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  1. The Needs Assessment Tool: Progressive Disease-Heart Failure (NAT: PD-HF) is a tool created to assess the needs of people living with heart failure and their informal caregivers to assist delivering care in a ...

    Authors: Valentina Gonzalez-Jaramillo, Jelena Guyer, Nora Luethi, Piotr Sobanski, Rut Zbinden, Eveline Rodriguez, Lukas Hunziker, Steffen Eychmüller and Maud Maessen
    Citation: Health and Quality of Life Outcomes 2021 19:214
    Content type: Research Published on:

  4. Apart from maximizing functional abilities and independence after stroke, improving overall health-related quality of life (HRQoL) should also become part of the stroke treatment and rehabilitation process goa...

    Authors: Hui Jie Wong, Pei Lin Lua, Sakinah Harith and Khairul Azmi Ibrahim
    Citation: Health and Quality of Life Outcomes 2021 19:210
    Content type: Research Published on:

  5. With trends towards longer life expectancy, lifetime with disability has also been prolonged. It is increasingly recognized that not only the person with disability but also those around them are affected. The...

    Authors: Wanyue Dong, Anthony B. Zwi, Chi Shen, Yue Wu and Jianmin Gao
    Citation: Health and Quality of Life Outcomes 2021 19:209
    Content type: Research Published on:

  6. General population normative data for the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 questionnaire facilitates interpretation of data assessed from cancer patients. This study a...

    Authors: Juan Ignacio Arraras, Sandra Nolte, Gregor Liegl, Matthias Rose, Ana Manterola, Jose Juan Illarramendi, Uxue Zarandona, Mikel Rico, Lucia Teiejria, Gemma Asin, Irene Hernandez, Marta Barrado, Ruth Vera, Fabio Efficace and Johannes M. Giesinger
    Citation: Health and Quality of Life Outcomes 2021 19:208
    Content type: Research Published on:

  7. The effect of COVID-19 on Health-Care Professionals’ mental health has received increased attention in the last year’s literature. However, previous studies essentially evaluated psychopathological symptoms an...

    Authors: Miriam Bajo, Pilar Gallego, Maria Stavraki, Grigorios Lamprinakos, Pablo Luna and Darío Díaz
    Citation: Health and Quality of Life Outcomes 2021 19:207
    Content type: Research Published on:

  8. Patient-reported outcome (PRO) instruments measure health gains, including changes in health-related quality of life (HRQoL). Previous studies have assessed the reliability and relationship of multiple HRQoL i...

    Authors: Laura Lappalainen, Harriet Stenvall, Piia Lavikainen, Heikki Miettinen, Janne Martikainen, Harri Sintonen, Anna-Maija Tolppanen, Risto P. Roine and Juha Hartikainen
    Citation: Health and Quality of Life Outcomes 2021 19:206
    Content type: Research Published on:

  9. Although there is emerging data regarding the psychometric properties of the Child Health Utility-9D instrument, more evidence is required with respect to its validity for use in different country settings. Th...

    Authors: Mandana Zanganeh, Peymane Adab, Bai Li and Emma Frew
    Citation: Health and Quality of Life Outcomes 2021 19:205
    Content type: Research Published on:

  10. We aimed to investigate the determinants of Health-related quality of life (HRQOL) in Iranian patients with celiac disease (CD) using the structural equation modeling (SEM).

    Authors: Zeinab Nikniaz, Mohammad Asghari Jafarabadi, Mahdieh Abbasalizad Farhangi, Masood Shirmohammadi and Leila Nikniaz
    Citation: Health and Quality of Life Outcomes 2021 19:204
    Content type: Research Published on:

  12. Pulmonary arterial hypertension (PAH) is characterized by progressive limitations on physical activity, right heart failure, and premature death. The World Health Organization functional classification (WHO-FC...

    Authors: Kristin B. Highland, Rebecca Crawford, Peter Classi, Ross Morrison, Lynda Doward, Andrew C. Nelsen, Howard Castillo, Stephen C. Mathai and Hilary M. DuBrock
    Citation: Health and Quality of Life Outcomes 2021 19:202
    Content type: Research Published on:

  13. There is limited evidence regarding oral health related quality of life of HIV positive populations in sub-Saharan Africa. Focusing HIV positive- and HIV negative Ugandan mothers, this study assessed the influ...

