscale scores range from 0 to 30.
Higher scores indicate better QoL.
Self-administered, interviewer-administered
Functional Assessment of Cancer Therapy-Breast (FACT-B) [21] 7 (44) Emotional well-being; Functional well-being; Physical well-being; Social/family well-being; Relationship with doctor; Breast cancer subscale; Additional concerns   5-point Likert scale; 0 (not at all) to 4 (very much).
Total FACT-B score has a range of 0 to 144.
Self-administered. Time to administer: 10 min.
Functional Assessment of Cancer Therapy-General (FACT-G) [22] 5 (28) Emotional well-being; Functional well-being; Physical well-being; Social/family well-being; Relationship with doctor   5-point Likert scale; 0 (not at all) to 4 (very much).
Item scores are summed to form overall and subscale scores.
Higher scores indicate less dysfunction.
Self-administered. Time to administer: 5 min.
Functional Assessment of Chronic Illness Therapy-Spiritual Well Being Scale (FACIT-SP) [23] 2 (12) Faith; Purpose     5-point scale ranging from 0 (not at all) to 4 (very much).
Higher scores indicate stronger spiritual beliefs.
Self-administered, interviewer-administered
Quality of life-Cancer Survivor (QOL-CS) [24] 4 (41) Physical well-being; Psychological well-being; Social well-being; Spiritual well-being Visual analog scale ranging from 0 (worst) to 1 (best).
Average of Scores (Overall & Subscale scores range from 0 to 1). Higher scores indicate better QoL.
Self-administered, interviewer-administered
Quality of Life in Adult Cancer Survivors Scale (QLACS) [25] 12 (47) Generic domains: Physical pain; Negative feelings; Positive feelings; Cognitive problems; Sexual problems; Social avoidance; Fatigue
Cancer-specific domains: Distress about family; Distress about recurrence; Appearance concerns; Benefits of cancer; Financial problems resulting from cancer
Each item score range from 1 (Never) to 7 (Always).
Scores for each domain are the sum (after appropriate reverse scoring) of the individual item scores.
Domain scores range from 4-28 points.
Higher scores represent poorer QoL.
Self-administered
Condition-specific measures      
Fatigue Symptom Inventory (FSI) [26] 3 (13) Intensity of fatigue; Interference of fatigue; Fatigue duration     Visual analog scale, 0 to 10.
Intensity of fatigue (0 = not at all fatigued and 10 = extreme fatigue); Interference of fatigue (0 = no interference and 10 = extreme interference); Fatigue duration (0 = none of the day and 10 = the entire day).
Scores range from 0-96. Higher scores indicating greater impact of fatigue.
Self-administered
Multidimensional Fatigue Symptom Inventory (MFSI) [27] 5 (83) Global fatigue; Somatic symptoms; Affective symptoms; Behavioral symptoms; Cognitive symptoms     5-point scale ranging from 0 (not at all) to 4 (extremely).
Self-administered, interviewer-administered
Time to administer: 5-10 min.
  1. * Ph. = Physical; Ps. = Psychological; So. = Social; Sp. = Spiritual