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  1. The brief version of World Health Organization Quality of Life assessment (WHOQOL-BREF), a useful outcome measure for clinical decision making, has been evaluated using classical test theory (CTT) for psychome...

    Authors: Kun-Chia Chang, Jung-Der Wang, Hsin-Pei Tang, Ching-Ming Cheng and Chung-Ying Lin
    Citation: Health and Quality of Life Outcomes 2014 12:148
  2. Data on how different groups of elderly immigrants perceive health-related quality of life (HRQOL) is scarce and research on the influence of ethnicity on HRQOL across ethnic groups is missing. Measuring HRQOL...

    Authors: Ilona Verhagen, Wynand JG Ros, Bas Steunenberg and Niek J de Wit
    Citation: Health and Quality of Life Outcomes 2014 12:138
  3. This study explores relationships between chronic inflammation and quality of life, making a case for biopsychosocial modeling of these associations. It builds on research from social and clinical disciplines ...

    Authors: Alexandra CH Nowakowski
    Citation: Health and Quality of Life Outcomes 2014 12:141
  4. There is no research on mapping algorithms between EQ-5D and SF-36 in Korea. The aim of this study was to derive a predictive model for converting the SF-36 health profile to the EQ-5D index using data from se...

    Authors: Seon-Ha Kim, Seon-Ok Kim, Sang-il Lee and Min-Woo Jo
    Citation: Health and Quality of Life Outcomes 2014 12:145
  5. To linguistically validate and culturally adapt the Evaluation of Daily Activity Questionnaire (EDAQ) for use in rheumatoid arthritis (RA) from Swedish to British English. The EDAQ is a patient reported outcom...

    Authors: Alison Hammond, Sarah Tyson, Yeliz Prior, Ruth Hawkins, Alan Tennant, Ulla Nordenskiold, Ingrid Thyberg, Gunnel Sandqvist and Ragnhild Cederlund
    Citation: Health and Quality of Life Outcomes 2014 12:143
  6. Posttraumatic stress disorder (PTSD) has a great impact on a patient's quality of life (QoL). People in long-term contact with a person suffering from PTSD, such as family members, may also consequently develo...

    Authors: Tina Peraica, Anđelko Vidović, Zrnka Kovačić Petrović and Dragica Kozarić-Kovačić
    Citation: Health and Quality of Life Outcomes 2014 12:136
  7. Pediatric Quality of Life Inventory (PedsQL) is a measure to assess health-related quality of life (HRQoL) in children and adolescents. It is formed by 23 items adapted to children age and includes a parent pr...

    Authors: Pedro L Ferreira, Carla F Baltazar, Luís Cavalheiro, Jan Cabri and Rui S Gonçalves
    Citation: Health and Quality of Life Outcomes 2014 12:122
  8. Health-related quality of life is often collected in clinical studies, and forms a cornerstone of economic evaluation. This study had two objectives, firstly to report and compare pre- and post-progression hea...

    Authors: Anthony J Hatswell, Becky Pennington, Louisa Pericleous, Donna Rowen, Maximilian Lebmeier and Dawn Lee
    Citation: Health and Quality of Life Outcomes 2014 12:140
  9. Thyroid diseases are prevalent and chronic. With treatment, quality of life is restored in most, but not all patients. Construct validity of the thyroid-related quality of life questionnaire, ThyPRO, has been ...

    Authors: Torquil Watt, Mogens Groenvold, Nina Deng, Barbara Gandek, Ulla Feldt-Rasmussen, Åse Krogh Rasmussen, Laszlo Hegedüs, Steen Joop Bonnema and Jakob Bue Bjorner
    Citation: Health and Quality of Life Outcomes 2014 12:126
  10. Studies of caregiver burden and somatic illness tend to be based on relatively small, clinical samples. Longitudinal, population based studies on this topic are still scarce and little is known about the long-...

    Authors: Ingrid Borren, Kristian Tambs, Kristin Gustavson and Jon Martin Sundet
    Citation: Health and Quality of Life Outcomes 2014 12:139
  11. To determine generic utilities for Spanish chronic obstructive pulmonary disease (COPD) patients stratified by different classifications: GOLD 2007, GOLD 2013, GesEPOC 2012 and BODEx index.

    Authors: Marc Miravitlles, Alicia Huerta, José Alberto Fernández-Villar, Bernardino Alcázar, Guillermo Villa, Carles Forné, Maribel Cuesta, Carlos Crespo and Francisco García-Río
    Citation: Health and Quality of Life Outcomes 2014 12:120
  12. The WHOQOL-OLD is an instrument for the assessment of subjective quality of life in elderly people. It is based on the WHO definition of quality of life and is available in more than 20 languages. However, in ...

    Authors: Ines Conrad, Herbert Matschinger, Steffi Riedel-Heller, Carolin von Gottberg and Reinhold Kilian
    Citation: Health and Quality of Life Outcomes 2014 12:105
  13. There is a lack of validated instruments to measure the level of burden of Alzheimer’s disease (AD) on caregivers. The Impact of Alzheimer’s Disease on Caregiver Questionnaire (IADCQ) is a 12-item instrument w...

