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  1. Several questionnaires have been used to measure health related quality of life (HRQoL) in patients with psoriasis, few have been adapted for use in Spain; none of them was developed specifically for the Spani...

    Authors: Esteban Dauden, Enrique Herrera, Lluis Puig, José Luis Sánchez-Carazo, Jaime Toribio, Ma Teresa Caloto, Gonzalo Nocea, Montse Roset and Nuria Lara
    Citation: Health and Quality of Life Outcomes 2012 10:56
  2. The mini-Mental Adjustment to Cancer Scale (mini-MAC) is a well-recognised, popular measure of coping in psycho-oncology and assesses five cancer-specific coping strategies. It has been suggested that these fi...

    Authors: Alison Zucca, Sylvie D Lambert, Allison W Boyes and Julie F Pallant
    Citation: Health and Quality of Life Outcomes 2012 10:55
  3. The aim of this study was to translate the EORTC quality of life questionnaire for brain cancer, the QLQ-BN20, into Persian, and to evaluate its psychometric properties when used among brain cancer patients in...

    Authors: Alireza Khoshnevisan, Mir Saeed Yekaninejad, Shahab Kamali Ardakani, Amir H Pakpour, Azam Mardani and Neil K Aaronson
    Citation: Health and Quality of Life Outcomes 2012 10:54
  4. Among people living with HIV (PLHIV) on antiretroviral therapy (ART), it is important to determine how quality of life (QOL) may be improved and HIV-related stigma can be lessened over time. This study assesse...

    Authors: Vu Van Tam, Mattias Larsson, Anastasia Pharris, Björn Diedrichs, Hoa Phuong Nguyen, Chuc Thi Kim Nguyen, Phuc Dang Ho, Gaetano Marrone and Anna Thorson
    Citation: Health and Quality of Life Outcomes 2012 10:53
  5. The purpose of the study was to evaluate and compare the HRQOL of paediatric cancer in comparison to the healthy children across age groups, using PedsQLTM 4.0 Generic Core Scales and the PedsQLâ„¢ Cancer Module.

    Authors: Zainab Chaudhry and Salma Siddiqui
    Citation: Health and Quality of Life Outcomes 2012 10:52
  6. Fatigue is a common symptom in Stroke. Several self-report scales are available to measure this debilitating symptom but concern has been expressed about their construct validity.

    Authors: Roger J Mills, Julie F Pallant, Maria Koufali, Anil Sharma, Suzanne Day, Alan Tennant and Carolyn A Young
    Citation: Health and Quality of Life Outcomes 2012 10:51
  7. The purpose was, first, to evaluate changes in health-related quality of life (HRQL) in a cohort of very low birth weight (VLBW; <1500 g.) or very preterm (< 32 weeks of gestation) children between ages 14 and...

    Authors: Gijsbert Verrips, Leonoor Brouwer, Ton Vogels, Erik Taal, Constance Drossaert, David Feeny, Marieke Verheijden and Pauline Verloove-Vanhorick
    Citation: Health and Quality of Life Outcomes 2012 10:49
  8. Numerous primary care innovations emphasize patient-centered processes of care. Within the context of these innovations, greater understanding is needed of the relationship between improvements in clinical end...

    Authors: Abhinav Khanna, Amber L Bush, J Michael Swint, Melissa Fleschler Peskin, Richard L Street Jr and Aanand D Naik
    Citation: Health and Quality of Life Outcomes 2012 10:48
  9. The purpose of this study was to expand the understanding of the burden of illness experienced by adults with Attention Deficit-Hyperactivity Disorder (ADHD) living in different countries and treated through d...

    Authors: Meryl Brod, Betsy Pohlman, Robert Lasser and Paul Hodgkins
    Citation: Health and Quality of Life Outcomes 2012 10:47
  10. To assess health- related quality of life (HRQOL) with SF-12 and SF-36 and compare their abilities to predict mortality in chronic dialysis patients, after adjusting for traditional risk factors.

    Authors: Tone Brit Hortemo Østhus, Valjbona Tiric Preljevic, Leiv Sandvik, Torbjørn Leivestad, Inger Hilde Nordhus, Toril Dammen and Ingrid Os
    Citation: Health and Quality of Life Outcomes 2012 10:46
  11. Traditional outcome measures in peripheral arterial disease (PAD) provide insufficient information regarding patient benefit. It has therefore been suggested to add patient-reported outcome measures. The main ...

