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  1. Huntington’s disease (HD) is a progressive neurodegenerative disease with a devastating impact on patients and their families. Quantifying how treatments affect patient outcomes is critical for informing reimb...

    Authors: Ruta Sawant, Kyle Paret, Jennifer Petrillo, Aaron Koenig, Sorrel Wolowacz, Naoko Ronquest and Hugh Rickards
    Citation: Health and Quality of Life Outcomes 2024 22:33
  2. Long-term information on health-related quality of life (HRQOL) and mental health of non-hospitalized individuals with „post COVID-19 syndrome“ (PCS) is scarce. Thus, the objectives of the present study were t...

    Authors: Inge Kirchberger, Christine Meisinger, Tobias D. Warm, Alexander Hyhlik-Dürr, Jakob Linseisen and Yvonne Goßlau
    Citation: Health and Quality of Life Outcomes 2024 22:32
  3. The quality of patient-reported outcome measures (PROMs) used to assess the outcomes of primary hyperparathyroidism (PHPT), a common endocrine disorder that can negatively affect patients’ health-related quali...

    Authors: George Liang, Manraj N. Kaur, Carrie G. Wade, Maria O. Edelen, David W. Bates, Andrea L. Pusic and Jason B. Liu
    Citation: Health and Quality of Life Outcomes 2024 22:31
  4. The involvement of quality of life as the UNAIDS fourth 90 target to monitor the global HIV response highlighted the development of patient-reported outcome (PRO) measures to help address the holistic needs of...

    Authors: Rui Zhou, Ying-Jing Zheng, Bei-Jia Wang, Donald L. Patrick, Todd C. Edwards, Jing-Yi Yun, Jie Zhou, Ren-Jun Gu, Bing-Hui Miao and Hong-Mei Wang
    Citation: Health and Quality of Life Outcomes 2024 22:30
  5. To assess the feasibility, repeatability, validity and responsiveness of the EQ-5D-3L in Krio for patients with stroke in Sierra Leone, the first psychometric assessment of the EQ-5D-3L to be conducted in pati...

    Authors: Daniel Youkee, Sahr Pessima, Catherine Sackley, Marina Soley-Bori, Gibrilla F. Deen and Iain J. Marshall
    Citation: Health and Quality of Life Outcomes 2024 22:29
  6. The use of open-ended questions supplementing static questionnaires with closed questions may facilitate the recognition of symptoms and toxicities. The open-ended ‘Write In three Symptoms/Problems (WISP)’ ins...

    Authors: Leslye Rojas-Concha, Juan Ignacio Arrarrás, Thierry Conroy, Tara Chalk, Monica Guberti, Bernhard Holzner, Olga Husson, Dagmara Kuliś, Omar Shamieh, Claire Piccinin, María José Puga, Gudrun Rohde and Mogens Groenvold
    Citation: Health and Quality of Life Outcomes 2024 22:28
  7. This study examined fatigue in patients treated for childhood acute lymphoblastic leukemia (ALL) over a 2-year period (3- to 27-months post-treatment completion), from the perspective of children and parent ca...

    Authors: S. Walsh, M. Mulraney, M.C. McCarthy and Cinzia R. De Luca
    Citation: Health and Quality of Life Outcomes 2024 22:27
  8. Cancer survivors experience a decrement in health-related quality of life (HRQoL) resulting from the disease as well as adverse effects of therapy. We evaluated the HRQoL of cancer patients, stratified by prim...

    Authors: Jyoti Dixit, Nidhi Gupta, Amal Kataki, Partha Roy, Nikita Mehra, Lalit Kumar, Ashish Singh, Pankaj Malhotra, Dharna Gupta, Aarti Goyal, Kavitha Rajsekar, Manjunath Nookala Krishnamurthy, Sudeep Gupta and Shankar Prinja
    Citation: Health and Quality of Life Outcomes 2024 22:26
  9. Health-state utility values (HSUVs) for post-transplant refractory cytomegalovirus (CMV) infection (with or without resistance [R/R]) were determined using a time trade-off (TTO) survey completed by 1,020 memb...