    Authors: Jason C Cole, Diane Ito, Yaozhu J Chen, Rebecca Cheng, Jennifer Bolognese and Josephine Li-McLeod
    Citation: Health and Quality of Life Outcomes 2014 12:114
  14. The ileal orthotopic neobladder (IONB) is often used in patients undergoing radical cystectomy. The IONB allows to void avoiding the disadvantages of the external urinary diversion.

    Authors: Salvatore Siracusano, Mauro Niero, Cristina Lonardi, Maria Angela Cerruto, Stefano Ciciliato, Laura Toffoli, Francesco Visalli, Davide Massidda, Massimo Iafrate, Walter Artibani, Pierfrancesco Bassi, Ciro Imbimbo, Marco Racioppi, Renato Talamini, Carolina D'Elia, Giovanni Cacciamani…
    Citation: Health and Quality of Life Outcomes 2014 12:135
  15. The Incontinence Quality of Life (I-QOL) questionnaire is a commonly used and validated incontinence specific QOL instrument. The objective of this study is to develop an algorithm to map I-QOL to the Assessme...

    Authors: Gang Chen, Jonathan T Tan, Kwong Ng, Angelo Iezzi and Jeffrey Richardson
    Citation: Health and Quality of Life Outcomes 2014 12:133
  16. Despite an increasing number of studies examining the profile of falls and mobility decline in adults with cerebral palsy (CP), little is known about its impact on an individual’s life quality. The aim of this...

    Authors: Prue E Morgan, Sze-Ee Soh and Jennifer L McGinley
    Citation: Health and Quality of Life Outcomes 2014 12:132
  17. Improvement in quality of life together with better survival are the ultimate goals in the treatment of pulmonary arterial hypertension (PAH) patients. The objective of this study was to evaluate the health-re...

    Authors: Caio JCS Fernandes, Barbara CS Martins, Carlos VP Jardim, Rozana M Ciconelli, Luciana K Morinaga, Ana Paula Breda, Susana Hoette and Rogério Souza
    Citation: Health and Quality of Life Outcomes 2014 12:130
  18. The KIDSCREEN-10 index and the Child Health Utility 9D (CHU9D) are two recently developed generic instruments for the measurement of health-related quality of life in children and adolescents. Whilst the CHU9D...

    Authors: Gang Chen, Katherine Stevens, Donna Rowen and Julie Ratcliffe
    Citation: Health and Quality of Life Outcomes 2014 12:134
  19. Over the last decade, significant progresses have been achieved in the development and validation of new tools for the evaluation of disease activity in axial spondyloarthritis (SpA). Despite they play a key r...

    Authors: Fausto Salaffi, Alessandro Ciapetti, Marina Carotti, Stefania Gasparini, Gustavo Citera and Marwin Gutierrez
    Citation: Health and Quality of Life Outcomes 2014 12:129
  20. Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method t...

    Authors: San D Keller, Manshu Yang, Marsha J Treadwell, Ellen M Werner and Kathryn L Hassell
    Citation: Health and Quality of Life Outcomes 2014 12:125
  21. To assess quality of life and treatment satisfaction in patients with type 2 diabetes mellitus with diabetic retinopathy (DR) using validated instruments, with comparison to patients without DR.

    Authors: Nuria Alcubierre, Esther Rubinat, Alicia Traveset, Montserrat Martinez-Alonso, Marta Hernandez, Carmen Jurjo and Didac Mauricio
    Citation: Health and Quality of Life Outcomes 2014 12:131
  22. Assessment of health-related quality of life (HRQL) is particularly important in patients with progressive and incurable diseases such as idiopathic pulmonary fibrosis (IPF). The St George’s Respiratory Questi...

    Authors: Jeffrey J Swigris, Dirk Esser, Craig S Conoscenti and Kevin K Brown
    Citation: Health and Quality of Life Outcomes 2014 12:124
  23. Several studies have demonstrated a positive association between physical activity (PA) and health-related quality of life (HRQL). However, studies have suggested that this association depends both on the PA i...

    Authors: Priscila Missaki Nakamura, Inaian Pignatti Teixeira, Bruno Paula Caraça Smirmaul, Emerson Sebastião, Camila Bosquiero Papini, Sebastião Gobbi and Eduardo Kokubun
    Citation: Health and Quality of Life Outcomes 2014 12:98
  24. There are very few reliable and valid measures in Japan assessing health-related quality of life (HRQOL) in children with cancer. The present study aimed to develop a Japanese version of the Minneapolis-Manche...

    Authors: Makiko Koike, Hiroki Hori, Takeshi Rikiishi, Akira Hayakawa, Naoko Tsuji, Tsukasa Yonemoto, Hideko Uryu and Eisuke Matsushima
    Citation: Health and Quality of Life Outcomes 2014 12:127
  25. Rural-to-urban migrant workers have been increasing rapidly in China over recent decades. Health related quality of life (HRQOL) may affect health service utilization. There is a lack of data on HRQOL in relat...