    Authors: Joakim Nordanstig, Jan Karlsson, Monica Pettersson and Christine Wann-Hansson
    Citation: Health and Quality of Life Outcomes 2012 10:45
  12. Arrhythmias can appear with a variety of symptoms, all from vague to pronounced and handicapping symptoms. Therefore, patient-reported outcomes (PROs) concerning symptom burden are important to assess and take...

    Authors: Ulla Walfridsson, Kristofer Arestedt and Anna Stromberg
    Citation: Health and Quality of Life Outcomes 2012 10:44
  13. Duchenne muscular dystrophy (DMD) is characterized by muscle damage and progressive loss of muscle function in male children. DMD is one of the most devastating genetically linked neuromuscular diseases for wh...

    Authors: Roxanna M Bendixen, Claudia Senesac, Donovan J Lott and Krista Vandenborne
    Citation: Health and Quality of Life Outcomes 2012 10:43
  14. Oral and orofacial problems may cause a profound impact on children’s oral health-related quality of life (OHRQoL) because of symptoms associated with these conditions that may influence the physical, psycholo...

    Authors: Cristiane B Bendo, Saul M Paiva, Claudia M Viegas, Miriam P Vale and James W Varni
    Citation: Health and Quality of Life Outcomes 2012 10:42
  15. The Changes in Outlook Questionnaire (CiOQ) is a self-report instrument designed to measure both positive and negative changes following the experience of severely stressful events. Previous research has focus...

    Authors: Yinyin Zang, Nigel C Hunt, Tom Cox and Stephen Joseph
    Citation: Health and Quality of Life Outcomes 2012 10:41
  16. A linguistic validation of the Self-Assessment Goal Achievement (SAGA) questionnaire was conducted for 12 European languages, documenting that each translation adequately captures the concepts of the original ...

    Authors: Elisabeth Piault, Sameepa Doshi, Barbara A Brandt, Çolpan Angün, Christopher J Evans, Agneta Bergqvist and Jeffrey Trocio
    Citation: Health and Quality of Life Outcomes 2012 10:40
  17. A valid assessment of spirituality and religiousness is necessary for clinical and research purposes. We developed and assessed the validity of a French-language version of the World Health Organization Qualit...

    Authors: Olfa Mandhouj, Jean-François Etter, Delphine Courvoisier and Henri-Jean Aubin
    Citation: Health and Quality of Life Outcomes 2012 10:39
  18. Multi attribute utility (MAU) instruments are used to include the health related quality of life (HRQoL) in economic evaluations of health programs. Comparative studies suggest different MAU instruments measur...

    Authors: Jeffrey RJ Richardson, Stuart J Peacock, Graeme Hawthorne, Angelo Iezzi, Gerald Elsworth and Neil A Day
    Citation: Health and Quality of Life Outcomes 2012 10:38
  19. The Psoriasis Disability Index (PDI) is a widely used instrument to measure the impact of psoriasis on patients. There has not been psychometric evaluation of the Chinese version of PDI. The aim of this study ...

    Authors: Zehui He, Chuanjian Lu, Aihua Ou, Jiqian Fang, Dongmei Wang, Jingwen Deng, Zhongzhao Zhang and Jingjie Yu
    Citation: Health and Quality of Life Outcomes 2012 10:37
  20. Sulfur mustard (SM) has been used as a chemical warfare agent since the early twentieth century. Despite the large number of studies that have investigated SM induced ocular injuries, few of those studies have...

    Authors: Gholamhosein Ghaedi, Hassan Ghasemi, Batool Mousavi, Mohammad Reza Soroush, Parvin Rahnama, Farhad Jafari, Siamak Afshin-Majd, Maryam Sadeghi Naeeni and Mohammad Mehdi Naghizadeh
    Citation: Health and Quality of Life Outcomes 2012 10:36
  21. This study was undertaken to estimate utility values for alternative treatment intervals for long acting antipsychotic intramuscular injections for the treatment of schizophrenia.

    Authors: Richard H Osborne, Andrew Dalton, Judy Hertel, Rudolf Schrover and Dell Kingsford Smith
    Citation: Health and Quality of Life Outcomes 2012 10:35
  22. Patient-reported outcome measures are increasingly being used to compare providers. We studied whether non-response rates to post-operative questionnaires are associated with patients' characteristics and orga...

    Authors: Andrew Hutchings, Jenny Neuburger, Kirstin Grosse Frie, Nick Black and Jan van der Meulen
    Citation: Health and Quality of Life Outcomes 2012 10:34
  23. Myocardial infarction is a major cause of death and morbidity in many countries, including China. The aim of this study was to analyse a Mandarin Chinese translation of the Cardiac Depression Scale for a hiera...

