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Table 4 Representative participant descriptions of functional impacts on daily activity from RSV

From: Assessing the patient experience of respiratory syncytial virus infection: development of a patient-reported outcome measure

Getting out of bed

I would have to sit on the side of the bed for a while and then get my feet up and then sit upright in the bed for a while before Iā€¦It felt better when I leaned forward. It seems like I could, can breathe better when Iā€™m leaning forward. It feels like my lungs could expand better

Yeah, I just forced myself to do it [get out of bed]

Self-care, meals, and usual activities

I canā€™t do anything. I can hardly make meals. I canā€™t get up the stairs. I have to crawl up the stairs now

I havenā€™t taken a shower since Saturday morning. Itā€™s too much effort to get in the tub. I just lay in bed, so Iā€™m not really dirty. But I brush my teeth, and I go to the bathroom. I donā€™t have any energy to stand up in the shower. I would like a bath; but once I get in there, itā€™s too hard to get out, soā€¦

Leaving home

I canā€™t get to the grocery store. I canā€™t drive my car

I donā€™t want to leave the home. I really donā€™t want to go anywhere

Ability to concentrate

It was very foggy. I couldnā€™t concentrate on anything

It takes a lot to do stand-up [comedy]. And then you have to think, and I was messed up. I couldnā€™t even think of a good joke, you know

Using stairs

I canā€™t get up the stairs. I have to crawl up the stairs now

[Limited to] once or twice a day, and thatā€™s it. It takes everything out of me to go up. A little less coming down, but I only go up twice

Missing work/school

Yes, I did [miss work]. I missed a few shows because I wasnā€™t able to do it. I was in bad shape

My doctor did write me out for the entire week this weekā€¦So I would say 2 weeks

Other daily activity/functional impacts

Yes, because I couldnā€™t exercise at all

I mean I kind of try to keep my engaging with other people to kind of a minimum [to avoid spreading RSV]

  1. RSV Respiratory syncytial virus