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  1. To understand the health-related quality of life (HRQoL) in inclusion body myositis (IBM) from a holistic perspective on the background of a complex care situation. The focus was on how the patient journey may...

    Authors: Katja C. Senn, Simone Thiele, Laura Gumbert, Sabine Krause, Maggie C. Walter and Klaus H. Nagels
    Citation: Health and Quality of Life Outcomes 2023 21:111
  2. Gait impairment is a relevant problem in persons with multiple sclerosis (pwMS). The Multiple Sclerosis Walking Scale 12 (MSWS-12) is a valid Patient Reported Outcome Measure (PROM) to evaluate walking ability...

    Authors: Anna Chorschew, Firat Kesgin, Judith Bellmann-Strobl, Peter Flachenecker, Insa Schiffmann, Friederike Rosenthal, Patrick Althoff, Daniel Drebinger, Radina Arsenova, Ludwig Rasche, Eva-Maria Dorsch, Christoph Heesen, Friedemann Paul, Jan-Patrick Stellmann and Tanja Schmitz-Hübsch
    Citation: Health and Quality of Life Outcomes 2023 21:110
  3. Authors: Karine E. Manera, Ben J. Smith, Katherine B. Owen, Philayrath Phongsavan and Michelle H. Lim
    Citation: Health and Quality of Life Outcomes 2023 21:109

    The original article was published in Health and Quality of Life Outcomes 2022 20:40

  4. Middle and late adolescence is the period in a person's life that is most vulnerable to mental health problems. To enable an evidence base that can support policies to prevent such problems, it is crucial to h...

    Authors: Radka Hanzlová and Peter Lynn
    Citation: Health and Quality of Life Outcomes 2023 21:108
  5. The PROMIS Preference score (PROPr) is a new health state utility (HSU) score that aims to comprehensively incorporate the biopsychosocial model of health and apply favorable psychometric properties from the d...

    Authors: Christoph Paul Klapproth, Felix Fischer and Matthias Rose
    Citation: Health and Quality of Life Outcomes 2023 21:107
  6. This study aims to assess the impact of a peer intervention programme in the hospital setting to improve the health-related quality of life (HRQoL) of people recently diagnosed with HIV infection.

    Authors: M. J. Fuster-RuizdeApodaca, D. Pérez-Garín, V. Baceiredo, A. Laguía, J. García Carrillo, R. García and D. García
    Citation: Health and Quality of Life Outcomes 2023 21:106
  7. Verbal rating scales (VRS) are widely used in patient-reported outcome (PRO) measures. At our institution, patients complete an online instrument using VRSs with a five-point brief response scale to assess sym...

    Authors: Andrew J. Vickers, Melissa Assel, Michael Hannon, Priyanka Desai, Sigrid V. Carlsson, Taylor McCready, Jennifer Cracchiolo and Brett Simon
    Citation: Health and Quality of Life Outcomes 2023 21:105
  8. The International Knee Documentation Committee Subjective Knee Form (IKDC) is the most highly recommended patient reported outcome measure for assessing patients with anterior cruciate ligament (ACL) injuries ...

    Authors: Hana Marmura, Paul F. Tremblay, Alan M. J. Getgood and Dianne M. Bryant
    Citation: Health and Quality of Life Outcomes 2023 21:104
  9. It is imperative to evaluate health related quality of life (HRQoL) pre-COVID-19, but there is currently no evidence of the retrospective application of the EuroQol 5-Dimension, 5 level version (EQ-5D-5L) for ...

    Authors: Xiaowu Sun, Manuela Di Fusco, Laura Puzniak, Henriette Coetzer, Joann M. Zamparo, Ying P. Tabak and Joseph C. Cappelleri
    Citation: Health and Quality of Life Outcomes 2023 21:103
  10. Eating behavior primarily depends on eating patterns which are largely influenced by interactions between physiology, environment, psychology, culture and socio-economic status. This study was designed to tran...