    Authors: Waqas Ahmed, Louise Longworth, Yemi Oluboyede, Peter Cain, Stacey L. Amorosi, Sarah Hill and Ishan Hirji
    Citation: Health and Quality of Life Outcomes 2024 22:24
  10. Multimorbidity, body pain, sleep disturbance, and depression are major clinical and public health challenges. This paper aimed to examine the associations of multimorbidity with body pain, sleep duration, and ...

    Authors: Xin Ye and Xinfeng Wang
    Citation: Health and Quality of Life Outcomes 2024 22:23
  11. Multidimensional health-related quality of life (HRQOL) instruments, such as the EQ-5D, are increasingly used to assess inequalities in health. However, it is necessary to explore the ability of these instrume...

    Authors: Bernardo Rangel Tura, Milene Rangel da Costa, Sylvia Lordello, Danillo Barros, Yuri Souza and Marisa da Silva Santos
    Citation: Health and Quality of Life Outcomes 2024 22:22
  12. Globally as well as in Sweden, diseases that are caused by unhealthy lifestyle habits are the most common causes of death and disability. Even though there are guidelines that oblige all health-care profession...

    Authors: Sara Alenius, Albert Westergren, Petra Nilsson Lindström, Marie Nilsson, Marie Rask and Lina Behm
    Citation: Health and Quality of Life Outcomes 2024 22:20
  13. Despite a number of respiratory syncytial virus (RSV) vaccine candidates being tested in clinical trials, disease-specific, self-reported instruments assessing symptom severity of RSV infection from the perspe...

    Authors: Valerie Williams, Carla DeMuro Romano, Lyn Finelli, Shanshan Qin, Todd L. Saretsky, Jia Ma, Sandy Lewis, Matthew Phillips, Richard H. Osborne and Josephine M. Norquist
    Citation: Health and Quality of Life Outcomes 2024 22:19
  14. (1) To identify instruments used to assess quality of life (QoL) in children and adolescents with neuromuscular diseases; (2) To identify the psychometric properties contained in these instruments.

    Authors: Karoliny Lisandra Teixeira Cruz, Isadora Cristina Sousa Santos, Cyntia Rogean de Jesus Alves de Baptista and Ana Claudia Mattiello-Sverzut
    Citation: Health and Quality of Life Outcomes 2024 22:18
  15. Syphilis is a sexually transmitted infection causing significant global morbidity and mortality. To inform policymaking and economic evaluation studies for syphilis, we summarised utility and disability weight...

    Authors: Patrick Miao, Fern Terris-Prestholt, Christopher K. Fairley, Joseph D. Tucker, Virginia Wiseman, Philippe Mayaud, Ying Zhang, Jane Rowley, Sami Gottlieb, Eline L. Korenromp, Caroline G. Watts and Jason J. Ong
    Citation: Health and Quality of Life Outcomes 2024 22:17
  16. AP-7D is a newly developed preference-based measure (PBM) in East and Southeast Asia. However, no value set has been established yet. Comparison of the characteristics of value sets obtained by different metho...

    Authors: Takeru Shiroiwa, Tatsunori Murata, Yasuhiro Morii, Eri Hoshino and Takashi Fukuda
    Citation: Health and Quality of Life Outcomes 2024 22:16
  17. A condition-specific instrument is necessary to measure the health-related quality of life among those with polycystic ovary syndrome (PCOS), the most common chronic endocrinopathy among women. The first instr...

    Authors: Pamela J. Wright, Abbas S. Tavakoli and Robin M. Dawson
    Citation: Health and Quality of Life Outcomes 2024 22:15
  18. Understanding consequences of poor chelation compliance is crucial given the enormous burden of post-transfusional iron overload complications. We systematically reviewed iron-chelation therapy (ICT) complianc...

