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  1. Research

    Factors associated with the quality of life of family caregivers for leukemia patients in China

    The leukemia affects not only the quality of life (QOL) of patients with the disease but also that of their family caregivers (FCs). The research studies on QOL of FCs for leukemia patients are limited. This s...

    Hongjuan Yu, Limin Li, Chaojie Liu, Weidong Huang, Jin Zhou, Wenqi Fu, Yi Ma, Si Li, Yuying Chang, Guoxiang Liu and Qunhong Wu

    Health and Quality of Life Outcomes 2017 15:55

    Published on: 23 March 2017

  2. Research

    Validation and reliability of the Malaysian English version of the psychosocial impact of dental aesthetics questionnaire for adolescents

    The Malay version of the Psychosocial Impact of Dental Aesthetics Questionnaire has been validated for use by Malaysian adolescents. Although Malay is their national language, English is widely used as the lin...

    Wan Nurazreena Wan Hassan, Zamros Yuzadi Mohd Yusof, Mohd Zambri Mohamed Makhbul, Siti Safuraa Zahirah Shahidan, Siti Farhana Mohd Ali, Rashidah Burhanudin and Maria Jirom Gere

    Health and Quality of Life Outcomes 2017 15:54

    Published on: 21 March 2017

  3. Research

    Glatiramer acetate treatment persistence - but not adherence - in multiple sclerosis patients is predicted by health-related quality of life and self-efficacy: a prospective web-based patient-centred study (CAIR study)

    In patients with relapsing remitting multiple sclerosis (RRMS) the persistence of and adherence to disease modifying drug (DMD) treatment is inadequate. To take individualised measures there is a need to ident...

    Peter Joseph Jongen, Wim A. Lemmens, Erwin L. Hoogervorst and Rogier Donders

    Health and Quality of Life Outcomes 2017 15:50

    Published on: 14 March 2017

  4. Research

    The effect of a smartphone-based coronary heart disease prevention (SBCHDP) programme on awareness and knowledge of CHD, stress, and cardiac-related lifestyle behaviours among the working population in Singapore: a pilot randomised controlled trial

    Coronary heart disease (CHD) is the most prevalent type of cardiac disease among adults worldwide, including those in Singapore. Most of its risk factors, such as smoking, physical inactivity and high blood pr...

    Hui Zhang, Ying Jiang, Hoang D. Nguyen, Danny Chiang Choon Poo and Wenru Wang

    Health and Quality of Life Outcomes 2017 15:49

    Published on: 14 March 2017

  5. Research

    Development of the US English version of the phenylketonuria – quality of life (PKU-QOL) questionnaire

    Phenylketonuria (PKU) is a rare genetic disorder caused by a defect in the metabolism of phenylalanine (PHE) resulting in elevated blood and brain PHE levels, and leading to cognitive, emotional, and psychosoc...

    Elaina Jurecki, Amy Cunningham, Vanessa Birardi, Grégory Gagol and Catherine Acquadro

    Health and Quality of Life Outcomes 2017 15:46

    Published on: 9 March 2017

  6. Research

    Measurement properties of the EQ-5D across four major geriatric conditions: Findings from TOPICS-MDS

    As populations age, chronic geriatric conditions linked to progressive organ failure jeopardize health-related quality of life (HRQoL). Thus, this research assessed the validity and applicability of the EQ-5D ...

    Jennifer E. Lutomski, Paul F. M. Krabbe, Nienke Bleijenberg, Jeanett Blom, Gertrudis I. J. M. Kempen, Janet MacNeil-Vroomen, Maaike E. Muntinga, Ewout Steyerburg, Marcel G. M. Olde-Rikkert and René J. F. Melis

    Health and Quality of Life Outcomes 2017 15:45

    Published on: 3 March 2017

  7. Research

    Item analysis using Rasch models confirms that the Danish versions of the DISABKIDS® chronic-generic and diabetes-specific modules are valid and reliable

    Type 1 Diabetes (T1D) has a negative impact on psychological and overall well-being. Screening for Health-related Quality of Life (HrQoL) and addressing HrQoL issues in the clinic leads to improved well-being ...

    Julie Bøjstrup Nielsen, Julie Nyholm Kyvsgaard, Stine Møller Sildorf, Svend Kreiner and Jannet Svensson

    Health and Quality of Life Outcomes 2017 15:44

    Published on: 1 March 2017

  8. Research

    Development of the Systemic Lupus Erythematosus Steroid Questionnaire (SSQ): a novel patient-reported outcome tool to assess the impact of oral steroid treatment

    Oral glucocorticoids (steroids) are the mainstay of treatment for systemic lupus erythematosus (SLE), but their use is often associated with short- and long-term side effects. Following a literature review and...

    Susan D. Mathias, Pamela Berry, Jane De Vries, Anca Askanase, Katie Pascoe, Hilary H. Colwell and David J. Chang

    Health and Quality of Life Outcomes 2017 15:43

    Published on: 28 February 2017

  9. Research

    The impact of psychological factors on condition-specific, generic and individualized patient reported outcomes in low back pain

    An individualized patient reported outcome (PRO) has recently been recommended within LBP research, but no study has evaluated this instrument with commonly applied PROs. Moreover, the impact of psychological ...