    Authors: Premaa Supramaniam, Siti Hajar Ismail, Aisyah Ali, E- Li Leong, Prema Muninathan, Tassha Hilda Adnan and Sarala Paramesvaran
    Citation: Health and Quality of Life Outcomes 2023 21:101
  11. Type 2 diabetes mellitus (T2DM) is a chronic and life-threatening disease. Health-related quality of life (HRQoL) is vital for individuals with T2DM. However, little is known about the impact of psychological ...

    Authors: Zihuan Zeng, Xingli Wang, Yanhan Chen, Hengyu Zhou, Wenfen Zhu, Xiu Xiong, Jiao Tang and Qinghua Zhao
    Citation: Health and Quality of Life Outcomes 2023 21:100
  12. To explore generating a health utility value set for the Chinese medicine Quality of life-11 Dimensions (CQ-11D), a utility instrument designed to assess patients’ health status while receiving TCM treatment, ...

    Authors: Wentao Zhu, Mengpei Zhang, Jie Pan, Lizheng Shi, Hailiang Gao and Shitong Xie
    Citation: Health and Quality of Life Outcomes 2023 21:99
  13. A questionnaire developed in one language must be translated and adapted when it will be used with patients speaking a different language and care should be taken to maintain equivalence between the source lan...

    Authors: Kamala Dhakal, Changying Chen, Panpan Wang, Joanes Faustine Mboineki, Mikiyas Amare Getu, Allison Boyes, Chandrakala Sharma, Bijesh Raj Ghimire, Abish Adhikari, Bibhav Adhikari and Daya Laxmi Shrestha
    Citation: Health and Quality of Life Outcomes 2023 21:98
  14. This study aimed to explore the potential impact of the COVID-19 pandemic on the health-related quality of life (HRQoL) of humanitarian and healthcare workers and its related factors in seven Eastern African c...

    Authors: Alexis Nizigiyimana, Dilaram Acharya and Thomas G. Poder
    Citation: Health and Quality of Life Outcomes 2023 21:97
  15. Physical end emotional changes during pregnancy may not only affect pregnant womens’ quality of life, but also how instruments assessing quality of life perform in such populations. To date, there is insuffici...

    Authors: Elisabet Rondung, Sandra Oliveira and Francisco Esteves
    Citation: Health and Quality of Life Outcomes 2023 21:96
  16. In addition to their standard use to assess real-time symptom burden, patient-reported outcomes (PROs), such as the Patient-Reported Outcomes Measurement Information System (PROMIS), measures offer a potential...

    Authors: Natalie C. Ernecoff, Rebecca Weir, Anthony Rodriguez, Lucy B. Schulson, Maria Orlando Edelen and Janel Hanmer
    Citation: Health and Quality of Life Outcomes 2023 21:95
  17. Antiretroviral treatment improves health related quality of life (HRQoL) of people with human immunodeficiency virus (PWH). However, one third initiating first-line treatment experience virological failure and...

    Authors: Tamlyn A. Rautenberg, Shu Kay Ng, Gavin George, Mahomed-Yunus S. Moosa, Suzanne M. McCluskey, Rebecca F. Gilbert, Selvan Pillay, Isaac Aturinda, Kevin L. Ard, Winnie R. Muyindike, Nicholas Musinguzi, Godfrey Masette, Melendhran Pillay, Pravi Moodley, Jaysingh Brijkumar, Rajesh T. Gandhi…
    Citation: Health and Quality of Life Outcomes 2023 21:94
  18. Orthosis satisfaction is an important outcome in assessing quality of care. However, no measurement specifically assessing orthosis satisfaction is available in the Dutch language. Therefore, the aim of this s...

    Authors: Tanja Oud, Jana Tuijtelaars, Jimmy Schenk, Frans Nollet and Merel-Anne Brehm
    Citation: Health and Quality of Life Outcomes 2023 21:93
  19. Pharmaceutical care has the potential to improve hypertension control rates in young and middle-aged patients. Due the COVID-19 epidemic, standard intervention methods may not be applicable. We propose establi...

    Authors: Xinmei Li, Wenxiu Xu, Xiaofeng Mo, Fan Wu, Minghong Qu, Junxian Ye, Wenxing Wu, Haizhi Li and Te Li
    Citation: Health and Quality of Life Outcomes 2023 21:92
  20. Fatigue is the most frequent and distressing symptom affecting the physical, cognitive, and affective domains of breast cancer patients. The Functional Assessment of Chronic Illness Therapy–Fatigue (FACIT–F) h...

