Table 4 Content Validity of the WF-NRS

If I’d had any worse in the last 24 hours, which last night was one of those nights that wasn’t a good night and I think I was up four or five times, you know?

“ … there’s just that little period once I’ve been home for a half hour, 45 minutes and then after I’ve been home for, you know, over an hour, it’s just – that’s when I’m the most tired and then I kind of get my second wind… So I’d say it’s just that period after work where I move up to about a six.”

“So if you want to ask me what my worst level of fatigue is, maybe – again, I don’t – these were just all kind of – I always think if they’re trying to get a trick question out of me, so “Best describes your worst level of fatigue during the past” – I don’t know. That worst kind of throws me off by that. Because isn’t fatigue bad anyways, no matter how you look at it?

“How did I decide? Wait a minute. No fatigue. Oh, I meant to do it the other way. I really meant the other way. So that really should have been at this end…Oh, ok. I’m sorry I misread that one. I would think around a 7. It’s, you know, it’s as bad as you can imagine. I would think maybe an 8. Can I change it?

“… Depending on what the person is doing every 24 hours – at least for me every 24 hours is different… so I understand that you’ve got to put a time on the stuff, but the last 24 hours for me is different than the middle of the week 24 hours of the last week.”

“Yeah, I think that’s, kind of – I probably should do one of these every day, that way I would know exactly how I feel every day, you know, because it just makes you realize just how tired you are or how it affects your daily life, you know, so, very interesting.”

“For me, I – 24 hours, it depends on what – for me, I would look at a week, because I think during the course of a week you will see – there’s a – and I don’t know how everybody else is, but I just know during the course of a week there could be a week that’s good, there could be a week that has a day or so that’s not so good, you know, and that’s just…: I just think you’ll get a bigger picture by looking at it over a course of a week.”

“I haven’t felt like I’ve rested well.”

“That was just I pretty much wore myself out, just of the things that I did and the fact that I think my body doesn’t work as fast, you know, there’s always the pain and the stiffness, so therefore, to me, you know, it’s – that causes the fatigue to really, you know, get worse, so…I just thought to myself that that’s just how I felt, that I just really, you know – I really don’t know how to explain it. It’s not that I just want to you know, lie down and sleep all the time. It’s just that you just feel like you never – with the stiffness and the pain it just never gives you a feeling of you’ve really had a good rest. You’ve really had a good, you know, it’s just really hard to, and that’s why I put eight because that’s what I felt, you know, I haven’t felt like I’ve rested well, you know, so, I don’t know.”

“Now 10 is almost like crawling into bed and, you know, and listening to something and having a difficult time just filtering and, you know, and just – that’s severe. And what’s amazing is that – I don’t want you to think that there is, you know, it’s – it’s not a mental problem. It’s like you’re so fatigued that it’s just difficult to process the info, you know, I dunno.”

“When my mother came into my room I actually snapped at her, you know? I didn't mean to and I felt really bad.”

“… because you do kind of adjust 'cause in your mind you do think, what – and that’s why, I guess, I go back to that day that I say that was my worst day because in my mind I can kind of know what I’ve done …”