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  1. The Pictorial Representation of Illness and Self Measure (PRISM) has been introduced as a visual measure of suffering. We explored the validity of a revised version, the PRISM-RII, in diabetes patients as part...

    Authors: Sandor Klis, Ad JJM Vingerhoets, Maartje de Wit, Noortje Zandbelt and Frank J Snoek

    Citation: Health and Quality of Life Outcomes 2008 6:104

    Content type: Research

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  2. Glucocorticoids are important in the treatment of childhood acute lymphoblastic leukaemia (ALL). However, cyclic administration of high dose glucocorticoids may cause rapid and substantial changes in quality o...

    Authors: Machteld AG de Vries, Raphaële RL van Litsenburg, Jaap Huisman, Martha A Grootenhuis, A Birgitta Versluys, Gert Jan L Kaspers and Reinoud JBJ Gemke

    Citation: Health and Quality of Life Outcomes 2008 6:103

    Content type: Research

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  3. The objective of this study was to validate the Impact of a Child with Congenital Anomalies on Parents (ICCAP) questionnaire. ICCAP was newly designed to assess the impact of giving birth to a child with sever...

    Authors: Petra Mazer, Saskia J Gischler, Hans M Koot, Dick Tibboel, Monique van Dijk and Hugo J Duivenvoorden

    Citation: Health and Quality of Life Outcomes 2008 6:102

    Content type: Research

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  4. Oral health-related quality of life can be assessed positively, by measuring satisfaction with mouth, or negatively, by measuring oral impact on the performance of daily activities. The study objective was to ...

    Authors: J Montero, M Bravo and A Albaladejo

    Citation: Health and Quality of Life Outcomes 2008 6:101

    Content type: Research

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  5. Fatigue is a common disabling symptom of multiple sclerosis (MS) and has a significantly negative impact on quality of life. Persons with MS enrolled in the North American Research Committee on Multiple Sclero...

    Authors: Olympia Hadjimichael, Timothy Vollmer and MerriKay Oleen-Burkey

    Citation: Health and Quality of Life Outcomes 2008 6:100

    Content type: Research

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  6. A number of noninvasive alternatives to hysterectomy have become available as treatments for uterine fibroids. These alternative therapies, however, may not relieve all symptoms. Consequently, the need for pat...

    Authors: Gale Harding, Karin S Coyne, Christine L Thompson and James B Spies

    Citation: Health and Quality of Life Outcomes 2008 6:99

    Content type: Research

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  7. Many factors are proposed to be associated with health-related quality of life. Knowledge of health factors associated to development of a good health-related quality of life could be of use in clinical practi...

    Authors: Susann Arvidsson, Barbro Arvidsson, Bengt Fridlund and Stefan Bergman

    Citation: Health and Quality of Life Outcomes 2008 6:98

    Content type: Research

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  8. The objective of the present study was to provide a complete and detailed report of technical and logistical feasibility problems with the implementation of routine computerized HRQoL measurement at a busy out...

    Authors: Jolie J Gutteling, Jan JV Busschbach, Robert A de Man and Anne-Sophie E Darlington

    Citation: Health and Quality of Life Outcomes 2008 6:97

    Content type: Research

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  9. Most studies on Health-related Quality of Life (HRQOL) in children with cancer were conducted in developed countries. The aims of this study were to assess the HRQOL in childhood acute lymphoblastic leukemia (...

    Authors: Mei N Sitaresmi, Saskia Mostert, Chad M Gundy, Sutaryo and Anjo JP Veerman

    Citation: Health and Quality of Life Outcomes 2008 6:96

    Content type: Research

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  10. This study characterized the degree of change in health-related quality of life (HRQL) associated with change in visual acuity among patients with diabetic retinopathy.

    Authors: Louis S Matza, Matthew D Rousculp, Karen Malley, Kristina S Boye and Alan Oglesby

    Citation: Health and Quality of Life Outcomes 2008 6:95

    Content type: Research

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  11. Alzheimer's disease presents a social and public health problem affecting millions of Italians. Those affected receive home care from caregivers, subjected to risk of stress.

    Authors: Maria Ferrara, Elisa Langiano, Tommasina Di Brango, Luigi Di Cioccio, Claudia Bauco and Elisabetta De Vito

    Citation: Health and Quality of Life Outcomes 2008 6:93

    Content type: Research

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  12. Participation restriction is defined as "problems an individual may experience in involvement in life situations" and refers to the personal and societal consequences of health conditions. There is a growing i...

