Table 5 Prevalence and worst aspects of physical, social, and emotional distress at T1–T4 (n = 36)
T1 | T2 | T3 | T4 | |||||
|---|---|---|---|---|---|---|---|---|
Prevalence | Worst1 | Prevalence | Worst1 | Prevalence | Worst1 | Prevalence | Worst1 | |
Physical distress | ||||||||
Fatigue | 25 (69%) | 11 | 31 (86%) | 15 | 32 (89%) | 12 | 30 (83%) | 17 |
Diarrhoea | 18 (50%) | 10 | 20 (56%) | 10 | 22 (61%) | 11 | 25 (69%) | 13 |
Dry skin/mucous membranes | 14 (39%) | 2 | 22 (61%) | 5 | 22 (61%) | 3 | 25 (69%) | 6 |
Pain-stomach | 18 (50%) | 4 | 20 (56%) | 3 | 20 (56%) | 8 | 23 (64%) | 4 |
Dyspnoea | 18 (50%) | 3 | 21 (58%) | 5 | 20 (56%) | 8 | 21 (58%) | 10 |
Flush | 19 (53%) | 8 | 21 (58%) | 1 | 21 (58%) | 5 | 11 (30%) | 1 |
Appetite loss | 14 (39%) | 1 | 17 (47%) | 5 | 21 (58%) | 4 | 15 (42%) | 4 |
Pain-muscles | 15 (42%) | 1 | 17 (47%) | 6 | 15 (42%) | 5 | 18 (50%) | 6 |
Nausea | 14 (39%) | 1 | 15 (42%) | 3 | 19 (53%) | 5 | 17 (47%) | 6 |
Insomnia | 13 (36%) | 4 | 15 (42%) | 3 | 17 (47%) | 1 | 18 (50%) | 5 |
Social distress | 13 | |||||||
Work/pursue daily activities | 23 (64%) | 15 | 24 (67%) | 15 | 24 (67%) | 13 | 26 (72%) | 6 |
Perform physical activities | 23 (64%) | 7 | 23 (64%) | 3 | 25 (69%) | 10 | 27 (75%) | 6 |
To travel | 20 (56%) | 2 | 17 (47%) | 5 | 23 (64%) | 8 | 21 (58%) | 2 |
Dine out/go to theatre etc | 17 (47%) | - | 18 (50%) | 3 | 19 (53%) | 6 | 19 (53%) | 6 |
Associate with friends | 17 (47%) | 3 | 17 (47%) | 3 | 20 (56%) | 6 | 18 (50%) | |
Emotional distress | ||||||||
Worry that the illness will get worse | 33 (92%) | 20 | 32 (89%) | 10 | 30 (83%) | 16 | 31 (86%) | 16 |
Depression | 32 (89%) | 1 | 27 (75%) | 5 | 29 (80%) | 9 | 26 (72%) | 10 |
Irritation | 27 (75%) | 5 | 26 (72%) | 5 | 29 (80%) | 6 | 27 (75%) | 6 |
Worry that the family can not cope with the illness | 29 (80%) | 6 | 29 (80%) | 4 | 25 (69%) | 5 | 23 (64%) | 7 |
Worry before check-up | 27 (75%) | 4 | 25 (69%) | 3 | 24 (67%) | 7 | 26 (72%) | 7 |
Worry that the illness will interfere with ability to care for the family | 25 (69%) | 5 | 21 (58%) | 3 | 24 (67%) | 5 | 22 (61%) | 1 |
Troublesome tests/examinations | 25 (69%) | 4 | 17 (47%) | 4 | 20 (56%) | 1 | 24 (67%) | 2 |
Bother by changed appearance | 7 (19%) | - | 14 (39%) | 1 | 18 (50%) | 2 | 17 (47%) | 3 |
Bother by changed sexual activity | 13 (36%) | - | 14 (39%) | - | 16 (44%) | 1 | 19 (53%) | 2 |