    Authors: Roger Watson, Wenru Wang, David L Hare, Chantal F Ski and David R Thompson
    Citation: Health and Quality of Life Outcomes 2012 10:33
  24. Existing evidence for validity of the visual analog scale of the EQ-5D-3L questionnaire (EQ-VAS) is weak in Chinese-speaking respondents in Singapore. We therefore investigated the validity of the Chinese (Sin...

    Authors: Nan Luo, Sheng-Qun Cang, Hui-Min Joanne Quah, Choon-How How and Ee Guan Tay
    Citation: Health and Quality of Life Outcomes 2012 10:32
  25. The concept of quality of life relates to the perceptions of individuals about their mental and physical health as well as non-health related areas. The evaluation of quality of life in the context of substanc...

    Authors: Carlos Zubaran, Jonathan Emerson, Rishi Sud, Elham Zolfaghari and Katia Foresti
    Citation: Health and Quality of Life Outcomes 2012 10:31
  26. Although osteoarthritis (OA) often affects older persons, it has a profound effect on individuals actively employed. Despite reports of reduced productivity among workers with OA, data are limited regarding th...

    Authors: Marco daCosta DiBonaventura, Shaloo Gupta, Margaret McDonald, Alesia Sadosky, Dan Pettitt and Stuart Silverman
    Citation: Health and Quality of Life Outcomes 2012 10:30
  27. Studies that compare health-related quality of life (HRQOL) and other patient-reported outcomes in different populations rest on the assumption that the measure has equivalent psychometric properties across gr...

    Authors: Lisa M Lix, Beliz Acan Osman, Jonathan D Adachi, Tanveer Towheed, Wilma Hopman, K Shawn Davison and William D Leslie
    Citation: Health and Quality of Life Outcomes 2012 10:29
  28. Many patients with chronic illness are limited in their physical activities. This systematic review evaluates the content and format of patient-reported outcome (PRO) questionnaires that measure physical activ...

    Authors: Kate Williams, Anja Frei, Anders Vetsch, Fabienne Dobbels, Milo A Puhan and Katja Rüdell
    Citation: Health and Quality of Life Outcomes 2012 10:28
  29. Item response theory (IRT) is extensively used to develop adaptive instruments of health-related quality of life (HRQoL). However, each IRT model has its own function to estimate item and category parameters, ...

    Authors: Peyman Jafari, Zahra Bagheri, Seyyed Mohamad Taghi Ayatollahi and Zahra Soltani
    Citation: Health and Quality of Life Outcomes 2012 10:27
  30. Irritable bowel syndrome (IBS) and inflammatory bowel disease (IBD) are chronic conditions affecting millions of individuals in the United States. The symptoms are well-documented and can be debilitating. How ...

    Authors: Jennifer B McCormick, Rachel R Hammer, Ruth M Farrell, Gail Geller, Katherine M James, Edward V Loftus Jr, Mary Beth Mercer, Jon C Tilburt and Richard R Sharp
    Citation: Health and Quality of Life Outcomes 2012 10:25
  31. The Achilles tendon Total Rupture Score was developed by a research group in 2007 in response to the need for a patient reported outcome measure for this patient population. Beyond this original development pa...

    Authors: Rebecca S Kearney, Juul Achten, Sarah E Lamb, Nicholas Parsons and Matthew L Costa
    Citation: Health and Quality of Life Outcomes 2012 10:24
  32. Unbiased and frank discussion of study limitations by authors represents a crucial part of the scientific discourse and progress. In today's culture of publishing many authors or scientific teams probably bala...

    Authors: Milo A Puhan, Elie A Akl, Dianne Bryant, Feng Xie, Giovanni Apolone and Gerben ter Riet
    Citation: Health and Quality of Life Outcomes 2012 10:23
  33. Pediatric self-report should be considered the standard for measuring patient reported outcomes (PRO) among children. However, circumstances exist when the child is too young, cognitively impaired, or too ill ...

    Authors: Debra E Irwin, Heather E Gross, Brian D Stucky, David Thissen, Esi Morgan DeWitt, Jin Shei Lai, Dagmar Amtmann, Leyla Khastou, James W Varni and Darren A DeWalt
    Citation: Health and Quality of Life Outcomes 2012 10:22
  34. The adult social care outcomes toolkit (ASCOT) includes a preference-weighted measure of social care-related quality of life for use in economic evaluations. ASCOT has eight attributes: personal cleanliness an...