    Authors: Ross Wilkie, Elaine Thomas, Sara Mottram, George Peat and Peter Croft

    Citation: Health and Quality of Life Outcomes 2008 6:92

    Content type: Research

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  13. Quality of life of parents of chronically ill children has become increasingly important as the mortality rates associated with such illnesses have decreased and survival rates have increased.

    Authors: Mostafa A Arafa, Salah R Zaher, Amira A El-Dowaty and Dalia E Moneeb

    Citation: Health and Quality of Life Outcomes 2008 6:91

    Content type: Research

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  14. The aims of the study were (i) to examine global quality of life (GQOL) before fracture in patients with low-energy wrist or hip fracture compared with an age- and sex-matched control group, and (ii) to identi...

    Authors: Gudrun Rohde, Glenn Haugeberg, Anne Marit Mengshoel, Torbjorn Moum and Astrid K Wahl

    Citation: Health and Quality of Life Outcomes 2008 6:90

    Content type: Research

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  15. The field of health-related quality of life (HRQOL) could benefit from a broadening of perspectives to include recent advancements in research on adaptation, positive psychology, and genetics. These advances s...

    Authors: Mirjam AG Sprangers and Carolyn E Schwartz

    Citation: Health and Quality of Life Outcomes 2008 6:89

    Content type: Review

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  16. The objective of this observational study was to assess the status of glycemic control and associated patient-reported outcomes in ambulatory Hungarian patients with type 2 diabetes mellitus (T2DM) who were pr...

    Authors: György Jermendy, Diana Erdesz, Laszlo Nagy, Don Yin, Hemant Phatak, Sudeep Karve, Samuel Engel and Rajesh Balkrishnan

    Citation: Health and Quality of Life Outcomes 2008 6:88

    Content type: Research

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  17. Few diabetes HRQOL instruments are available in Chinese language. We tested psychometric properties of a Diabetes Quality of Life (DQOL) in Chinese language for diabetes patients in Taiwan and estimated its mi...

    Authors: I-Chan Huang, Jung-Hua Liu, Albert W Wu, Ming-Yen Wu, Walter Leite and Chyng-Chuang Hwang

    Citation: Health and Quality of Life Outcomes 2008 6:87

    Content type: Research

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  18. The Ibadan Knee/Hip Osteoarthritis Outcome Measure (IKHOAM) was developed for measuring end results of care in patients with knee or hip OA in Nigeria. The purpose of this study was to validate a Hausa transla...

    Authors: Adesola C Odole and Aderonke O Akinpelu

    Citation: Health and Quality of Life Outcomes 2008 6:86

    Content type: Research

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  19. Sense of coherence (SOC) is a strong determinant of positive health and successful coping. For older people living in the community or staying in a hospital, SOC has been shown to be associated with health-rel...

    Authors: Jorunn Drageset, Harald A Nygaard, Geir Egil Eide, Margareth Bondevik, Monica W Nortvedt and Gerd Karin Natvig

    Citation: Health and Quality of Life Outcomes 2008 6:85

    Content type: Research

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  20. Existing reports of utility values for metastatic non-small cell lung cancer (NSCLC) vary quite widely and are not all suitable for use in submissions in the UK. The aim of this study was to elicit UK societal...

    Authors: Beenish Nafees, Megan Stafford, Sonia Gavriel, Shkun Bhalla and Jessamy Watkins

    Citation: Health and Quality of Life Outcomes 2008 6:84

    Content type: Research

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  21. A response to Norman GR 'Discrimination and reliability: equal partners?' and Wyrwich KW 'Understanding the role of discriminative instruments in HRQoL research: can Ferguson's Delta help?'

    Authors: Matthew Hankins

    Citation: Health and Quality of Life Outcomes 2008 6:83

    Content type: Letter to the Editor

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  22. To develop the content for two new patient reported outcome (PRO) measures to: a) assess the severity of symptoms; and b) the impact of facial skin oiliness on emotional wellbeing using qualitative data from f...

    Authors: Robert Arbuckle, Mark J Atkinson, Marci Clark, Linda Abetz, Jan Lohs, Ilka Kuhagen, Jane Harness, Zoe Draelos, Diane Thiboutot, Ulrike Blume-Peytavi and Kati Copley-Merriman

    Citation: Health and Quality of Life Outcomes 2008 6:80

    Content type: Research

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  23. This study provided essential information, about Turkish patients with type I and type II diabetes, concerning: levels of anxiety, coping strategies used, and relationships that exist among anxiety, coping str...

