Domain | Definition | N° of items | N° of items |
---|---|---|---|
HAE-QOL v 1.0 | HAE-QOL v 1.1 | ||
Health conditions | To what extent the availability of adequate assistance from health services and the information (related to prevention and treatment) offered by health personnel affects daily life. | 11 | 4 |
Physical functioning | To what extent HAE-C1-INH limits physical activities like self-care, grooming, walking, etc. | 2 | 1 |
Social role | To what extent HAE-C1-INH interferes with normal social life and leisure activities (including sports, traveling, hobbies). | 5 | 3 |
Emotional role | To what extent HAE-C1-INH affects emotional state/partnership/family. | 3 | 3 |
Symptoms | Objective questions about clinical characteristics of the patient | 8 | 0* |
Physical role | To what extent HAE-C1-INH interferes with work, studies, or other daily activities, including a worsened performance in these activities, a limitation in the type of activities that can be performed, or difficulties in undertaking of these activities. | 7 | 7 |
Aesthetics | To what extent the disease affects physical appearance and aesthetic habits. | 2 | 1 |
General health | To what extent personal health assessment including current health, health perspectives for the future, resistance to disease and the influence of HAE-C1-INH on other aspects of health. | 3 | 3 |
Mental health | To what extent general mental health, including depression, anxiety, and behavioral and emotional control are affected by HAE-C1-INH. | 12 | 11 |
Treatment | To what extent HAE-C1-INH treatment affects daily life, regarding disease control, side-effects, availability of treatment. | 11 | 11 |