    Authors: Tingting Cai, Jialin Chen, Feixia Ni, Rui Zhu, Fulei Wu, Qingmei Huang, Tingting Zhou, Yang Yang and Changrong Yuan
    Citation: Health and Quality of Life Outcomes 2023 21:91
  21. The EQ-5D-5 L is a commonly used generic measure of health. This study aimed to evaluate the psychometric properties of the EQ-5D-5 L in patients with Graves’ disease (GD).

    Authors: Xiaodong Liu, Wendy WL Chan, Eric HM Tang, Alex HY Suen, Matrix MH Fung, Yu Cho Woo, Shirley YW Liu, Cindy LK Lam, Nan Luo, Carlos KH Wong and Brian HH Lang
    Citation: Health and Quality of Life Outcomes 2023 21:90
  22. Researchers and clinicians using common clinical assessments need to attend to the prevalence of missing data to ensure the validity of the information gathered. The Expanded Prostate Cancer Index Short Form (...

    Authors: Anna-Maija Talvitie, Mika Helminen, Hanna Ojala, Teuvo Tammela, Anssi Auvinen and Ilkka Pietilä
    Citation: Health and Quality of Life Outcomes 2023 21:89
  23. Distorted thoughts are common in Major Depressive Disorder (MDD), and can impact patients’ perceptions of depression severity, and predict chronicity and treatment response. This study aimed to investigate whe...

    Authors: Adriana Munhoz Carneiro, Danilo Assis Pereira, Fernando Fernandes, Makilim Nunes Baptista, André Russowsky Brunoni and Ricardo Alberto Moreno
    Citation: Health and Quality of Life Outcomes 2023 21:88
  24. In Brazil, cancer patients and caregivers of cancer patients seek judicial intervention for free access to medications from the public health system. Indeed, the COVID-19 pandemic potentially affected the heal...

    Authors: Leila Abou Salha, José Elmo de Menezes, Danilo Rocha Dias, Virginia Visconde Brasil, Pedro Lopes Ferreira, Jolivê Mendes de Santana Filho and Maria Alves Barbosa
    Citation: Health and Quality of Life Outcomes 2023 21:87
  25. Evidence shows that both socioeconomic status (SES) during childhood and education are associated with adult oral health. However, whether the range of opportunities families have regarding their children’s ed...

    Authors: Faten Haider, Eduardo Bernabé and Elsa Karina Delgado-Angulo
    Citation: Health and Quality of Life Outcomes 2023 21:86
  26. Vitiligo is reported to affect 2% of the world’s population and has a significant impact on health related quality of life (HRQoL). The relationship between HRQoL and clinical outcomes used in vitiligo require...

    Authors: Rabiah Begum, Ralph Crott, Reynaldo Martina, Eleni M. Loizidou and Iftekhar Khan
    Citation: Health and Quality of Life Outcomes 2023 21:85
  27. Health-related quality of life (HRQoL) reflects an individual’s own perception of their symptom burden, functional limitations, prognosis, overall health and changes associated with treatment. The HeartQoL is ...

    Authors: Margrét Hrönn Svavarsdóttir, Brynja Ingadottir, Neil Oldridge and Kristofer Årestedt
    Citation: Health and Quality of Life Outcomes 2023 21:84
  28. Psoriasis is a common autoimmune dermatologic condition which has a pronounced negative impact on patient quality of life and disease burden. Currently, there are a number of treatments available for psoriasis...

    Authors: Stacie Hudgens, Amy Howerter, Shannon Keith, Colby Evans and Corey Pelletier
    Citation: Health and Quality of Life Outcomes 2023 21:83
  29. To identify and describe distinct developmental trajectories of health-related quality of life (HRQoL) in a national level Australian population sample, overall and separately for boys and girls.

