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  1. Patient-reported outcome measurement (PROM) plays an increasingly important role in palliative care. A variety of measures exists and is used in clinical care, audit and research. However, little is known abou...

    Authors: Claudia Bausewein, Steffen T Simon, Hamid Benalia, Julia Downing, Faith N Mwangi-Powell, Barbara A Daveson, Richard Harding and Irene J Higginson
    Citation: Health and Quality of Life Outcomes 2011 9:27
  2. With the increase of pediatric cancer survival rates, late effects and quality of life (QoL) have received more attention. Disturbed sleep in pediatric cancer is a common clinical observation, but research on ...

    Authors: Raphaële RL van Litsenburg, Jaap Huisman, Peter M Hoogerbrugge, R Maarten Egeler, Gertjan JL Kaspers and Reinoud JBJ Gemke
    Citation: Health and Quality of Life Outcomes 2011 9:25
  3. The population of survivors following allogeneic HSCT continues to increase, and yet their experiences of recovery and long-term survivorship have not been fully characterized. This paper presents a study prot...

    Authors: Margaret F Bevans, Sandra A Mitchell, A John Barrett, Michael Bishop, Richard Childs, Daniel Fowler, Michael Krumlauf, Patricia Prince, Nonniekaye Shelburne and Leslie Wehrlen
    Citation: Health and Quality of Life Outcomes 2011 9:24
  4. Measuring change is fundamental to evaluations, health services research and quality management. To date, the Gold-Standard is the prospective assessment of pre- to postoperative change. However, this is not a...

    Authors: Eva M Bitzer, Marco Petrucci, Christoph Lorenz, Rugzan Hussein, Hans Dörning, Alf Trojan and Stefan Nickel
    Citation: Health and Quality of Life Outcomes 2011 9:23
  5. The PedsQL 3.0 Cancer Module is a widely used instrument to measure pediatric cancer specific health-related quality of life (HRQOL) for children aged 2 to 18 years. We developed the Japanese version of the Pe...

    Authors: Naoko Tsuji, Naoko Kakee, Yasushi Ishida, Keiko Asami, Ken Tabuchi, Hisaya Nakadate, Tsuyako Iwai, Miho Maeda, Jun Okamura, Takuro Kazama, Yoko Terao, Wataru Ohyama, Yuki Yuza, Takashi Kaneko, Atsushi Manabe, Kyoko Kobayashi…
    Citation: Health and Quality of Life Outcomes 2011 9:22
  6. Quality of life (QOL) is a core outcome of palliative care, yet in African settings there is a lack of evidence on patients' levels of QOL. We aimed to describe QOL among patients with incurable, progressive d...

    Authors: Lucy E Selman, Irene J Higginson, Godfrey Agupio, Natalya Dinat, Julia Downing, Liz Gwyther, Thandi Mashao, Keletso Mmoledi, Tony Moll, Lydia Mpanga Sebuyira, Barbara Ikin and Richard Harding
    Citation: Health and Quality of Life Outcomes 2011 9:21
  7. To describe the health related quality of life in a population sample of postmenopausal women over the age of 50 and resident in the city of Valencia (Spain), according to the presence/absence of osteoporosis ...

    Authors: José Sanfélix-Genovés, Isabel Hurtado, Gabriel Sanfélix-Gimeno, Begoña Reig-Molla and Salvador Peiró
    Citation: Health and Quality of Life Outcomes 2011 9:20
  8. Within an ongoing project of the EORTC Quality of Life Group, we are developing computerized adaptive test (CAT) measures for the QLQ-C30 scales. These new CAT measures are conceptualised to reflect the same c...

    Authors: Johannes M Giesinger, Morten Aa Petersen, Mogens Groenvold, Neil K Aaronson, Juan I Arraras, Thierry Conroy, Eva M Gamper, Georg Kemmler, Madeleine T King, Anne S Oberguggenberger, Galina Velikova, Teresa Young and Bernhard Holzner
    Citation: Health and Quality of Life Outcomes 2011 9:19
  9. Despite the wide use of the Excited Component of the Positive and Negative Syndrome Scale (PANSS-EC) in a clinical setting to assess agitated patients, a validation study to evaluate its psychometric propertie...

    Authors: Alonso Montoya, Amparo Valladares, Luis Lizán, Luis San, Rodrigo Escobar and Silvia Paz
    Citation: Health and Quality of Life Outcomes 2011 9:18
  10. The objective of this study is to use the pain numeric rating scale (NRS) to evaluate associations between change in pain severity and changes in sleep, function, and mood assessed via patient-reported outcome...

