| Data quality | Scaling assumptions | Targeting | Reliability | ||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|
 | Item missing data (%)a | Possible range (midpoint) | Actual score range | Mean score | SD | CITC | Floor/ceiling effects (%)b | Skewness | Cronbach’s alpha | Test-retestc | Mean IICd | Range IIC |
Burden items | Â | Â | Â | Â | Â | Â | Â | Â | Â | Â | Â | Â |
Q1 Bleeding/vigorous activities | 1 | 1–5 | 1–5 | 4.26 | 1.03 | 0.50 | 3/57 | −1.41 | - | - | - | - |
Q2 Bleeding/usual activities | 1 | 1–5 | 1–5 | 4.47 | 0.86 | 0.50 | 1/65 | −1.79 | - | - | - | - |
Q3 Bruising | 0 | 1–5 | 1–5 | 4.39 | 0.87 | 0.45 | 1/58 | −1.49 | - | - | - | - |
Q4 Avoid other medicines | 0 | 1–5 | 1–5 | 4.54 | 0.80 | 0.39 | 1/69 | −1.84 | - | - | - | - |
Q5 Limit eat/drink | 0 | 1–5 | 1–5 | 4.55 | 0.78 | 0.46 | 1/69 | −1.87 | - | - | - | - |
Q6 Hassle/daily | 0 | 1–5 | 1–5 | 4.41 | 0.78 | 0.60 | 0/56 | −1.22 | - | - | - | - |
Q7 Hassle/occasional | 1 | 1–5 | 1–5 | 4.02 | 0.98 | 0.57 | 2/38 | −0.85 | - | - | - | - |
Q8 Difficult to follow your ACT | 0 | 1–5 | 1–5 | 4.71 | 0.58 | 0.52 | 0/77 | −2.19 | - | - | - | - |
Q9 Time-consuming ACT | 0 | 1–5 | 1–5 | 4.52 | 0.69 | 0.43 | 0/62 | −1.40 | - | - | - | - |
Q10 Worry about ACT | 1 | 1–5 | 1–5 | 4.07 | 0.91 | 0.56 | 1/37 | −0.84 | - | - | - | - |
Q11 Frustrating ACT | 0 | 1–5 | 1–5 | 4.45 | 0.87 | 0.61 | 1/64 | −1.76 | - | - | - | - |
Q12 Burden of ACT | 1 | 1–5 | 1–5 | 4.49 | 0.75 | 0.65 | 0/62 | −1.52 | - | - | - | - |
ACTS Burdens scale | 4 | 12–60 (36) | 23–60 | 52.9 | 6.1 | - | 0/11 | −1.08 | 0.85 | 0.97 | 0.32 | 0.13–0.66 |
Benefit items | Â | Â | Â | Â | Â | Â | Â | Â | Â | Â | Â | Â |
Q14 Confident in ACT | 1 | 1–5 | 1–5 | 3.77 | 0.91 | 0.71 | 3/19 | −0.88 | - | - | - | - |
Q15 Reassured by ACT | 1 | 1–5 | 1–5 | 3.71 | 0.87 | 0.80 | 3/15 | −0.84 | - | - | - | - |
Q16 Satisfied with ACT | 0 | 1–5 | 1–5 | 3.79 | 0.90 | 0.69 | 3/19 | −0.92 | - | - | - | - |
ACTS Benefits scale | 1 | 3–15 (9) | 3–15 | 11.3 | 2.4 | - | 1/10 | −0.80 | 0.86 | 0.86 | 0.67 | 0.59–0.73 |