Table 3 Factor structure of the questionnaire from the revised factor analysis (48-item questionnaire)

1

I wanted more information about:

My cancer diagnosis

2

The short-term side effects of treatment

3

The long-term side effects of treatment

4

What will happen when treatment finishes

5

My disease status

6

My test results

7

What to do if I have side effects from my treatment

8

How my genetics may or may not have impacted my diagnosis and treatment

CANCER CARE TEAM

9

I felt the need for my cancer treatment team to:

Respect me as an individual, not just a cancer patient

10

Offer to talk to me in private, without my family or friends

11

Explain what they were doing in a way I can understand

12

Encourage me to ask questions

13

Engage me in decision-making about my treatment and respect my decisions

14

Ask me about my treatment concerns

PHYSICAL HEALTH

15

I wanted more help with:

Managing pain

0.640

16

Managing my medications

0.694

17

Managing physical side effects of treatment

0.661

18

Managing feeling tired / fatigued

0.601

EMOTIONAL HEALTH

19

I wanted more help with:

Feeling anxious or scared

20

Feeling depressed

21

Worrying about my cancer returning or getting another type of cancer

22

Worrying about how my family is coping

23

Coping with changes in my dating or romantic life

24

Coping with changes in my relationships with my family members

25

Coping with changes in my relationships with friends

26

Feeling independent

27

Coping with changes in my physical ability

28

Coping with changes in my appearance

29

Coping with not being able to do the same things as other people my age

30

Managing the emotional side effects of treatment

31

Being able to make plans or think about the future

32

Entre capable d’avoir des projets ou de penser à l’avenir

SEXUAL & REPRODUCTIVE HEALTH

33

I wanted more information about:

My risks of infertility and my solutions to preserve my fertility

34

Infertility treatment and other solutions for having children later (e.g. sperm/egg freezing, in vitro fertilization, etc.)

35

Sexuality and intimacy during cancer treatment

36

Sexual side effects of treatment (e.g. sexual dysfunction)

37

The effects of treatment on long-term hormonal changes

HEALTH BEHAVIORS & WELLNESS

38

I wanted more information about:

Nutrition

39

Exercise or physical activity

40

Getting enough or better-quality sleep

41

Spiritual support or resources

42

Alternative therapies (herbal treatment, acupuncture, massage therapy, meditation, etc.)

DAILY LIFE

43

I wanted more help with:

Being able to spend time with people my own age

44

Being able to talk to people my own age who have been through a similar cancer treatment experience

45

Paying my bills

46

Scholarship or loan repayment options

47

My health insurance (e.g., access/eligibility, coverage, cost)

48

Getting to and from my cancer care appointments