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Table 3 BPI, KINDL, and EQ-5D scores

From: Measuring patient experiences in Fabry disease: validation of the Fabry-specific Pediatric Health and Pain Questionnaire (FPHPQ)

(N = 87)

Mean

St. Dev

% Missing

BPI Scores

Worst pain last 24 hours

2.53

2.86

63%

Least pain last 24 hours

0.75

1.44

63%

Average Pain

2.03

2.09

63%

Pain right now

0.72

1.71

63%

Average interference score

0.76

1.47

57%

KINDL Scores

Physical health

1.46

0.68

46%

General feeling

1.22

0.48

46%

Personal feeling

2.58

0.99

47%

Family

2.38

0.70

47%

Friends

2.88

0.89

48%

School

2.01

0.91

51%

Stayed in hospital

0.37

0.49

53%

Illness

1.11

0.69

57%

EQ-5D Scores and Utilities

Mobility

1.11

0.31

46%

Self care

1.00

0.00

46%

Usual activities

1.11

0.31

46%

Pain/discomfort

1.53

0.55

46%

Anxiety/discomfort

1.09

0.28

46%

EQ-5D utility

1.00

0.00

46%

EQ-5D VAS

1.11

0.31

46%