From: Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation
Country
Children
Proxy
Parents
France
60%
(9/15)
29%
(6/21)
54%
(13/24)
Germany
80%
(4/5)
50%
(6/12)
100%
(12/12)
UK
(7/7)
73%
(8/11)
64%
(7/11)
Uruguay
58%
(7/12)
25%
(5/20)
70%
(14/20)
TOTAL
69%
(27/39)
39%
(25/64)
(46/67)