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  1. Research

    The impact of psychological factors on condition-specific, generic and individualized patient reported outcomes in low back pain

    An individualized patient reported outcome (PRO) has recently been recommended within LBP research, but no study has evaluated this instrument with commonly applied PROs. Moreover, the impact of psychological ...

    Ida Løchting, Andrew M. Garratt, Kjersti Storheim, Erik L. Werner and Margreth Grotle

    Health and Quality of Life Outcomes 2017 15:40

    Published on: 21 February 2017

  2. Research

    The complex interplay between clinical and person-centered diabetes outcomes in the two genders

    New approaches to cope with clinical and psychosocial aspects of type 2 diabetes (T2DM) are needed; gender influences the complex interplay between clinical and non-clinical factors. We used data from the BENC...

    Maria Chiara Rossi, Giuseppe Lucisano, Basilio Pintaudi, Angela Bulotta, Sandro Gentile, Marco Scardapane, Soren Eik Skovlund, Giacomo Vespasiani and Antonio Nicolucci

    Health and Quality of Life Outcomes 2017 15:41

    Published on: 21 February 2017

  3. Research

    The impact of preterm birth <37 weeks on parents and families: a cross-sectional study in the 2 years after discharge from the neonatal intensive care unit

    Little is known about the quality of life of parents and families of preterm infants after discharge from the neonatal intensive care unit (NICU). Our aims were (1) to describe the impact of preterm birth on p...

    Ashwini Lakshmanan, Meghana Agni, Tracy Lieu, Eric Fleegler, Michele Kipke, Philippe S. Friedlich, Marie C. McCormick and Mandy B. Belfort

    Health and Quality of Life Outcomes 2017 15:38

    Published on: 16 February 2017

  4. Research

    Health-related quality of life, work productivity, and indirect costs among patients with irritable bowel syndrome with diarrhea

    Irritable bowel syndrome (IBS) affects 10–15% of adults in the US, and is associated with significant impairment in health-related quality of life (HRQoL); however, information specific to the diarrhea subtype...

    Jessica L. Buono, Robyn T. Carson and Natalia M. Flores

    Health and Quality of Life Outcomes 2017 15:35

    Published on: 14 February 2017

  5. Research

    Evaluation of quality of life in adults with neurofibromatosis 1 (NF1) using the Impact of NF1 on Quality Of Life (INF1-QOL) questionnaire

    Neurofibromatosis 1 (NF1) is an inherited, multi-system, tumour suppressor disorder with variable complications that cause psychological distress and social isolation. The study aim was to develop and validate...

    Rosalie E Ferner, Mary Thomas, Gemma Mercer, Victoria Williams, Guy D Leschziner, Shazia K Afridi and John F Golding

    Health and Quality of Life Outcomes 2017 15:34

    Published on: 14 February 2017

  6. Research

    Psychometric properties of the Press Ganey® Outpatient Medical Practice Survey

    The Press Ganey® Medical Practice Survey (“Press Ganey® survey”) is a patient-reported questionnaire commonly used to measure patient satisfaction with outpatient health care in the United States. Our objectiv...

    Angela P. Presson, Chong Zhang, Amir M. Abtahi, Jacob Kean, Man Hung and Andrew R. Tyser

    Health and Quality of Life Outcomes 2017 15:32

    Published on: 10 February 2017

  7. Research

    Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources

    Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders characterized by progressive muscle weakness and ultimately cardiac and respiratory fa...

    Natalia Frishman, Kristin Caspers Conway, Jennifer Andrews, Jacob Oleson, Katherine Mathews, Emma Ciafaloni, Joyce Oleszek, Molly Lamb, Dennis Matthews, Pangaja Paramsothy, Lowell McKirgan and Paul Romitti

    Health and Quality of Life Outcomes 2017 15:33

    Published on: 10 February 2017

  8. Research

    Reliability and validity of the Chinese version of the autoimmune bullous disease quality of life (ABQOL) questionnaire

    The autoimmune bullous diseases quality of life (ABQOL) questionnaire was recently developed by an Australian group and has been validated in Australian and North American patient cohorts. It is a 17-item, mul...

    Baoqi Yang, Guo Chen, Qing Yang, Xiaoxiao Yan, Zhaoxia Zhang, Dédée F. Murrell and Furen Zhang

    Health and Quality of Life Outcomes 2017 15:31

    Published on: 2 February 2017

  9. Research

    Transcultural adaptation and psychometric validation of a Spanish-language version of the “Pelvic Girdle Questionnaire”

    The Pelvic Girdle Questionnaire is the only instrument designed to assess pain and disability specifically in pregnant or postpartum women with pelvic girdle pain. The objective of this study was the adaptatio...

    Montserrat Rejano-Campo, Raúl Ferrer-Peña, M. Alicia Urraca-Gesto, Tomás Gallego-Izquierdo, Daniel Pecos-Martín, Britt Stuge and Gustavo Plaza-Manzano

    Health and Quality of Life Outcomes 2017 15:30

    Published on: 1 February 2017

  10. Research

    Health utilities using SF-6D scores in Japanese patients with chronic hepatitis C treated with sofosbuvir-based regimens in clinical trials

    Health utilities are preference-based measures for health states which are typically used in economic analyses to estimate quality-adjusted life years. Our aim is to report the standard SF-6D health utility sc...