    Authors: Rachel O’Loughlin, Harriet Hiscock, Nancy Devlin and Kim Dalziel
    Citation: Health and Quality of Life Outcomes 2023 21:82
  30. Validated self-reporting tools are required to evaluate the functional outcome and health-related quality of life (HRQOL) for those who had extremity bone sarcomas in their childhood or adolescence. Our study ...

    Authors: Nesma Farid, Sungsoo Chun, Omneya Hassanain, Mohamed Salama, Elham Esam, Fatima Adel, Ismail Rashad and Ahmed Mohamed El Ghoneimy
    Citation: Health and Quality of Life Outcomes 2023 21:81
  31. The majority of patient reported outcome measures (PROMs) don’t have population norms in Romania. This is the case with the EQ-5D as well. Therefore, we aimed to estimate population norms for the Romanian vers...

    Authors: Elena Olariu, Raluca Caplescu, Luke Vale, Ileana Gabriela Niculescu-Aron, Yemi Oluboyede and Marian Sorin Paveliu
    Citation: Health and Quality of Life Outcomes 2023 21:80
  32. The aim of this study was to examine the role of demographic characteristics, general health and health related quality of life on the fear control. Also, the aim of study was to explore how older people perce...

    Authors: Saeedeh Avazzadeh, Neda Gilani and Leila Jahangiry
    Citation: Health and Quality of Life Outcomes 2023 21:79
  33. Psychosocial functioning is closely associated with psychopathology and wellbeing in different populations, particularly adolescents. Despite its relevance, measures assessing psychosocial functioning in healt...

    Authors: Daniel Núñez, César Villacura-Herrera, Jorge Gaete, Daniela Meza, Javiera Andaur, Johanna T.W. Wigman and Jo Robinson
    Citation: Health and Quality of Life Outcomes 2023 21:78
  34. Neurostimulation is a highly effective therapy for the treatment of chronic Intractable pain, however, due to the complexity of pain, measuring a subject’s long-term response to the therapy remains difficult. ...

    Authors: Frank Huygen, Jonathan M. Hagedorn, Steven Falowski, David Schultz, Jan Vesper, Robert D. Heros, Denis G. Patterson, Soroush Dehghan, Erika Ross, Anahita Kyani, Misagh B. Mansouri and Jan Willem Kallewaard
    Citation: Health and Quality of Life Outcomes 2023 21:77
  35. The North Star Ambulatory Assessment (NSAA) documents motor performance in ambulatory individuals with Duchenne muscular dystrophy (DMD). Health Utilities Index (HUI) scores, reflecting preferences for health-...

    Authors: Ivana Audhya, Basia Rogula, Shelagh M. Szabo, David Feeny, Talshyn Bolatova and Katherine Gooch
    Citation: Health and Quality of Life Outcomes 2023 21:76
  36. Health literacy (HL), self-efficacy (SE), social support (SS) and fear of disease progression (FOP) are all important factors affecting health-related quality of life (HRQoL) in cancer patients. However, their...

    Authors: Ling Zhang, Yumei Shi, Jing Deng, Dali Yi and Ji-an Chen
    Citation: Health and Quality of Life Outcomes 2023 21:75
  37. Positive results for clinical outcomes should be not only statistically significant, but also clinically significant. The minimum clinically important difference (MCID) is used to define the minimum threshold ...

    Authors: Yu Zhang, Xiaoyu Xi and Yuankai Huang
    Citation: Health and Quality of Life Outcomes 2023 21:74
  38. Heart Failure (HF) is a chronic disease associated with life-limiting symptoms that could negatively impact patients’ health-related quality of life (HRQOL). This study aimed to evaluate HRQOL and explore the ...

    Authors: Anan S. Jarab, Hanan W. Hamam, Walid A. Al-Qerem, Shrouq R. Abu Heshmeh, Tareq L. Mukattash and Eman A. Alefishat
    Citation: Health and Quality of Life Outcomes 2023 21:73
  39. Health-related quality of life (HRQOL) measurement has become an important health care outcome even in oncological pediatric scenario. During radiation therapy care path, pediatric patients and their relatives...