    Authors: Nancy Birungi, Lars Thore Fadnes, Ingunn Marie Stadskleiv Engebretsen, James Kashugyera Tumwine and Anne Nordrehaug Åstrøm
    Citation: Health and Quality of Life Outcomes 2021 19:201
    Content type: Research Published on:

  14. Valid measures of the well-being of older people are important for the evaluation of health and social care services. The nine-item Well-being of Older People measure (WOOP) was based on a novel framework deri...

    Authors: Mariska Q. N. Hackert, Job van Exel and Werner B. F. Brouwer
    Citation: Health and Quality of Life Outcomes 2021 19:200
    Content type: Research Published on:

  15. Health-related quality of life (HRQL) in the general population of Kazakhstan has never been characterized. We constructed this population-based study of the largest city in Kazakhstan, Almaty with the aim to ...

    Authors: Denis Vinnikov, Aizhan Raushanova, Zhanna Romanova and Zhangir Tulekov
    Citation: Health and Quality of Life Outcomes 2021 19:199
    Content type: Research Published on:

  16. The COVID-19 pandemic has caused significant disruptions in the implementation of programs across educational institutions. Nursing students, being both young adults and by practical training, part of the heal...

    Authors: E. G. Beisland, K. H. Gjeilo, J. R. Andersen, O. Bratås, B. Bø, K. Haraldstad, I. H. H. Hjelmeland, M. M. Iversen, B. Løyland, T. M. Norekvål, K. Riiser, G. Rohde, K. H. Urstad, I. Utne and T. N. Flølo
    Citation: Health and Quality of Life Outcomes 2021 19:198
    Content type: Research Published on:

  17. The study aimed to evaluate the long-term change of health-related quality of life (HRQOL) and to identify predictors of HRQOL 5 years after cardiac surgery.

    Authors: Daiva Grazulyte, Ieva Norkiene, Evaldas Kazlauskas, Inga Truskauskaite-Kuneviciene, Smilte Kolevinskaite, Donata Ringaitiene and Jurate Sipylaite
    Citation: Health and Quality of Life Outcomes 2021 19:197
    Content type: Research Published on:

  18. Myocardial infarction and unstable angina are prevalent in Korea. The MacNew Heart Disease health-related quality of life questionnaire is a widely used patient-reported outcome measure for patients with heart...

    Authors: Sun Hyoung Bae, Myeong-Ho Yoon and Jin-Hee Park
    Citation: Health and Quality of Life Outcomes 2021 19:196
    Content type: Research Published on:

  19. Although several studies have reported an association between tuberculosis and health-related quality of life, the change in health-related quality of life after pulmonary tuberculosis has been rarely studied....

    Authors: Sang Hyuk Kim, Hyun Lee and Youlim Kim
    Citation: Health and Quality of Life Outcomes 2021 19:195
    Content type: Research Published on:

  20. A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand ...

    Authors: R. Shah, F. M. Ali, A. Y. Finlay and M. S. Salek
    Citation: Health and Quality of Life Outcomes 2021 19:194
    Content type: Review Published on:

    The Correction to this article has been published in Health and Quality of Life Outcomes 2021 19:211

  21. This study was conducted in a general population of schoolchildren in Sweden, with the aim to assess the psychometric properties of a generic preference-based health related quality of life (HRQoL) instrument,...

    Authors: Kristina Lindvall, Masoud Vaezghasemi, Inna Feldman, Anneli Ivarsson, Katherine J. Stevens and Solveig Petersen
    Citation: Health and Quality of Life Outcomes 2021 19:193
    Content type: Research Published on:

  22. The aim of this cross-sectional study was to evaluate the effect of family functioning on oral health related quality of life (OHRQoL) and dental caries status among 4- to 6-year-old Chinese pre-school childre...

    Authors: Sobia Bilal, Anshad Mohamed Abdulla, Niekla Survia Andiesta, Muneer Gohar Babar and Allan Pau
    Citation: Health and Quality of Life Outcomes 2021 19:192
    Content type: Research Published on:

  23. The Musculoskeletal Health Questionnaire (MSK-HQ) is a recently developed generic questionnaire that consists of 14 items assessing health status in people with musculoskeletal disorders. The objective was to ...

    Authors: Alexander Tingulstad, Maurits W. Van Tulder, Tarjei Rysstad, Anne Therese Tveter, Jonathan C. Hill and Margreth Grotle
    Citation: Health and Quality of Life Outcomes 2021 19:191
    Content type: Research Published on:

  24. The short form of the Stroke Impact Scale (SF-SIS) consists of eight questions and provides an overall index of health-related quality of life after stroke. The goal of the study was the evaluation of construc...

