Measuring patient experiences in Fabry disease: validation of the Fabry-specific Pediatric Health and Pain Questionnaire (FPHPQ)

Table 7 Responsiveness for the FPHPQ subscales using EQ-5D definition

FPHPQ Subscales	Responder – EQ-5D Score Change > 0.1 from Visit 1 to 2		Non-responder – EQ-5D Score Change < 0.1 from Visit 1 to 2		F-TestP Value
FPHPQ Subscales	N	Mean (SD)	N	Mean (SD)	F-TestP Value
Pain Associated with Heat or Exertion	10	−3.5 (6.40)	31	2.4 (6.80)	0.0197
Pain Associated with Cold	10	−0.1 (1.94)	31	0.3 (2.56)	0.6725
Abdominal Pain & Fatigue	10	0.7 (3.25)	31	−0.5 (3.61)	0.3600

ISSN: 1477-7525