    Authors: Wan Jin Lee, Nurul Ain Mohd Tahir, Geok Ying Chun and Shu Chuen Li
    Citation: Health and Quality of Life Outcomes 2024 22:14
  19. Trajectories of health-related quality of life (HRQoL) after driving cessation (DC) are thought to decline steeply, but for some, HRQoL may improve after DC. Our objective is to examine trajectories of HRQoL f...

    Authors: Thelma J. Mielenz, Haomiao Jia, Carolyn DiGuiseppi, Lisa J. Molnar, David Strogatz, Linda L. Hill, Howard F. Andrews, David W. Eby, Vanya C. Jones and Guohua Li
    Citation: Health and Quality of Life Outcomes 2024 22:13
  20. The aim of this study was to estimate the impact of mild-to-moderate COVID-19 on health-related quality of life (HRQoL) over time among individuals in the United Kingdom, adding to the evidence base that had f...

    Authors: Ioana-Alexandra Soare, Wajeeha Ansari, Jennifer L. Nguyen, Diana Mendes, Waqas Ahmed, Joanna Atkinson, Amie Scott, Jessica E. Atwell, Louise Longworth and Frauke Becker
    Citation: Health and Quality of Life Outcomes 2024 22:12
  21. Patient-Reported Outcomes Measurement Information System (PROMIS®) Dyspnea Activity Motivation & Requirement item pool and sleep related impairments (SRI) item bank are designed in assessing the impact of dysp...

    Authors: Monira I. Aldhahi, Hadeel R. Bakhsh, Bodor H. Bin Sheeha and Rehab Alhasani
    Citation: Health and Quality of Life Outcomes 2024 22:11

    The Correction to this article has been published in Health and Quality of Life Outcomes 2024 22:25

  22. Evaluation of psychosocial consequences of lung cancer screening with LDCT in high-risk populations has generally been performed using generic psychometric instruments. Such generic instruments have low covera...

    Authors: Asha Bonney, John Brodersen, Volkert Siersma, Katharine See, Henry M. Marshall, Daniel Steinfort, Louis Irving, Linda Lin, Jiashi Li, Siyuan Pang, Paul Fogarty, Fraser Brims, Annette McWilliams, Emily Stone, Stephen Lam, Kwun M. Fong…
    Citation: Health and Quality of Life Outcomes 2024 22:10
  23. Nutrition care can positively affect multiple aspects of patient’s health; outcomes are commonly evaluated on the basis of their impact on a patient’s (i) illness-specific conditions and (ii) health-related qu...

    Authors: Raquel Clapés Pemau, Patricia González-Palacios and Kirk W. Kerr
    Citation: Health and Quality of Life Outcomes 2024 22:9
  24. Patient-reported outcomes (PROs) are frequently used in a variety of settings, including clinical trials and clinical practice. The definition of PRO and quality of life (QOL) and their relationship have been ...

    Authors: Takako Kaneyasu, Shinya Saito, Kikuko Miyazaki, Yoshimi Suzukamo, Mariko Naito, Takashi Kawaguchi, Takako Eguchi Nakajima, Takuhiro Yamaguchi and Kojiro Shimozuma
    Citation: Health and Quality of Life Outcomes 2024 22:8
  25. The Short Warwick and Edinburgh Mental Wellbeing Scale (SWEMWBS) is a widely used non-preference-based measure of mental health in the UK. The primary aim of this paper is to construct an algorithm to translat...

    Authors: Anju Devianee Keetharuth, Laura A. Gray, Ellen McGrane, Hannah Worboys and Giovany Orozco-Leal
    Citation: Health and Quality of Life Outcomes 2024 22:7
  26. Following the Russian-Ukrainian conflict, the well-being of millions of Ukrainians has been jeopardised. This study aims to translate and test the psychometric features of the Ukrainian version of the General ...

