Table 1 HRQL measures and scales in children and adolescents with epilepsy

Batzel et al ⁴⁸

Psychosocial problems in adolescents with epilepsy

1. family adjustment

2. emotional adjust.

3. interpersonal

4. Vocation outlook

5. school adjustment

6. adjust to seizure

7. management

8. antisocial activity

Correlation of experts and patients

120

12–19

38

Internal consistency,

Test-retest, Inter-rater

Face, Construct

Adolescents

Rater

Hoare & Russell ⁵³

Impact of epilepsy on child & family

Impact of

1. epilepsy /treatment

2. child development & adjustment

3. parents

4. family

Expert

21

6–17

30

none

Face

Parents

Proxy

Carpay et al ¹⁶

Disability due to restrictions

Parents

122

4–16

10

Internal consistency,

Test-retest

Face, content

Parents

Proxy

Camfield et al ^54,55

Impact of epilepsy/ childhood neurological. disability on family

1. outside activities

2. social

3. home life

Existing scale, Expert

97

2–16/18

11/44

Internal consistency,

Test-retest

Construct

Parents

Self

Arunkumar et al ⁵⁸

HRQL in children & adolescents

Parents & children

80 p 48 c

3 months -20

20 each

none

Face, content

Parents & children

Self & proxy

Cramer et al⁵⁶

HRQL in adolescence

1. impact

2. memory

3. attitude

4. physical

5. stigma

6. health

7. behaviour

8. social support

Expert & Focus-groups of adolescents

197

11–17

48

Internal consistency,

Test-retest

Construct

Adolescents

Self

Sabez et al ⁵⁷

HRQL in children with intractable epilepsy

1. physical

2. emotional

3. cognitive

4. social

5. behaviour

Expert & families

63

4–18

77

Internal consistency

Construct

Parents

Proxy

Ronen et al⁴²

HRQL in children

1. interpersonal/social

2. worries/concerns

3. emotional

4. secrecy

5. normality/resilience

Focus-groups of Children & parents

381 c 424 p

8–15

25 each

Internal consistency,

Test-retest

Construct

Children & parents

Self & proxy