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  1. Whether responsiveness represents a measurement property of health-related quality of life (HRQL) instruments that is distinct from reliability and validity is an issue of debate. We addressed the claims of a ...

    Authors: Milo A Puhan, Dianne Bryant, Gordon H Guyatt, Diane Heels-Ansdell and Holger J Schünemann

    Citation: Health and Quality of Life Outcomes 2005 3:33

    Content type: Research

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  2. Protease inhibitor based antiretroviral therapy (PI-ART) was introduced in 1996 and has greatly reduced the incidence of HIV-related morbidity and mortality in the industrialised world. PI-ART would thus be ex...

    Authors: Lars E Eriksson, Göran A Bratt, Eric Sandström and Gun Nordström

    Citation: Health and Quality of Life Outcomes 2005 3:32

    Content type: Research

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  3. Living with a chronic disease, such as primary antibody deficiency, will often have consequences for quality of life. Previous quality-of-life studies in primary antibody deficiency patients have been limited ...

    Authors: Hanne Marie Høybråten Sigstad, Asbjørg Stray-Pedersen and Stig S Frøland

    Citation: Health and Quality of Life Outcomes 2005 3:31

    Content type: Research

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  4. Most research and treatment of post-breast cancer chronic pain has focused on local or regional pain problems in the operated area. The purpose of this pilot study was to compare and contrast the pain characte...

    Authors: Carol S Burckhardt and Kim D Jones

    Citation: Health and Quality of Life Outcomes 2005 3:30

    Content type: Research

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  5. In spite of the fact that self-rated health is such an important factor, little is known about the aetiological background to poor perceived health and also less is known about the impact of life satisfaction ...

    Authors: Ahmad Al-Windi

    Citation: Health and Quality of Life Outcomes 2005 3:28

    Content type: Research

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  6. The prevalence of self-reported low vision (LV) and blindness, and their associated disabilities, handicaps and socio-economic consequences for individuals living in institutions are poorly documented.

    Authors: Antoine Pierre Brézin, Antoine Lafuma, Francis Fagnani, Mounir Mesbah and Gilles Berdeaux

    Citation: Health and Quality of Life Outcomes 2005 3:27

    Content type: Research

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  7. This paper describes the development of the Chinese Quality of Life Instrument (ChQOL) which is a self-report health status instrument. Chinese Medicine relies very much on asking subjective feelings of patien...

    Authors: Kwok-fai Leung, Feng-bin Liu, Li Zhao, Ji-qian Fang, Kelvin Chan and Li-zhu Lin

    Citation: Health and Quality of Life Outcomes 2005 3:26

    Content type: Research

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  8. The MacDQoL is an individualised measure of the impact of macular degeneration (MD) on quality of life (QoL). There is preliminary evidence of its psychometric properties and sensitivity to severity of MD. The...

    Authors: Jan Mitchell, James S Wolffsohn, Alison Woodcock, Stephen J Anderson, Carolyn V McMillan, Timothy ffytche, Martin Rubinstein, Winfried Amoaku and Clare Bradley

    Citation: Health and Quality of Life Outcomes 2005 3:25

    Content type: Research

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  9. Anogenital warts are the most easily recognized sign of genital Human Papilloma Virus infection. The objective was to develop a short, valid and reliable questionnaire to measure Health Related Quality of Life...

    Authors: Xavier Badia, Jose Antonio Colombo, Nuria Lara, M Angels Llorens, Luis Olmos, Miguel Sainz de los Terreros, Jose Antonio Varela and Juan Jose Vilata

    Citation: Health and Quality of Life Outcomes 2005 3:24

    Content type: Research

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  10. Health related quality of life (HRQL) has been recognised as an important paediatric outcome measurement. One of the more promising measures to emerge in recent years is the Pediatric Quality Of Life Inventory...

    Authors: Penney Upton, Christine Eiser, Ivy Cheung, Hayley A Hutchings, Meriel Jenney, Alison Maddocks, Ian T Russell and John G Williams

    Citation: Health and Quality of Life Outcomes 2005 3:22

    Content type: Research

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  11. There is increasing evidence to support the phenomenon of response shift (RS) in quality of life (QoL) studies, with many current QoL measures failing to allow for this. If significant response shift occurs am...