    Authors: Robert van Seventer, Michael Serpell, Flemming W Bach, Bart Morlion, Gergana Zlateva, Andrew G Bushmakin, Joseph C Cappelleri and Meryem Nimour
    Citation: Health and Quality of Life Outcomes 2011 9:17
  11. A pediatric chronic health condition not only influences a child's life, but also has impacts on parent health-related quality of life (HRQOL) and family functioning. To provide care and social support to thes...

    Authors: Ruoqing Chen, Yuantao Hao, Lifen Feng, Yingfen Zhang and Zhuoyan Huang
    Citation: Health and Quality of Life Outcomes 2011 9:16
  12. As Thai people living with HIV/AIDS gain increasing access to antiretroviral (ARV) therapy, it is important to evaluate the impact this has not only on clinical outcomes, but also on patients' functional statu...

    Authors: Suwat Chariyalertsak, Tanyaporn Wansom, Surinda Kawichai, Cholthicha Ruangyuttikarna, Verne F Kemerer and Albert W Wu
    Citation: Health and Quality of Life Outcomes 2011 9:15
  13. No control tools for nasal congestion (NC) are currently available in Spanish. This study aimed to adapt and validate the Congestion Quantifier Seven Item Test (CQ7) for Spain.

    Authors: Antonio Valero, Joaquim Mullol, Michael Herdman and Maria-José Rosales
    Citation: Health and Quality of Life Outcomes 2011 9:14
  14. During the past decade, quality of life (QoL) has become an accepted measure of disease impact, therapeutic outcome, and evaluation of interventions. So far, very little is known about the effects of community...

    Authors: Saskia PJ Verkleij, Marcel C Adriaanse, WM Monique Verschuren, Eric C Ruland, Gerrie CW Wendel-Vos and Albertine J Schuit
    Citation: Health and Quality of Life Outcomes 2011 9:11
  15. Over the past two decades, there has been an increasing focus on quality of life outcomes in urological diseases. Patient-reported outcomes research has relied on structured assessments that constrain interpre...

    Authors: Bradley Andrew Morganstern, Bernard Bochner, Guido Dalbagni, Ahmad Shabsigh and Bruce Rapkin
    Citation: Health and Quality of Life Outcomes 2011 9:10
  16. Accurate measurement of quality of life in older ICU survivors is difficult but critical for understanding the long-term impact of our treatments. Activities of daily living (ADLs) are important components of ...

    Authors: Michael T Vest, Terrence E Murphy, Katy LB Araujo and Margaret A Pisani
    Citation: Health and Quality of Life Outcomes 2011 9:9
  17. The evaluation of interventions and policies designed to promote resilience, and research to understand the determinants and associations, require reliable and valid measures to ensure data quality. This paper...

    Authors: Gill Windle, Kate M Bennett and Jane Noyes
    Citation: Health and Quality of Life Outcomes 2011 9:8
  18. To determine the impact of the quality of pre-dialysis nephrological care on health-related quality of life (HRQoL) at dialysis onset, which has not been well evaluated.

    Authors: Stephanie Boini, Luc Frimat, Michele Kessler, Serge Briançon and Nathalie Thilly
    Citation: Health and Quality of Life Outcomes 2011 9:7
  19. This study was conducted to establish the minimal detectable change (MDC) and clinically important differences (CIDs) of the physical category of the Stroke-Specific Quality of Life Scale in patients with stroke.

    Authors: Keh-chung Lin, Tiffany Fu, Ching-yi Wu and Ching-ju Hsieh
    Citation: Health and Quality of Life Outcomes 2011 9:5
  20. Given that the assessment of health-related quality of life (HRQoL) is an essential outcome measure to optimize chronic obstructive pulmonary disease (COPD) patient management, there is a need for a short and ...

    Authors: Witold Mazur, Henna Kupiainen, Janne Pitkäniemi, Maritta Kilpeläinen, Harri Sintonen, Ari Lindqvist, Vuokko L Kinnula and Tarja Laitinen
    Citation: Health and Quality of Life Outcomes 2011 9:4
  21. Breast cancer is one of the oncological diseases in which health-related quality of life (HRQL) has been most studied. This is mainly due to its high incidence and survival. This paper seeks to: review publish...

    Authors: María Concepción Delgado-Sanz, María José García-Mendizábal, Marina Pollán, Maria João Forjaz, Gonzalo López-Abente, Nuria Aragonés and Beatriz Pérez-Gómez
    Citation: Health and Quality of Life Outcomes 2011 9:3
  22. Subcutaneous self-injection of medication has benefits for the patient and healthcare system, but there are barriers such as dexterity problems and injection anxiety that can prevent self-injection being used ...

    Authors: Dorothy Keininger and Geoffroy Coteur
    Citation: Health and Quality of Life Outcomes 2011 9:2
  23. Little is known about the life satisfaction of the person with stroke combined with their caregiver, i.e. the dyad, despite the fact that life satisfaction is an important rehabilitation outcome. The aim of th...