    Ida Løchting, Andrew M. Garratt, Kjersti Storheim, Erik L. Werner and Margreth Grotle

    Health and Quality of Life Outcomes 2017 15:40

    Published on: 21 February 2017

  10. Research

    The complex interplay between clinical and person-centered diabetes outcomes in the two genders

    New approaches to cope with clinical and psychosocial aspects of type 2 diabetes (T2DM) are needed; gender influences the complex interplay between clinical and non-clinical factors. We used data from the BENC...

    Maria Chiara Rossi, Giuseppe Lucisano, Basilio Pintaudi, Angela Bulotta, Sandro Gentile, Marco Scardapane, Soren Eik Skovlund, Giacomo Vespasiani and Antonio Nicolucci

    Health and Quality of Life Outcomes 2017 15:41

    Published on: 21 February 2017

  11. Research

    The impact of preterm birth <37 weeks on parents and families: a cross-sectional study in the 2 years after discharge from the neonatal intensive care unit

    Little is known about the quality of life of parents and families of preterm infants after discharge from the neonatal intensive care unit (NICU). Our aims were (1) to describe the impact of preterm birth on p...

    Ashwini Lakshmanan, Meghana Agni, Tracy Lieu, Eric Fleegler, Michele Kipke, Philippe S. Friedlich, Marie C. McCormick and Mandy B. Belfort

    Health and Quality of Life Outcomes 2017 15:38

    Published on: 16 February 2017

  12. Research

    Health-related quality of life, work productivity, and indirect costs among patients with irritable bowel syndrome with diarrhea

    Irritable bowel syndrome (IBS) affects 10–15% of adults in the US, and is associated with significant impairment in health-related quality of life (HRQoL); however, information specific to the diarrhea subtype...

    Jessica L. Buono, Robyn T. Carson and Natalia M. Flores

    Health and Quality of Life Outcomes 2017 15:35

    Published on: 14 February 2017

  13. Research

    Evaluation of quality of life in adults with neurofibromatosis 1 (NF1) using the Impact of NF1 on Quality Of Life (INF1-QOL) questionnaire

    Neurofibromatosis 1 (NF1) is an inherited, multi-system, tumour suppressor disorder with variable complications that cause psychological distress and social isolation. The study aim was to develop and validate...

    Rosalie E Ferner, Mary Thomas, Gemma Mercer, Victoria Williams, Guy D Leschziner, Shazia K Afridi and John F Golding

    Health and Quality of Life Outcomes 2017 15:34

    Published on: 14 February 2017

  14. Research

    Psychometric properties of the Press Ganey® Outpatient Medical Practice Survey

    The Press Ganey® Medical Practice Survey (“Press Ganey® survey”) is a patient-reported questionnaire commonly used to measure patient satisfaction with outpatient health care in the United States. Our objectiv...

    Angela P. Presson, Chong Zhang, Amir M. Abtahi, Jacob Kean, Man Hung and Andrew R. Tyser

    Health and Quality of Life Outcomes 2017 15:32

    Published on: 10 February 2017

  15. Research

    Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources

    Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders characterized by progressive muscle weakness and ultimately cardiac and respiratory fa...

    Natalia Frishman, Kristin Caspers Conway, Jennifer Andrews, Jacob Oleson, Katherine Mathews, Emma Ciafaloni, Joyce Oleszek, Molly Lamb, Dennis Matthews, Pangaja Paramsothy, Lowell McKirgan and Paul Romitti

    Health and Quality of Life Outcomes 2017 15:33

    Published on: 10 February 2017

  16. Research

    Reliability and validity of the Chinese version of the autoimmune bullous disease quality of life (ABQOL) questionnaire

    The autoimmune bullous diseases quality of life (ABQOL) questionnaire was recently developed by an Australian group and has been validated in Australian and North American patient cohorts. It is a 17-item, mul...

    Baoqi Yang, Guo Chen, Qing Yang, Xiaoxiao Yan, Zhaoxia Zhang, Dédée F. Murrell and Furen Zhang

    Health and Quality of Life Outcomes 2017 15:31

    Published on: 2 February 2017

  17. Research

    Transcultural adaptation and psychometric validation of a Spanish-language version of the “Pelvic Girdle Questionnaire”

    The Pelvic Girdle Questionnaire is the only instrument designed to assess pain and disability specifically in pregnant or postpartum women with pelvic girdle pain. The objective of this study was the adaptatio...

    Montserrat Rejano-Campo, Raúl Ferrer-Peña, M. Alicia Urraca-Gesto, Tomás Gallego-Izquierdo, Daniel Pecos-Martín, Britt Stuge and Gustavo Plaza-Manzano

    Health and Quality of Life Outcomes 2017 15:30

    Published on: 1 February 2017

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