    Authors: Jonathan Rees, Michael G Clarke, Dympna Waldron, Ciaran O'Boyle, Paul Ewings and Ruaraidh P MacDonagh

    Citation: Health and Quality of Life Outcomes 2005 3:21

    Content type: Research

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  12. The AMS is an internationally used health-related quality of life (HRQoL) scale. The aim of this paper is to provide evidence that the French AMS scale measures HRQoL are as valid as other language versions. W...

    Authors: Eric Myon, Nicolas Martin and Charles Taïeb

    Citation: Health and Quality of Life Outcomes 2005 3:20

    Content type: Research

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  13. Influenza vaccination recently has been recommended for children 6–23 months old, but is not currently recommended for routine use in non-high-risk older children. Information on disease impact, costs, benefit...

    Authors: Lisa A Prosser, Carolyn Buxton Bridges, Timothy M Uyeki, Virginia H Rêgo, G Thomas Ray, Martin I Meltzer, Benjamin Schwartz, William W Thompson, Keiji Fukuda and Tracy A Lieu

    Citation: Health and Quality of Life Outcomes 2005 3:18

    Content type: Research

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  14. The incidence of reported adolescent and adult pertussis continues to rise in the United States. Acellular pertussis vaccines for adolescents and adults have been developed and may be available soon for use in...

    Authors: Grace M Lee, Joshua A Salomon, Charles W LeBaron and Tracy A Lieu

    Citation: Health and Quality of Life Outcomes 2005 3:17

    Content type: Research

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  15. The aim of the study was to develop a menopause-specific, preference-based health-related quality-of-life (HRQoL) index reflecting both menopausal symptoms and potential side-effects of Hormone Replacement The...

    Authors: John E Brazier, Jennifer Roberts, Maria Platts and York F Zoellner

    Citation: Health and Quality of Life Outcomes 2005 3:13

    Content type: Research

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  16. The exponential development of Patient-Reported Outcomes (PRO) measures in clinical research has led to the creation of the Patient-Reported Outcome and Quality of Life Instruments Database (PROQOLID) to facil...

    Authors: Marie-Pierre Emery, Laure-Lou Perrier and Catherine Acquadro

    Citation: Health and Quality of Life Outcomes 2005 3:12

    Content type: Review

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  17. Cost utility analysis (CUA) using SF-36/SF-12 data has been facilitated by the development of several preference-based algorithms. The purpose of this study was to illustrate how decision-making could be affec...

    Authors: A Simon Pickard, Zhixiao Wang, Surrey M Walton and Todd A Lee

    Citation: Health and Quality of Life Outcomes 2005 3:11

    Content type: Research

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  18. Spirituality has become a subject of interest in health care as it is was recognized to have the potential to prevent, heal or cope with illness. There is less doubt that values and goals are important contrib...

    Authors: Arndt Büssing, Thomas Ostermann and Peter F Matthiessen

    Citation: Health and Quality of Life Outcomes 2005 3:10

    Content type: Research

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  19. The development and validation study of the Clinical Chronic Obstructive Disease (COPD) Questionnaire (CCQ) has recently been published in this journal. The CCQ is the first questionnaire that incorporates bot...

    Authors: Salvatore Damato, Chiara Bonatti, Vinicio Frigo, Silvana Pappagallo, Rita Raccanelli, Claudio Rampoldi and Francesco Rodi

    Citation: Health and Quality of Life Outcomes 2005 3:9

    Content type: Research

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  20. Since the mid eighties, responsiveness is considered to be a separate property of health status questionnaires distinct from reliability and validity. The aim of the study was to assess the strength of the rel...

    Authors: Robert Lindeboom, Mirjam A Sprangers and Aeilko H Zwinderman

    Citation: Health and Quality of Life Outcomes 2005 3:8

    Content type: Research

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  21. The purpose of this study was to evaluate the individualized and standardized quality of life (QL) and psychological distress of patients participating in a Phase I trial of the novel therapeutic reovirus (Reo...