    Authors: Tarik Tuncay, Ilgen Musabak, Deniz Engin Gok and Mustafa Kutlu

    Citation: Health and Quality of Life Outcomes 2008 6:79

    Content type: Research

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  24. In the absence of a French health-related quality of life (QOL) instrument for renal transplant recipients (RTR), we developed a self-administered questionnaire: the ReTransQol (RTQ).

    Authors: Stéphanie Gentile, Elisabeth Jouve, Bertrand Dussol, Valerie Moal, Yvon Berland and Roland Sambuc

    Citation: Health and Quality of Life Outcomes 2008 6:78

    Content type: Review

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  25. We investigated the relationship between Body Mass Index (BMI) and health-related quality of life (HRQOL) indicated by baseline health status in elementary school children.

    Authors: Lei Zhang, Peter J Fos, William D Johnson, Vafa Kamali, Reagan G Cox, Miguel A Zuniga and Theresa Kittle

    Citation: Health and Quality of Life Outcomes 2008 6:77

    Content type: Research

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  26. Since the advent of combination antiretroviral therapy, in developed countries HIV increasingly is perceived as a long-term illness. Individuals may experience health-related consequences of HIV and its associ...

    Authors: Kelly K O'Brien, Ahmed M Bayoumi, Carol Strike, Nancy L Young and Aileen M Davis

    Citation: Health and Quality of Life Outcomes 2008 6:76

    Content type: Research

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  27. To evaluate the impact of adalimumab on health-related quality of life (HRQOL) for patients with moderate to severe plaque psoriasis.

    Authors: Dennis A Revicki, Alan Menter, Steven Feldman, Miriam Kimel, Neesha Harnam and Mary K Willian

    Citation: Health and Quality of Life Outcomes 2008 6:75

    Content type: Research

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  28. This study is part of a cross-sectional evaluation of complementary medicine providers in primary care in Switzerland. It compares patient satisfaction with anthroposophic medicine (AM) and conventional medici...

    Authors: Barbara M Esch, Florica Marian, André Busato and Peter Heusser

    Citation: Health and Quality of Life Outcomes 2008 6:74

    Content type: Research

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  29. To elicit societal and patient utilities associated with diabetic symptomatic non-severe hypoglycaemia for three health states: 1) rare (quarterly), 2) intermittent (monthly), 3) and frequent (weekly) hypoglyc...

    Authors: Adrian R Levy, Torsten LU Christensen and Jeffrey A Johnson

    Citation: Health and Quality of Life Outcomes 2008 6:73

    Content type: Research

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  30. The objective of this study was to compare the effect of incontinence surgery and pelvic floor training on quality of life (QOL), anxiety and depression in patients with stress urinary incontinence (SUI).

    Authors: Petra C Innerkofler, Verena Guenther, Peter Rehder, Martin Kopp, Dominic P Nguyen-Van-Tam, Johannes M Giesinger and Bernhard Holzner

    Citation: Health and Quality of Life Outcomes 2008 6:72

    Content type: Research

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  31. Data are scarce on the comparison of EQ-5D index scores using the UK, US, and Japan preference weights in other populations. This study was aimed to examine the differences and agreements between these three w...

    Authors: Phantipa Sakthong, Rungpetch Charoenvisuthiwongs and Rossamalin Shabunthom

    Citation: Health and Quality of Life Outcomes 2008 6:71

    Content type: Research

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  32. The West-Haven Multidimensional Pain Inventory (MPI) can be used to describe behavioural and psychosocial consequences of long-term pain but little is known about how MPI items and MPI subgroups relate to goal...

    Authors: Annika J Silvemark, Håkan Källmén, Kamilla Portala and Carl Molander

    Citation: Health and Quality of Life Outcomes 2008 6:70

    Content type: Research

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  33. Ulcerative colitis disease activity is determined by measuring symptoms and signs. Our aim was to determine which symptom domains are frequent and responsive to change in the evaluation of disease activity, wh...

    Authors: Joel C Joyce, Akbar K Waljee, Tahira Khan, Patricia A Wren, Maneesh Dave, Ellen M Zimmermann, Sijian Wang, Ji Zhu and Peter DR Higgins

    Citation: Health and Quality of Life Outcomes 2008 6:69

    Content type: Research

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  34. Oral health-related quality of life (OHRQoL) measures are being increasingly used to introduce dimensions excluded by normative measures. Consequently, there is a need for an index which evaluates children's O...