    Authors: Aileen L Bergström, Gunilla Eriksson, Lena von Koch and Kerstin Tham
    Citation: Health and Quality of Life Outcomes 2011 9:1
  24. Information on oral health-related quality of life, in addition to clinical measures, is essential for healthcare policy makers to promote oral health resources and address oral health needs.

    Authors: Nazik M Nurelhuda, Mutaz F Ahmed, Tordis A Trovik and Anne N Åstrøm
    Citation: Health and Quality of Life Outcomes 2010 8:152
  25. Childhood chronic disease may affect patients' and their family's functioning. Particularly parents, who play an important role in cooperation between patient and health care professionals, report impaired hea...

    Authors: Małgorzata Farnik, Grzegorz Brożek, Władysław Pierzchała, Jan E Zejda, Michał Skrzypek and Łukasz Walczak
    Citation: Health and Quality of Life Outcomes 2010 8:151
  26. This paper examines health-related quality of life (HRQOL) experiences and barriers facing young people who have received a liver transplant (LT). Semi-structured qualitative interviews were conducted with chi...

    Authors: David B Nicholas, Anthony R Otley, Rachel Taylor, Anil Dhawan, Susan Gilmour and Vicky Lee Ng
    Citation: Health and Quality of Life Outcomes 2010 8:150
  27. Polycystic ovary syndrome (PCOS) is the most common chronic endocrine disorder affecting women of reproductive age. This study aimed to compare the HRQoL of South Asian and white Caucasian women with PCOS, giv...

    Authors: Georgina L Jones, Manisha Palep-Singh, William L Ledger, Adam H Balen, Crispin Jenkinson, Michael J Campbell and Hany Lashen
    Citation: Health and Quality of Life Outcomes 2010 8:149
  28. Pain is a cardinal symptom of osteoarthritis (OA) of the hip and important for deciding when to operate. This study assessed the internal consistency reliability, validity and responsiveness of the Brief Pain ...

    Authors: Heidi Kapstad, Berit Rokne and Knut Stavem
    Citation: Health and Quality of Life Outcomes 2010 8:148
  29. Health Related Quality of Life (HRQoL) is a relevant variable in the evaluation of health outcomes. Questionnaires based on Classical Test Theory typically require a large number of items to evaluate HRQoL. Co...

    Authors: Pablo Rebollo, Ignacio Castejón, Jesús Cuervo, Guillermo Villa, Eduardo García-Cueto, Helena Díaz-Cuervo, Pilar C Zardaín, José Muñiz and Jordi Alonso
    Citation: Health and Quality of Life Outcomes 2010 8:147
  30. Clinical practice and clinical research has made a concerted effort to move beyond the use of clinical indicators alone and embrace patient focused care through the use of patient reported outcomes such as hea...

    Authors: Steven McPhail, Elaine Beller and Terry Haines
    Citation: Health and Quality of Life Outcomes 2010 8:146
  31. Health Related Quality of Life (HRQL) of opiate users has been studied in treatment settings, where assistance for drug use was sought. In this study we ascertain factors related to HRQL of young opiate users ...

    Authors: Antònia Domingo-Salvany, M Teresa Brugal, Gregorio Barrio, Francisco González-Saiz, M José Bravo and Luís de la Fuente
    Citation: Health and Quality of Life Outcomes 2010 8:145
  32. A fast-track intervention with a short pre operative optimization period and short post operative hospitalization has a potential for reduced convalescence and thereby a reduced need for postoperative rehabilitat...

    Authors: Kristian Larsen, Torben B Hansen, Kjeld Søballe and Henrik Kehlet
    Citation: Health and Quality of Life Outcomes 2010 8:144
  33. Due to demographic change, the advanced elderly represent the fastest growing population group in Europe. Health problems tend to be frequent and increasing with age within this cohort.

    Authors: Hans-Helmut König, Dirk Heider, Thomas Lehnert, Steffi G Riedel-Heller, Matthias C Angermeyer, Herbert Matschinger, Gemma Vilagut, Ronny Bruffaerts, Josep M Haro, Giovanni de Girolamo, Ron de Graaf, Viviane Kovess and Jordi Alonso
    Citation: Health and Quality of Life Outcomes 2010 8:143
  34. Sense of coherence (SOC) has been associated with various self-care behaviours in the general population. As the management of type 1 diabetes heavily relies on self-management, the SOC concept could also prov...

    Authors: Aila J Ahola, Markku Saraheimo, Carol Forsblom, Kustaa Hietala and Per-Henrik Groop
    Citation: Health and Quality of Life Outcomes 2010 8:142
  35. An increasing amount of studies report mapping algorithms which predict EQ-5 D utility values using disease specific non-preference-based measures. Yet many mapping algorithms have been found to systematically...

