| Sample characteristics | |||||||
---|---|---|---|---|---|---|---|---|
Measure | Inclusion/exclusion | Setting | Response rate (%) | Sample size (n) | Age (yrs) | Gender (%) | Cancer type (%) | Cancer treatment stage (%) |
AQoL [35] | Reported | Hematology /oncology clinic | 95 | 75 | 9-20 mean 12.4 | M (55) F (45) | Leukaemia (50) Bone/joint (17) Lymphomas (9) Neurological (9) Hodgkin's (5) Other (9) | In treatment (55) Pre or post treatment (45) |
MMQL Adolescent Forrm [52] | - | Nine hospitals | - | 268 | 13-20.9 median 16.6 | M (56) F (44) | Leukaemia ALL (37) Leukaemia AML (8) Hodgkin's (11) Non-Hodgkin's (11) Brain (6) Other (27) | On therapy (41) Off therapy > 1 year (59) |
PedsQL 3.0 Cancer Module (C&A) [55] | Reported | Hematology/oncology center and Center for Cancer and Blood Diseases | - | 220 | 5-18 mean 10.9 | M (56) F (44) | Leukaemia (50) Brain (7) Non-Hodgkin's (6) Hodgkin's (3) Wilm's Tumor (6) Other (28) | On treatment (54) Off treatment < 1 year (18) Off treatment > 1 year (28) |
QOL-CS [16] | Reported | University medical center | 53 | 176 | 16-28 mean 21.8 | M (43) F (57) | Leukaemia (30) Brain/CNS (11) Lymphoma (21) Wilm's Tumor (10) Sarcomas (16) Other (11) | 3-27 yrs post-diagnosis (100) (average 13.3 yrs) |
PCQL-32 [59] | Reported | Three pediatric cancer centers | 89.5 | 291 | 8-18 mean 11.78 | M (61) F (39) | Leukaemia ALL (44) Leukaemia AML (6) Leukaemia other (1) Hodgkin's (6) Non-Hodgkin's (9) Other (34) | Newly on-treatment (37) Relapsed on treatment (8) Remission off-treatment (11) Long-term off-treatment (44) |
PCQL Modular Approach [62] | Reported | Three pediatric cancer centers | 89.5 | 291 | 8-18 mean 11.78 | - | - | On treatment (45) Off treatment (55) |
PIE [63] | Reported | Children's cancer unit | - | 41 | 8-24 mean 14.6 | M (49) F (51) | Leukaemia ALL (68) Wilm's Tumor (15) Sarcomas (12) Non-Hodgkin's (5) | Maintenance treatment (41) Follow-up only (59) |