    Authors: Elisa Marconi, Francesco Beghella Bartoli, Elisa Meldolesi, Silvia Mariani, Giulia Panza, Alessia Nardangeli, Loredana Dinapoli, Teresa Carmen Lees, Antonella Guido, Angela Mastronuzzi, Antonio Ruggiero, Maria Antonietta Gambacorta, Vincenzo Valentini, Mario Balducci, Daniela Pia Rosaria Chieffo and Silvia Chiesa
    Citation: Health and Quality of Life Outcomes 2023 21:72
  40. Patient Reported Outcome Measures (PROMs) are being increasingly introduced in clinical registries, providing a personal perspective on the expectations and impact of treatment. The aim of this study was to de...

    Authors: Rasa Ruseckaite, Chethana Mudunna, Marisa Caruso and Susannah Ahern
    Citation: Health and Quality of Life Outcomes 2023 21:71
  41. Patients with local gastric cancer experience a decline of Health-related quality of life (HRQOL) during adjuvant chemotherapy following gastrectomy. Our previous pilot study has indicated the potential of acu...

    Authors: Xuesong Chang, Yanjuan Zhu, Wenjie Zhao, Yihong Liu, Yihan He, Yadong Chen, Danghan Xu, Jun J. Mao and Hai-bo Zhang
    Citation: Health and Quality of Life Outcomes 2023 21:70
  42. Parkinson’s disease is the second most prevalent neurodegenerative disease, affecting 10 million people worldwide. Health and social care professionals need to have personalised tools to evaluate the process o...

    Authors: Leire Ambrosio, Kelly Hislop-Lennie, Nestor Serrano-Fuentes, Corine Driessens and Mari Carmen Portillo
    Citation: Health and Quality of Life Outcomes 2023 21:69
  43. The level of child development may be associated with the risk of poor maternal health-related quality of life (HRQoL). The objective of this study was to describe the developmental characteristics of very low...

    Authors: Hatoko Sasaki, Kyongsun Pak, Hidetoshi Mezawa, Kiwako Yamamoto-Hanada, Kazue Ishitsuka, Mizuho Konishi, Minaho Nishizato, Miori Sato, Mayako Saito-Abe, Limin Yang and Yukihiro Ohya
    Citation: Health and Quality of Life Outcomes 2023 21:68
  44. This study assesses the association between health-related quality of life (HRQoL) for pediatric patients with osteogenesis imperfecta (OI) and their caregivers’ eHealth literacy (eHL), financial well-being, a...

    Authors: Richard Huan Xu, Liling Zhu, Rongjia Sun, Sainan Zou and Dong Dong
    Citation: Health and Quality of Life Outcomes 2023 21:67
  45. The increased prevalence of myopia creates and earlier age of onset has created public health concerns for the long-term eye health, vision impairment and carries with it a significant economic burden. The qua...

    Authors: Lei Dou, Yanjiao Xu, Gang Chen and Shunping Li
    Citation: Health and Quality of Life Outcomes 2023 21:66
  46. This study aimed to compare the quality of life (QoL) reported by childhood cancer survivors (CCS) drawn from a cohort of the German Childhood Cancer Registry with a representative general population sample an...

    Authors: Mareike Ernst, Andreas Hinz, Elmar Brähler, Hiltrud Merzenich, Jörg Faber, Philipp S. Wild and Manfred E. Beutel
    Citation: Health and Quality of Life Outcomes 2023 21:65
  47. Person-centred outcome measures (PCOMs) are commonly used in routine adult healthcare to measure and improve outcomes, but less attention has been paid to PCOMs in children’s services. The aim of this systemat...

    Authors: Hannah May Scott, Debbie Braybrook, Daney Harðardóttir, Clare Ellis-Smith and Richard Harding
    Citation: Health and Quality of Life Outcomes 2023 21:63
  48. The aims of this study were (1) to synthesize evidence of the general health-related quality of life in children with DCD compared to their typically developing peers, and (2) to verify which domains of HRQOL ...

    Authors: Meyene Duque Weber, Tatiane Targino Gomes Draghi, Liz Araújo Rohr, Jorge Lopes Cavalcante Neto and Eloisa Tudella
    Citation: Health and Quality of Life Outcomes 2023 21:62

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