    Authors: Juliette N Malley, Ann-Marie Towers, Ann P Netten, John E Brazier, Julien E Forder and Terry Flynn
    Citation: Health and Quality of Life Outcomes 2012 10:21
  35. Health utility combines health related quality of life and mortality to produce a generic outcome measure reflecting both morbidity and mortality. It has not been widely used as an outcome measure in evaluatio...

    Authors: Steve W Goodacre, Richard W Wilson, Mike Bradburn, Martina Santarelli and Jon P Nicholl
    Citation: Health and Quality of Life Outcomes 2012 10:20
  36. International guidelines on type 1 diabetes advocate routine screening of health-related quality of life (HRQOL). DISABKIDS questionnaires are the first instruments developed across cultures and nations to pro...

    Authors: Dag Helge Frøisland, Trond Markestad, Tore Wentzel-Larsen, Torild Skrivarhaug, Knut Dahl-Jørgensen and Marit Graue
    Citation: Health and Quality of Life Outcomes 2012 10:19
  37. Shift workers may be at risk of different diseases. In order to assess cardiometabolic risk in shift workers, a cross-sectional study was performed among active workers.

    Authors: György Jermendy, Judit Nádas, Ilona Hegyi, István Vasas and Tibor Hidvégi
    Citation: Health and Quality of Life Outcomes 2012 10:18
  38. Measurement of treatment satisfaction in diabetes is important as it has been shown to be associated with positive outcomes, reduced disease cost and better health. The aim of this study was to assess the cons...

    Authors: Nick Kontodimopoulos, Eleni Arvanitaki, Vassilis H Aletras and Dimitris Niakas
    Citation: Health and Quality of Life Outcomes 2012 10:17
  39. The Berne Convention and the national laws on intellectual property fully apply to PRO instruments. The identification of and access to an original PRO instrument is often associated with copyright ownership. ...

    Authors: Caroline Anfray, Marie-Pierre Emery, Katrin Conway and Catherine Acquadro
    Citation: Health and Quality of Life Outcomes 2012 10:16
  40. The study attempted to explore the quality of life (QoL) of Chinese caregivers with mentally ill relatives. It also aimed to examine the differential roles of caregiving burdens, caregiver characteristics, and...

    Authors: Daniel Fu Keung Wong, Angus Yuk Kit Lam, Sau Kam Chan and Shuk Fan Chan
    Citation: Health and Quality of Life Outcomes 2012 10:15
  41. Adolescents and young adult (AYA) cancer survivors may have unique physical, psychological and social needs due to their cancer occurring at a critical phase of development. The aim of this study was to develo...

    Authors: Tara Clinton-McHarg, Mariko Carey, Rob Sanson-Fisher, Catherine D'Este and Anthony Shakeshaft
    Citation: Health and Quality of Life Outcomes 2012 10:13
  42. Quality of life (QOL) is an important measure in the management of Irritable Bowel Syndrome (IBS). Controversy exists in the findings of studies evaluating QOL in IBS subtypes, and little is known about this i...

    Authors: Raika Jamali, Arsia Jamali, Maryam Poorrahnama, Abdollah Omidi, Bardia Jamali, Neda Moslemi, Reza Ansari, Shahab Dolatshahi and Naser Ebrahimi Daryani
    Citation: Health and Quality of Life Outcomes 2012 10:12
  43. There are a significant number of Turkish speaking immigrants living in London. Their special health issues including women's health, mental health, and alcohol and smoking habits has been assessed. The aim of...

    Authors: Kenan Topal, Erhan Eser, Ismail Sanberk, Elizabeth Bayliss and Esra Saatci
    Citation: Health and Quality of Life Outcomes 2012 10:11
  44. Discrepancy between self-reports and parent-proxy reports of adolescent health-related quality of life (HRQoL) has been repeatedly acknowledged in the literature as the proxy problem. However, little is known ...

    Authors: Jane NT Sattoe, AnneLoes van Staa and Henriëtte A Moll
    Citation: Health and Quality of Life Outcomes 2012 10:10
  45. The 30-item Self-Management Ability Scale (SMAS) measures self-management abilities (SMA). Objectives of this study were to (1) validate the SMAS among older people shortly after hospitalisation and (2) shorte...

    Authors: Jane M Cramm, Mathilde MH Strating, Paul L de Vreede, Nardi Steverink and Anna P Nieboer
    Citation: Health and Quality of Life Outcomes 2012 10:9

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