    Zobair Younossi, Maria Stepanova, Masao Omata, Masashi Mizokami, Mercedes Walters and Sharon Hunt

    Health and Quality of Life Outcomes 2017 15:25

    Published on: 31 January 2017

  11. Research

    The impact of resilience on psychological outcomes in women with threatened premature labor and spouses: a cross-sectional study in Southwest China

    Threatened premature labor (TPL) is a severe obstetric complication which affects the mental and physical health of both the mother and fetus. Family resilience may have protective role against psychological d...

    Chunhua Nie, Qin Dai, Ren Zhao, Yushu Dong, Yushan Chen and Hui Ren

    Health and Quality of Life Outcomes 2017 15:26

    Published on: 31 January 2017

  12. Research

    Validation of the dutch version of the health education impact questionnaire (HEIQ) and comparison of the Dutch translation with the English, German and French HEIQ

    The Health Education Impact Questionnaire (heiQ) evaluates the effectiveness of health education and self-management programs provided to people dealing with a wide range of conditions. Aim of this study was t...

    Judy W. Ammerlaan, Harmieke van Os-Medendorp, Jacob K. Sont, Gerald R. Elsworth and Richard H. Osborne

    Health and Quality of Life Outcomes 2017 15:28

    Published on: 31 January 2017

  13. Research

    The LMC Skills, Confidence & Preparedness Index (SCPI): development and evaluation of a novel tool for assessing self-management in patients with diabetes

    Optimal diabetes care requires a specific set of self-management behaviours. The purpose of this study was to present the development and initial psychometric evaluation of a new tool to measure three key aspe...

    Lawrence Mbuagbaw, Ronnie Aronson, Ashleigh Walker, Ruth E. Brown and Naomi Orzech

    Health and Quality of Life Outcomes 2017 15:27

    Published on: 31 January 2017

  14. Research

    Validation of the French versions of the Hirschsprung’s disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults

    The Hirschsprung’s disease Anorectal malformation QoL questionnaire (HAQL) is a disease-specific quality of life (QoL) questionnaire for patients with Hirschsprung’s disease (HD) or anorectal malformations (AR...

    Corine Baayen, Fanny Feuillet, Pauline Clermidi, Célia Crétolle, Sabine Sarnacki, Guillaume Podevin and Jean-Benoit Hardouin

    Health and Quality of Life Outcomes 2017 15:24

    Published on: 28 January 2017

  15. Research

    Validation and reliability of the translated Malay version of the psychosocial impact of dental aesthetics questionnaire for adolescents

    This paper describes the cross-cultural adaptation of the Psychosocial Impact of Dental Aesthetics Questionnaire (PIDAQ) into Malay version (Malay PIDAQ), an oral health-related quality of life (OHRQoL) instru...

    Wan Nurazreena Wan Hassan, Zamros Yuzadi Mohd Yusof, Siti Safuraa Zahirah Shahidan, Siti Farhana Mohd Ali and Mohd Zambri Mohamed Makhbul

    Health and Quality of Life Outcomes 2017 15:23

    Published on: 26 January 2017

  16. Research

    How does playing adapted sports affect quality of life of people with mobility limitations? Results from a mixed-method sequential explanatory study

    Occupations, including physical activity, are a strong determinant of health. However, mobility limitations can restrict opportunities to perform these occupations, which may affect quality of life. Some peopl...

    Félix Côté-Leclerc, Gabrielle Boileau Duchesne, Patrick Bolduc, Amélie Gélinas-Lafrenière, Corinne Santerre, Johanne Desrosiers and Mélanie Levasseur

    Health and Quality of Life Outcomes 2017 15:22

    Published on: 25 January 2017

  17. Research

    Developing a dementia-specific health state classification system for a new preference-based instrument AD-5D

    With an ageing population, the number of people with dementia is rising. The economic impact on the health care system is considerable and new treatment methods and approaches to dementia care must be cost eff...

    Kim-Huong Nguyen, Brendan Mulhern, Sanjeewa Kularatna, Joshua Byrnes, Wendy Moyle and Tracy Comans

    Health and Quality of Life Outcomes 2017 15:21

    Published on: 25 January 2017

  18. Research

    An empirical evaluation of the SF-12, SF-6D, EQ-5D and Michigan Hand Outcome Questionnaire in patients with rheumatoid arthritis of the hand

    The aim of this study was to assess the psychometric properties, namely acceptability, validity, reliability, interpretability and responsiveness of the EuroQol EQ-5D (EQ-5D visual analogue (VAS) and EQ-5D (ut...

    Melina Dritsaki, Stavros Petrou, Mark Williams and Sarah E. Lamb

    Health and Quality of Life Outcomes 2017 15:20

    Published on: 24 January 2017

  19. Short report

    Evaluation of a brief pilot psychoeducational support group intervention for family caregivers of cancer patients: a quasi-experimental mixed-methods study

    Family caregivers of cancer patients often experience an impaired quality of life (QOL) and emotional distress as a result of their caregiving duties, which may potentially influence the quality of care of the...

    Rathi Mahendran, Haikel A. Lim, Joyce Y. S. Tan, Hui Ying Ng, Joanne Chua, Siew Eng Lim, Ee Heok Kua and Konstadina Griva

    Health and Quality of Life Outcomes 2017 15:17

    Published on: 23 January 2017

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