    Authors: Roberto Benoni, Anna Sartorello, Mariangela Mazzi, Loretta Berti, Marina Sorina, Elena Paiola, Giovanna Varischi, Stefano Tardivo, Michela Rimondini and Francesca Moretti
    Citation: Health and Quality of Life Outcomes 2024 22:6
  27. Older adults present a variety of oral diseases and conditions, in addition to co-morbidities and limited access to dental care, which significantly impact their oral health-related quality of life (OHRQoL). T...

    Authors: Naira Figueiredo Deana, Yolanda Pardo, Montse Ferrer, Gerardo Espinoza-Espinoza, Olatz Garin, Patricia Muñoz-Millán, Claudia Atala-Acevedo, Àngels Pont, Margarita Cancino and Carlos Zaror
    Citation: Health and Quality of Life Outcomes 2024 22:5
  28. Quality-of-life is an essential outcome for quality assessment and economic evaluation in health and social care. The-Quality-of-Life – Aged Care Consumers (QOL-ACC) is a new preference-based quality-of-life m...

    Authors: Kiri Lay, Matthew Crocker, Lidia Engel, Julie Ratcliffe, Rachel Milte and Claire Hutchinson
    Citation: Health and Quality of Life Outcomes 2024 22:4
  29. The EQ-VAS is an important component of the EQ-5D questionnaire. However, there is limited evidence comparing its performance to the EQ-5D utility score, which restricts its use in the population. This study ...

    Authors: Richard Huan Xu, Ruiqi Sun, Lidan Tian, Annie Wai-ling Cheung and Eliza Laiyi Wong
    Citation: Health and Quality of Life Outcomes 2024 22:2
  30. Peripheral intravenous catheters (PIVCs) are essential for successful administration of intravenous treatments. However, insertion failure and PIVC complications are common and negatively impact patients’ heal...

    Authors: Emily N. Larsen, Nicole Marsh, Claire M. Rickard, Gabor Mihala, Rachel M. Walker and Joshua Byrnes
    Citation: Health and Quality of Life Outcomes 2024 22:1
  31. The Paediatric Eosinophilic Oesophagitis Module (PedsQL-EoE) was developed in English as a valid and reliable questionnaire to assess health-related quality of life (HRQoL) in children with EoE. The aim of thi...

    Authors: Ruth Garcia – Martinez de Bartolomé, Josefa Barrio-Torres, MLuz Cilleruelo- Pascual, Juan José Rodríguez-Soler, Ángel Gil-de Miguel and Tomás Sebastián-Viana
    Citation: Health and Quality of Life Outcomes 2023 21:133
  32. Genomic testing transforms the diagnosis and management of rare conditions. However, uncertainty exists on how to best measure genomic outcomes for informing healthcare priorities. Using the HTA-preferred meth...

    Authors: Tianxin Pan, You Wu, James Buchanan and Ilias Goranitis
    Citation: Health and Quality of Life Outcomes 2023 21:132
  33. Psychosocial factors and dentist-patient relationships (DPR) have been suggested to be associated with oral health outcomes. This study aimed to test a conceptual model which hypothesised relationships among p...

    Authors: Youngha Song, Liana Luzzi and David Brennan
    Citation: Health and Quality of Life Outcomes 2023 21:130
  34. Anxiety is a common emotion experienced by patients with prostate cancer (PCa), and can be exacerbated by testing the prostate-specific antigen (PSA) index. The Memorial Anxiety Scale for Prostate Cancer (MAX-...

    Authors: Qingmei Huang, Ping Jiang, Yuanqi Ding, Yaning Zheng, Li Zheng, Jie Luo, Yun Dai, Fulei Wu and Wei Wang
    Citation: Health and Quality of Life Outcomes 2023 21:129
  35. The present study is aimed to develop and validate a quality of life scale for systemic lupus erythematosus (SLE) patients with Chinese cultural background, QLICD-SLE (V2.0).