    Authors: Rodolfo AL Castro, Maria IS Cortes, Anna T Leão, Margareth C Portela, Ivete PR Souza, Georgios Tsakos, Wagner Marcenes and Aubrey Sheiham

    Citation: Health and Quality of Life Outcomes 2008 6:68

    Content type: Research

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  35. Treatment of multiple sclerosis patients with glatiramer acetate has been demonstrated a beneficial effect on disease activity. The objective of this prospective naturalistic study was to evaluate the impact o...

    Authors: Tjalf Ziemssen, Josef Hoffman, Rainer Apfel and Simone Kern

    Citation: Health and Quality of Life Outcomes 2008 6:67

    Content type: Research

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  36. Most studies that have identified variables associated with the health-related quality of life (HRQL) of patients with colorectal cancer have been cross-sectional or included patients with other diagnoses. The...

    Authors: Kathleen J Yost, Elizabeth A Hahn, Alan M Zaslavsky, John Z Ayanian and Dee W West

    Citation: Health and Quality of Life Outcomes 2008 6:66

    Content type: Research

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  37. Pulmonary Hypertension is a severe and incurable disease with poor prognosis. A suite of new disease-specific measures – the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) – was recently developed f...

    Authors: Stephen P McKenna, Julie Ratcliffe, David M Meads and John E Brazier

    Citation: Health and Quality of Life Outcomes 2008 6:65

    Content type: Research

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  38. At present, there is no evidence on whether using condition-specific Oral Health-Related Quality of Life (OHRQoL) measures provides more reliable information than generic measures for needs assessment. Therefo...

    Authors: Eduardo Bernabé, Cesar M de Oliveira and Aubrey Sheiham

    Citation: Health and Quality of Life Outcomes 2008 6:64

    Content type: Research

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  39. This study aimed to clarify associations between pain, psychological adjustment, and family functioning with health-related quality of life (HRQOL) in a sample of adolescents with sickle cell disease (SCD) uti...

    Authors: Lamia P Barakat, Chavis A Patterson, Lauren C Daniel and Carlton Dampier

    Citation: Health and Quality of Life Outcomes 2008 6:60

    Content type: Research

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  40. To validate the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in Argentinean children and adolescents with chronic conditions and to assess the impact of socio-demographic characteristics ...

    Authors: Mariana Roizen, Susana Rodríguez, Gabriela Bauer, Gabriela Medin, Silvina Bevilacqua, James W Varni and Veronica Dussel

    Citation: Health and Quality of Life Outcomes 2008 6:59

    Content type: Research

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  41. The United States Food and Drug Administration (FDA) are currently producing guidelines for the scientific adequacy of patient reported outcome measures (PROMs) in clinical trials, which will have implications...

    Authors: Stefan J Cano, Thomas T Warner, Alan J Thompson, Kailash P Bhatia, Ray Fitzpatrick and Jeremy C Hobart

    Citation: Health and Quality of Life Outcomes 2008 6:58

    Content type: Research

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  42. QoL data were routinely collected in a randomised controlled trial (RCT), which employed a reminder system, retrieving about 50% of data originally missing. The objective was to use this unique feature to eval...

    Authors: Shona Fielding, Peter M Fayers, Alison McDonald, Gladys McPherson and Marion K Campbell

    Citation: Health and Quality of Life Outcomes 2008 6:57

    Content type: Research

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  43. Seasonal changes in mood and behavior are common in a general population, being of relevance to public health. We wanted to analyze whether the HRQoL is associated with the seasonal changes in mood and behavio...

    Authors: Sharon Grimaldi, Timo Partonen, Samuli I Saarni, Arpo Aromaa and Jouko Lönnqvist

    Citation: Health and Quality of Life Outcomes 2008 6:56

    Content type: Research

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  44. The Medical Outcomes General Health Survey (SF-36) is a widely used health status measure; however, limited evidence is available for its performance in orthopedic settings. The aim of this study was to examin...

    Authors: Lucy Busija, Richard H Osborne, Anna Nilsdotter, Rachelle Buchbinder and Ewa M Roos

    Citation: Health and Quality of Life Outcomes 2008 6:55

    Content type: Research

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