    Authors: Matthijs M Versteegh, Donna Rowen, John E Brazier and Elly A Stolk
    Citation: Health and Quality of Life Outcomes 2010 8:141
  36. Patient-reported outcomes are increasingly seen as complementary to biomedical measures. However, their prognostic importance has yet to be established, particularly in female long-term myocardial infarction (...

    Authors: Tone M Norekvål, Bengt Fridlund, Berit Rokne, Leidulf Segadal, Tore Wentzel-Larsen and Jan Erik Nordrehaug
    Citation: Health and Quality of Life Outcomes 2010 8:140
  37. Patient-Reported Outcomes (PROs) are considered important outcomes because they reflect the patient's experience in clinical trials. PROs have been included in the field of haemophilia only recently.

    Authors: Silvia Riva, Monika Bullinger, Edda Amann and Sylvia von Mackensen
    Citation: Health and Quality of Life Outcomes 2010 8:139
  38. When comparing active treatments, a non-inferiority (or one-sided equivalence) study design is often used. This design requires the definition of a non-inferiority margin, the threshold value of clinical relev...

    Authors: Christoph Gerlinger, Ulrike Schumacher, Thomas Faustmann, Antje Colligs, Heinz Schmitz and Christian Seitz
    Citation: Health and Quality of Life Outcomes 2010 8:138
  39. We investigated whether an intervention mainly consisting of a signed agreement between patient and physician on the objectives to be reached, improves reaching these secondary prevention objectives in modifia...

    Authors: Javier Muñiz, Juan J Gómez-Doblas, María I Santiago-Pérez, Iñaki Lekuona-Goya, Nekane Murga-Eizagaetxebarría, Eduardo de Teresa-Galván ß, José M Cruz-Fernández and Alfonso Castro-Beiras
    Citation: Health and Quality of Life Outcomes 2010 8:137
  40. During the recent decade, a number of studies have begun to address Quality of Life (QoL) in children and adolescents with mental health problems in general population and clinical samples. Only about half of ...

    Authors: Thomas Jozefiak, Bo Larsson, Lars Wichstrøm, Jan Wallander and Fritz Mattejat
    Citation: Health and Quality of Life Outcomes 2010 8:136
  41. There is a growing interest to use health status or disease control questionnaires in routine clinical practice. However, the validity of most questionnaires is established using techniques developed for group...

    Authors: Janwillem WH Kocks, Huib AM Kerstjens, Sandra L Snijders, Barbara de Vos, Jacqueline J Biermann, Peter van Hengel, Jaap H Strijbos, Henk EP Bosveld and Thys van der Molen
    Citation: Health and Quality of Life Outcomes 2010 8:135
  42. Obesity affects ethnic minority groups disproportionately, especially in the pediatric population. However, little is known about the impact of obesity on health-related quality of life (HRQoL) in children and...

    Authors: Afsane Riazi, Sania Shakoor, Isobel Dundas, Christine Eiser and Sheila A McKenzie
    Citation: Health and Quality of Life Outcomes 2010 8:134
  43. Glatiramer acetate (GA) and interferon-beta (INFb) are first-line disease modifying drugs for relapsing remitting multiple sclerosis (RRMS). Treatment with INFb is associated with a significant increase in hea...

    Authors: Peter J Jongen, Dirk Lehnick, Evert Sanders, Pierette Seeldrayers, Sten Fredrikson, Magnus Andersson and Joachim Speck
    Citation: Health and Quality of Life Outcomes 2010 8:133
  44. There is lack of evidence about the unmet needs of people with dementia (PWD) living at home and the predictors of high levels of unmet needs. The main aim of this study was to identify the relationship betwee...

    Authors: Claudia Miranda-Castillo, Bob Woods, Kumari Galboda, Sabu Oomman, Charles Olojugba and Martin Orrell
    Citation: Health and Quality of Life Outcomes 2010 8:132
  45. To assess the measurement properties of the Benign Prostatic Hyperplasia Impact Index (BII) for use in men with Lower Urinary Tract Symptoms (LUTS) secondary to Benign Prostatic Hyperplasia (BPH) treated with ...

    Authors: Mallik Angalakuditi, Rita F Seifert, Risa P Hayes, Michael P O'Leary and Lars Viktrup
    Citation: Health and Quality of Life Outcomes 2010 8:131
  46. In cost-utility analyses gain in health can be measured using health state utilities. Health state utilities can be elicited from members of the public or from patients. Utilities given by patients tend to be ...

    Authors: Yvette Peeters, Adelita V Ranchor, Thea PM Vliet Vlieland and Anne M Stiggelbout
    Citation: Health and Quality of Life Outcomes 2010 8:130

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