    Authors: Anna Coppers, Jens Carsten Möller and Detlef Marks
    Citation: Health and Quality of Life Outcomes 2021 19:190
    Content type: Research Published on:

  25. The Diabetes Health Profile (DHP‐18), structured in three dimensions (psychological distress (PD), barriers to activity (BA) and disinhibited eating (DE)), assesses the psychological and behavioural burden of ...

    Authors: Ikram Benazizi, Mari Carmen Bernal-Soriano, Yolanda Pardo, Aida Ribera, Andrés Peralta-Chiriboga, Montserrat Ferrer, Alfonso Alonso-Jaquete, Jordi Alonso, Blanca Lumbreras and Lucy Anne Parker
    Citation: Health and Quality of Life Outcomes 2021 19:189
    Content type: Research Published on:

  26. As a result of high transmission and mortality rates, the Covid-19 pandemic has led to a worldwide health crisis, isolation, and widespread fear, therefore negatively influencing people’s quality of life (QOL)...

    Authors: Ali Hasanpour Dehkordi, Marzieh Aslani, Abbas Ebadi, Selman Repišti, Borhan Moradveisi and Reza Ghanei Gheshlagh
    Citation: Health and Quality of Life Outcomes 2021 19:188
    Content type: Research Published on:

  27. Advances in paediatric cardiology have improved the prognosis of children with inherited cardiac disorders. However, health-related quality of life (QoL) and physical activity have been scarcely analysed in ch...

    Authors: Pascal Amedro, Oscar Werner, Hamouda Abassi, Aymeric Boisson, Luc Souilla, Sophie Guillaumont, Johanna Calderon, Anne Requirand, Marie Vincenti, Victor Pommier, Stefan Matecki, Gregoire De La Villeon, Kathleen Lavastre, Alain Lacampagne, Marie-Christine Picot, Constance Beyler…
    Citation: Health and Quality of Life Outcomes 2021 19:187
    Content type: Study protocol Published on:

  28. Kangaroo mother care is known to help save the lives of preterm and low birthweight infants, particularly in resource-limited health settings, yet barriers to implementation have been documented. Mothers and t...

    Authors: Alinane Linda Nyondo-Mipando, Mai-Lei Woo Kinshella, Tamanda Hiwa, Sangwani Salimu, Mwai Banda, Marianne Vidler, Elizabeth Molyneux, Queen Dube, David M. Goldfarb and Kondwani Kawaza
    Citation: Health and Quality of Life Outcomes 2021 19:186
    Content type: Research Published on:

  29. The objective of this study was to verify the reliability, discriminatory power and construct validity of the Kidscreen-27 questionnaire in Brazilian adolescents.

    Authors: Pablo Magno da Silveira, Alexsandra da Silva Bandeira, Marcus Vinicius Veber Lopes, Adriano Ferreti Borgatto and Kelly Samara da Silva
    Citation: Health and Quality of Life Outcomes 2021 19:185
    Content type: Research Published on:

  30. In clinical trials for rare diseases, such as Duchenne muscular dystrophy, clinical outcome assessments (COA) used to assess treatment benefit are often generic and may not be sensitive enough to detect change...

    Authors: Hannah Staunton, Claire Trennery, Rob Arbuckle, Maitea Guridi, Elena Zhuravleva, Pat Furlong, Ryan Fischer and Rebecca Hall
    Citation: Health and Quality of Life Outcomes 2021 19:184
    Content type: Research Published on:

  31. High prevalence rates in diabetes-related distress have been observed in several studies; however, in the region of Sub-Saharan Africa evidence is lacking as is, for example, the case for Rwanda, where diabete...

    Authors: Charilaos Lygidakis, Jean Paul Uwizihiwe, Michela Bia, Per Kallestrup, Damas Dukundane, Brenda Asiimwe-Kateera, Simon Pierre Niyonsenga and Claus Vögele
    Citation: Health and Quality of Life Outcomes 2021 19:183
    Content type: Research Published on:

  32. Pregnant women experience physical, physiological, and mental changes. Health-related quality of life (HRQoL) is a relevant indicator of psychological and physical behaviours, changing over the course of pregn...