    Authors: Linda E Carlson, Barry D Bultz and Donald G Morris

    Citation: Health and Quality of Life Outcomes 2005 3:7

    Content type: Research

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  22. Longitudinal assessments of quality of life are needed to measure changes over the course of a disease and treatment. Computer versions of quality of life instruments have increased the feasibility of obtainin...

    Authors: Karen M Gil, Heidi E Frasure, Michael P Hopkins, Eric L Jenison and Vivian E von Gruenigen

    Citation: Health and Quality of Life Outcomes 2005 3:6

    Content type: Research

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  23. The objective of this study was to develop simultaneously a new questionnaire, the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ), in American English and American Spanish in order to elucidate the impa...

    Authors: Jennifer Kim, Dorothy L Keininger, Sara Becker and Joseph A Crawley

    Citation: Health and Quality of Life Outcomes 2005 3:5

    Content type: Research

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  24. The correlation between treatment satisfaction and demographic characteristics, symptoms, or health-related quality of life (HRQL) in patients with gastroesophageal reflux disease (GERD) is unknown. The object...

    Authors: Alessio Degl' Innocenti, Gordon H Guyatt, Ingela Wiklund, Diane Heels-Ansdell, David Armstrong, Carlo A Fallone, Lisa Tanser, Sander Veldhuyzen van Zanten, Samer El-Dika, Naoki Chiba, Alan N Barkun, Peggy Austin and Holger J Schünemann

    Citation: Health and Quality of Life Outcomes 2005 3:4

    Content type: Research

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  25. The objectives of this report are to review the assessment of patient-focused outcomes in pediatric orthopedic surgery, to describe a framework for identifying appropriate sets of measures, and to illustrate a...

    Authors: William Furlong, Ronald D Barr, David Feeny and Suzanne Yandow

    Citation: Health and Quality of Life Outcomes 2005 3:3

    Content type: Review

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  26. Diabetes mellitus (DM) is an important public health concern, the impact of which is increased by the high prevalence of co-existing chronic medical conditions among subjects with DM. The aims of this study we...

    Authors: Hwee-Lin Wee, Yin-Bun Cheung, Shu-Chuen Li, Kok-Yong Fong and Julian Thumboo

    Citation: Health and Quality of Life Outcomes 2005 3:2

    Content type: Research

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  27. Little is understood about the conceptual relationship of depression and quality of life (QoL). Judgments concerning both, implicitly or explicitly, involve a time perspective. The aim of this study was to tes...

    Authors: Margaret Moore, Stefan Höfer, Hannah McGee and Lena Ring

    Citation: Health and Quality of Life Outcomes 2005 3:1

    Content type: Research

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  28. Health-Related Quality of Life (HRQoL) measures are becoming increasingly used in clinical trials as primary outcome measures. Investigators are now asking statisticians for advice on how to analyse studies th...

    Authors: Stephen J Walters and Michael J Campbell

    Citation: Health and Quality of Life Outcomes 2004 2:70

    Content type: Research

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  29. Due to differences in current socio-economical situation and historically shaped values, different societies have their own concepts of high-quality life. This diversity of concepts interferes with quality of ...

    Authors: Marika Tammaru, Judit Strömpl, Kadri Maimets and Ele Hanson

    Citation: Health and Quality of Life Outcomes 2004 2:69

    Content type: Research

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  30. Various scales have been used to assess palliative outcomes. But measurement can still be problematic and core components of measures have not been identified. This study aimed to determine the relationships b...

    Authors: Irene J Higginson and Nora Donaldson

    Citation: Health and Quality of Life Outcomes 2004 2:68

    Content type: Research

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  31. The Menopause Rating Scale is a health-related Quality of Life scale developed in the early 1990s and step-by-step validated since then. No methodologically detailed work on the utility of the scale to assess ...

    Authors: Lothar AJ Heinemann, Thai DoMinh, Frank Strelow, Silvia Gerbsch, Jörg Schnitker and Hermann PG Schneider

    Citation: Health and Quality of Life Outcomes 2004 2:67

    Content type: Research

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  32. It is known that there is an increase in the prevalence of allergy and that allergic diseases have a negative impact on individuals' health-related quality of life (HRQL). However, research in this field is ma...

