Scales | Purpose: to assess- | Domains | Item source | Sample size | Ages (yrs) | Items | Reliability | Validity | Respondents | Report |
---|---|---|---|---|---|---|---|---|---|---|
Batzel et al 48 | Psychosocial problems in adolescents with epilepsy | 1. family adjustment 2. emotional adjust. 3. interpersonal 4. Vocation outlook 5. school adjustment 6. adjust to seizure 7. management 8. antisocial activity | Correlation of experts and patients | 120 | 12–19 | 38 | Internal consistency, Test-retest, Inter-rater | Face, Construct | Adolescents | Rater |
Hoare & Russell 53 | Impact of epilepsy on child & family | Impact of 1. epilepsy /treatment 2. child development & adjustment 3. parents 4. family | Expert | 21 | 6–17 | 30 | none | Face | Parents | Proxy |
Carpay et al 16 | Disability due to restrictions |  | Parents | 122 | 4–16 | 10 | Internal consistency, Test-retest | Face, content | Parents | Proxy |
Camfield et al 54,55 | Impact of epilepsy/ childhood neurological. disability on family | 1. outside activities 2. social 3. home life | Existing scale, Expert | 97 | 2–16/18 | 11/44 | Internal consistency, Test-retest | Construct | Parents | Self |
Arunkumar et al 58 | HRQL in children & adolescents | Â | Parents & children | 80 p 48 c | 3 months -20 | 20 each | none | Face, content | Parents & children | Self & proxy |
Cramer et al56 | HRQL in adolescence | 1. impact 2. memory 3. attitude 4. physical 5. stigma 6. health 7. behaviour 8. social support | Expert & Focus-groups of adolescents | 197 | 11–17 | 48 | Internal consistency, Test-retest | Construct | Adolescents | Self |
Sabez et al 57 | HRQL in children with intractable epilepsy | 1. physical 2. emotional 3. cognitive 4. social 5. behaviour | Expert & families | 63 | 4–18 | 77 | Internal consistency | Construct | Parents | Proxy |
Ronen et al42 | HRQL in children | 1. interpersonal/social 2. worries/concerns 3. emotional 4. secrecy 5. normality/resilience | Focus-groups of Children & parents | 381 c 424 p | 8–15 | 25 each | Internal consistency, Test-retest | Construct | Children & parents | Self & proxy |