    Authors: Huailiang Wu, Weiwei Sun, Hanqing Chen, Yanxin Wu, Wenjing Ding, Shangqiang Liang, Xinyu Huang, Haitian Chen, Qing Zeng, Zhuyu Li, Peng Xiong, Jian Huang, Babatunde Akinwunmi, Casper J. P. Zhang and Wai-Kit Ming
    Citation: Health and Quality of Life Outcomes 2021 19:182
    Content type: Research Published on:

  33. The study aimed to appraise the health-related quality of life (HRQoL) measured by the five-level EuroQol-5 dimensions (EQ-5D-5L) in amyotrophic lateral sclerosis (ALS), and to explore the associations between...

    Authors: Qian-Qian Wei, Yanbing Hou, Yongping Chen, Ruwei Ou, Bei Cao, Lingyu Zhang, Tianmi Yang and Huifang Shang
    Citation: Health and Quality of Life Outcomes 2021 19:181
    Content type: Research Published on:

  34. The Suboptimal Health Status Questionnaire-25 (SHS-Q-25) developed to measure Suboptimal Health Status has been used worldwide, but its construct validity has only been tested in the Chinese population. Applyi...

    Authors: Eric Adua, Ebenezer Afrifa-Yamoah, Kwasi Frimpong, Esther Adama, Shantha P. Karthigesu, Enoch Odame Anto, Emmanuel Aboagye, Yuxiang Yan, Youxin Wang, Xuerui Tan and Wei Wang
    Citation: Health and Quality of Life Outcomes 2021 19:180
    Content type: Research Published on:

  35. Fatigability has recently emerged in oncology as a concept that anchors patients’ perceptions of fatigue to defined activities of specified duration and intensity. This study aimed to examine the psychometric ...

    Authors: Min Kyeong Jang, Sue Kim, Chang Gi Park, Eileen G. Collins, Lauretta T. Quinn, Nancy W. Glynn and Carol Estwing Ferrans
    Citation: Health and Quality of Life Outcomes 2021 19:179
    Content type: Research Published on:

  36. Women with breast cancer are prone to have mental stress and be stimulated by the fear of progression (FOP), then giving rise to a lower quality of life (QOL). The study aimed to examine the relationships betw...

    Authors: Yue Ban, Mengyao Li, Mingli Yu and Hui Wu
    Citation: Health and Quality of Life Outcomes 2021 19:178
    Content type: Research Published on:

  37. Caregivers are major contributor to the self-care of patients with heart failure. The Caregiver Contribution to Self-Care of Heart Failure Index (CC-SCHFI) measures these contributions across three scales: sel...

    Authors: Nittaya Srisuk, Nutchanath Wichit, David R. Thompson and Chantal F. Ski
    Citation: Health and Quality of Life Outcomes 2021 19:177
    Content type: Research Published on:

  38. Sleep disruption is a prevalent symptom reported by survivors of childhood cancer. However, there is no validated instrument for assessing this symptom in this population group. To bridge the literature gap, t...

    Authors: K. Y. Ho, Katherine K. W. Lam, W. Xia, J. O. K. Chung, Ankie T. Cheung, Laurie L. K. Ho, S. Y. Chiu, Godfrey C. F. Chan and William H. C. Li
    Citation: Health and Quality of Life Outcomes 2021 19:176
    Content type: Research Published on:

  39. Although telemedical applications are increasingly used in the area of both mental and physical illness, there is no quality of life (QoL) instrument that takes into account the specific context of the healthc...

    Authors: Klara Greffin, Silke Schmidt, Neeltje van den Berg, Wolfgang Hoffmann, Oliver Ritter, Michael Oeff, Georg Schomerus and Holger Muehlan
    Citation: Health and Quality of Life Outcomes 2021 19:175
    Content type: Research Published on:

  40. The main aim of post-mastectomy breast reconstruction is to improve the patient’s quality of life, which makes high-quality and validated patient-reported outcome measurements essential. None of the establishe...

    Authors: Lynne Kamya, Emma Hansson, Linn Weick and Emma Hansson
    Citation: Health and Quality of Life Outcomes 2021 19:174
    Content type: Research Published on:

  41. The development of the minimum clinical important difference (MCID) can make it easier for researchers or doctors to judge the significance of research results and the effect of intervention measures, and impr...

    Authors: Dandan Ren, Ting Wu, Chonghua Wan, Gaofeng Li, Yanbo Qi, Yujing Fang and Jiudi Zhong
    Citation: Health and Quality of Life Outcomes 2021 19:173
    Content type: Research Published on:

  42. Neurodegenerative diseases (NDs) are one of the main causes of disability and dependence that have a great impact both on the quality of life of people with disabilities and their families. A majority of peopl...