    Authors: Yuxi Liu, Jiaqi Zhang, Honghong Xue, Mingyang Chen, Tong Xie and Chonghua Wan
    Citation: Health and Quality of Life Outcomes 2023 21:128
  36. The “International Hip Outcome Tool 12” (iHOT12) is a self-administered patient-reported outcome tool for measuring health-related quality of life and physical functioning in young and active patients with hip pa...

    Authors: Yael Steinfeld-Mass, Noa Ben-Ami, Itamar Botser, David Morgenstern and Aharon S. Finestone
    Citation: Health and Quality of Life Outcomes 2023 21:127
  37. Women with vasomotor symptoms (VMS) due to menopause frequently experience poor sleep quality. The Patient-Reported Outcomes Measurement Information System Sleep Disturbance – Short Form 8b (PROMIS SD-SF-8b) h...

    Authors: Neil M. Schultz, Antonia Morga, Emad Siddiqui and Stephanie E. Rhoten
    Citation: Health and Quality of Life Outcomes 2023 21:126
  38. The purpose of this study was to describe the characteristics and health-related quality of life (HRQL) of patients accessing community rehabilitation services in Alberta, Canada, using routinely collected EQ-...

    Authors: Hilary Short, Fatima Al Sayah, Katie Churchill, Eileen Keogh, Lisa Warner, Arto Ohinmaa and Jeffrey A. Johnson
    Citation: Health and Quality of Life Outcomes 2023 21:125
  39. Cancer patients may experience a decrease in cognitive functioning before, during and after cancer treatment. So far, the Quality of Life Group of the European Organisation for Research and Treatment of Cancer...

    Authors: AA Rogge, MA Petersen, NK Aaronson, T Conroy, L Dirven, F Fischer, EJJ Habets, JC Reijneveld, M Rose, C Sleurs, M Taphoorn, KA Tomaszewski, H Vachon, T Young and M Groenvold
    Citation: Health and Quality of Life Outcomes 2023 21:124
  40. Spinal muscular atrophy (SMA) is a rare monogenic neuromuscular disorder caused by loss of function mutations. Measuring health-related quality of life to support economic evaluations in this population is enc...

    Authors: Richard Huan Xu, Bin Ma, Huanping Xin, Huanyu Zhang, Yan Zeng, Nan Luo and Dong Dong
    Citation: Health and Quality of Life Outcomes 2023 21:123
  41. To develop a mapping algorithm for generating the Short Form Six-Dimension (SF-6D) utility score based on the Functional Assessment of Cancer Therapy-Lung (FACT-L) of lung cancer patients.

    Authors: Qing Yang, Long Lin Jiang, Yin Feng Li and Deyu Huang
    Citation: Health and Quality of Life Outcomes 2023 21:122

    The Correction to this article has been published in Health and Quality of Life Outcomes 2024 22:21

  42. Studies examining associations between injuries and outcomes like quality of life and psychological distress are important to understand a broader range of possible consequences of injuries for population health.

    Authors: Leif Edvard Aarø, Eyvind Ohm, Jens Christoffer Skogen, Thomas Nilsen, Marit Knapstad, Øystein Vedaa, Ragnhild Bang Nes, Benjamin Clarsen and Knut-Inge Klepp
    Citation: Health and Quality of Life Outcomes 2023 21:120
  43. To examine the associations of the independent and combined healthy lifestyle factors with health-related quality of life (HRQOL) in adolescents, and to test the moderating role of gender.

    Authors: Hongyu Xiang, Xiuqiong Feng, Li Lin, Shengyu Luo, Xinxia Liu, Dezhong Chen, Kang Qin, Xun Guo, Weiqing Chen and Vivian Yawei Guo
    Citation: Health and Quality of Life Outcomes 2023 21:119
  44. To characterize longitudinal changes and correlations between the measures of EQ-5D-Y and generic PedsQL and their associations with clinical changes in children and adolescents with mild-to-moderate chronic k...

    Authors: Chien-Ning Hsu, You-Lin Tain, Pei-Chen Lu and Hsiang-Wen Lin
    Citation: Health and Quality of Life Outcomes 2023 21:117

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