    Authors: Birgitta Marklund, Staffan Ahlstedt and Gun Nordström

    Citation: Health and Quality of Life Outcomes 2004 2:65

    Content type: Research

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  33. Clinicians require brief outcome measures in their busy daily practice to document global client outcomes. Based on the UK Therapy Outcome Measure, the Australian Therapy Outcome Measures were designed to capt...

    Authors: Carolyn A Unsworth, Stephen J Duckett, Dianne Duncombe, Alison Perry, Jemma Skeat and Nicholas Taylor

    Citation: Health and Quality of Life Outcomes 2004 2:64

    Content type: Research

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  34. The 12-item General Health Questionnaire (GHQ-12) is widely used as a unidimensional instrument, but factor analyses tended to suggest that it contains two or three factors. Not much is known about the usefuln...

    Authors: Fei Gao, Nan Luo, Julian Thumboo, Calvin Fones, Shu-Chuen Li and Yin-Bun Cheung

    Citation: Health and Quality of Life Outcomes 2004 2:63

    Content type: Research

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  35. Multiple instruments exist to measure dementia behaviors, but the nursing staff perspective on those behaviors and their level of burden has not been well measured. The goal of this study was to examine the ps...

    Authors: Leah Kleinman, Lori Frank, Gabrielle Ciesla, Marcia Rupnow and Henry Brodaty

    Citation: Health and Quality of Life Outcomes 2004 2:62

    Content type: Research

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  36. This study evaluated the psychometric properties of the ADDQoL-Teen, an innovative individualised, patient-centred questionnaire measuring perceived impact of diabetes mellitus on quality of life (QoL) of teen...

    Authors: Carolyn V McMillan, Rachel J Honeyford, Jessica Datta, Nicola JH Madge and Clare Bradley

    Citation: Health and Quality of Life Outcomes 2004 2:61

    Content type: Research

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  37. The typical symptoms of coronary heart disease (CHD), chest pain and breathlessness, are well-known. They are considered quite dramatic, and can thus be fairly reliably mapped by a survey. However, people migh...

    Authors: Markku PT Sumanen, Sakari B Suominen, Markku J Koskenvuo, Lauri H Sillanmäki and Kari J Mattila

    Citation: Health and Quality of Life Outcomes 2004 2:60

    Content type: Research

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  38. Modeling latent variables such as physical disability is challenging since its measurement is performed through proxies. This poses significant methodological challenges. The objective of this article is to pr...

    Authors: Ricardo Pietrobon, Marcus Taylor, Ulrich Guller, Laurence D Higgins, Danny O Jacobs and Timothy Carey

    Citation: Health and Quality of Life Outcomes 2004 2:59

    Content type: Research

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  39. With effective treatment strategies, the focus of tuberculosis (TB) management has shifted from the prevention of mortality to the avoidance of morbidity. As such, there should be an increased focus on quality...

    Authors: Carlo A Marra, Fawziah Marra, Victoria C Cox, Anita Palepu and J Mark Fitzgerald

    Citation: Health and Quality of Life Outcomes 2004 2:58

    Content type: Research

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  40. Traditional methods of measuring oral health mainly use clinical dental indices and have been complemented by oral health related quality of life (OHRQoL) measures. Most OHRQoL studies have been on adults and ...

    Authors: Sudaduang Gherunpong, Georgios Tsakos and Aubrey Sheiham

    Citation: Health and Quality of Life Outcomes 2004 2:57

    Content type: Research

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  41. Few studies have focused on the association between the sociodemographic characteristics of a patient with the change in health-related quality of life (HRQOL) following invasive coronary procedures, and the r...

    Authors: Marijke Veenstra, Kjell I Pettersen, Arnfinn Rollag and Knut Stavem

    Citation: Health and Quality of Life Outcomes 2004 2:56

    Content type: Research

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  42. The PedsQL™ Measurement Model was designed to measure health-related quality of life (HRQOL) in children and adolescents. The PedsQL™ 4.0 Generic Core Scales were developed to be integrated with the PedsQL™ Di...

    Authors: James W Varni, Sandra A Sherman, Tasha M Burwinkle, Paige E Dickinson and Pamela Dixon

    Citation: Health and Quality of Life Outcomes 2004 2:55

    Content type: Research

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