    Authors: Marta Badia, M. Begoña Orgaz, Isabel Vicario-Molina, Eva González-Ortega, María Gómez-Vela, Alba Aza and M. Antonia Martín-Delgado
    Citation: Health and Quality of Life Outcomes 2021 19:172
    Content type: Research Published on:

  43. Idiopathic central precocious puberty (ICPP) reduces patient health-related quality of life (HRQoL). The impacts of disease and treatment on families are also an important concern. This study aimed to assess t...

    Authors: Hong Yang, Shunqing Luo, Xiaohua Liang, Qin Lin, Ting Cheng, Li Zeng, Fang Tang and Di Wu
    Citation: Health and Quality of Life Outcomes 2021 19:171
    Content type: Research Published on:

  44. Day care service (DCS) provides various activities in a professional environment to meet the old people with functional limitations. However, relatively little is known about the effects of DCS on physical and...

    Authors: Cheng-Fu Lin, Jia-Jyun Wu, Yu-Hui Huang, Li-Ying Ju, Shih-Yi Lin, Ying-Chyi Chou and Chu-Sheng Lin
    Citation: Health and Quality of Life Outcomes 2021 19:170
    Content type: Research Published on:

  45. Exercise adherence is important for achieving a long-term effect from musculoskeletal management. The Exercise Adherence Rating Scale (EARS), which was developed in 2017 as a patient reported outcome measure t...

    Authors: Hiroshi Takasaki, Shota Kawazoe, Takahiro Miki, Hiroki Chiba and Emma Godfrey
    Citation: Health and Quality of Life Outcomes 2021 19:169
    Content type: Research Published on:

  46. According to the World Health Organization (WHO), hearing loss (HL) affects up to 15% of the world’s adult population. Coping and personality are hypothesized to underlie quality of life (QoL) and distress sco...

    Authors: Øyvind Nordvik, Peder O. Laugen Heggdal, K. Jonas Brännström, Anne Kari Aarstad and Hans Jørgen Aarstad
    Citation: Health and Quality of Life Outcomes 2021 19:168
    Content type: Research Published on:

  47. Social deprivation has been shown to affect access to health care services, and influences outcomes for a variety of physical and psychological conditions. However, the impact on patient satisfaction remains l...

    Authors: Andrew R. Stephens, Jared W. Potter, Andrew R. Tyser and Nikolas H. Kazmers
    Citation: Health and Quality of Life Outcomes 2021 19:167
    Content type: Research Published on:

  48. The aim of this study was to provide a path model for assessing the direct and/or indirect effects of psychological/behavioral parameters on health-related quality of life among women with vaginismus.

    Authors: Atefeh Velayati, Shahideh Jahanian Sadatmahalleh, Saeideh Ziaei and Anoshirvan Kazemnejad
    Citation: Health and Quality of Life Outcomes 2021 19:166
    Content type: Research Published on:

  49. Oral Function, Orofacial Pain, Orofacial Appearance, and Psychosocial Impact are the four oral health-related quality of life (OHRQoL) dimensions (4D) or areas in which oral disorders impact pediatric patients...

    Authors: Katrin Bekes, Mike T. John, Ksenija Rener-Sitar, Mohammad H. Al-Harthy, Ambra Michelotti, Daniel R. Reissmann, Julijana Nikolovska, Sahityaveera Sanivarapu, Folake B. Lawal, Thomas List, Sanja Peršić Kiršić, Ljiljana Strajnić, Rodrigo Casassus, Kazuyoshi Baba, Martin Schimmel, Ama Amuasi…
    Citation: Health and Quality of Life Outcomes 2021 19:165
    Content type: Research Published on:

  50. There has been limited success in achieving integration of patient-reported outcomes (PROs) in clinical trials. We describe how stakeholders envision a solution to this challenge.

    Authors: Theresa M. Coles, Adrian F. Hernandez, Bryce B. Reeve, Karon Cook, Michael C. Edwards, Marc Boutin, Elizabeth Bush, Arnold Degboe, Lothar Roessig, Amy Rudolph, Pauline McNulty, Nikunj Patel, Trish Kay-Mugford, Margaret Vernon, Michael Woloschak, Gustavo Buchele…
    Citation: Health and Quality of Life Outcomes 2021 19:164
    Content type: Commentary Published on:
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Health and Quality of Life Outcomes

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