    Authors: Chu-Hong Lu, Pei-Xi Wang, Yi-Xiong Lei and Zhong-Cheng Luo
    Citation: Health and Quality of Life Outcomes 2014 12:121
  26. Congenital Adrenal Hyperplasia (CAH) is an endocrine disorder characterized by enzymatic deficiency in adrenal steroidogenesis, leading to adrenal insufficiency and hyperandrogenism. Patients need continuous h...

    Authors: Daniel Luis Schueftan Gilban, Paulo Alonso Garcia Alves Junior and Izabel Calland Ricarte Beserra
    Citation: Health and Quality of Life Outcomes 2014 12:107
  27. Direct patient-reported information about adverse drug events (ADEs) is important since it adds to healthcare professional-reported information about the safety of drugs. Previously, we developed an instrument...

    Authors: Sieta T de Vries, Flora M Haaijer-Ruskamp, Dick de Zeeuw and Petra Denig
    Citation: Health and Quality of Life Outcomes 2014 12:103
  28. Enhancing quality of life for people with long-term conditions by monitoring patient-reported outcome measure scores is a key domain of health care policy. This study investigated the responsiveness of patient...

    Authors: Michele Peters, Helen Crocker, Sarah Dummett, Crispin Jenkinson, Helen Doll and Ray Fitzpatrick
    Citation: Health and Quality of Life Outcomes 2014 12:123
  29. The divorce rate has been increasing rapidly in Korea; the single rate and trends in divorce are also changing rapidly. This study aimed to examine the relationship between marital status and quality of life (...

    Authors: Kyu-Tae Han, Eun-Cheol Park, Jae-Hyun Kim, Sun Jung Kim and Sohee Park
    Citation: Health and Quality of Life Outcomes 2014 12:109
  30. The aim of the study was to analyze the effect of preoperative patient characteristics on health outcomes 6 months after total hip replacement (THR), to support patient's decision making in daily practice with...

    Authors: Matthias Vogl, Rainer Wilkesmann, Christian Lausmann, Matthias Hunger and Werner Plötz
    Citation: Health and Quality of Life Outcomes 2014 12:108
  31. Global research shows a clear transition in health outcomes over the past two decades where improved survival was accompanied by lower health related quality of life (HRQoL) as measured by morbidity and disabi...

    Authors: David Banham, Graeme Hawthorne, Robert Goldney and Julie Ratcliffe
    Citation: Health and Quality of Life Outcomes 2014 12:113
  32. Despite a high incidence of life-limiting disease, there is a deficit of palliative care outcome evidence in sub-Saharan Africa. Providers of end of life care call for appropriate measurement tools. The object...

    Authors: David Blum, Lucy E Selman, Godfrey Agupio, Thandi Mashao, Keletso Mmoledi, Tony Moll, Natalya Dinat, Liz Gwyther, Lydia Mpanga Sebuyira, Barbara Ikin, Julia Downing, Stein Kaasa, Irene J Higginson and Richard Harding
    Citation: Health and Quality of Life Outcomes 2014 12:118
  33. Multiple sclerosis (MS) is an inflammatory disease where many of the patients suffer from spasticity impacting their quality-of-life. The purpose of this paper was to linguistically validate and psychometrical...

    Authors: Thomas Henze, Sylvia von Mackensen, Gerald Lehrieder, Uwe K Zettl, Carmen Pfiffner and Peter Flachenecker
    Citation: Health and Quality of Life Outcomes 2014 12:119
  34. The Headache Impact Test (HIT)-6 was developed and has been validated in patients with various types of headache. The objective of this study was to report the psychometric properties of the HIT-6 among patien...

    Authors: Regina Rendas-Baum, Min Yang, Sepideh F Varon, Lisa M Bloudek, Ronald E DeGryse and Mark Kosinski
    Citation: Health and Quality of Life Outcomes 2014 12:117
  35. Despite overall progress in treatment of autoimmune diseases, patients with systemic lupus erythematosus (SLE) experience many inflammatory symptoms representing an unmet medical need. This study aimed to crea...

    Authors: Laura Holloway, Louise Humphrey, Louise Heron, Claire Pilling, Helen Kitchen, Lise Højbjerre, Martin Strandberg-Larsen and Brian Bekker Hansen
    Citation: Health and Quality of Life Outcomes 2014 12:116
  36. The PedsQL™3.0 Diabetes Module is a widely used instrument to measure the disease-specific health-related quality of life summary measures in children and adolescents with type 1 diabetes. After cultural adapt...

    Authors: Giuseppe d’Annunzio, Sara Gialetti, Chiara Carducci, Ivana Rabbone, Donatella Lo Presti, Sonia Toni, Eugenio Zito, Sara Bolloli, Renata Lorini and Ornella Della Casa Alberighi
    Citation: Health and Quality of Life Outcomes 2014 12:115
  37. Measure Yourself Medical Outcome Profile (MYMOP) is a patient-generated outcome instrument capable of measuring effects from a wide range of health care interventions. This paper reports the translation of thi...

    Authors: Katja Hermann, Katharina Kraus, Kathrin Herrmann and Stefanie Joos
    Citation: Health and Quality of Life Outcomes 2014 12:112
  38. Sleep disturbance is a common experience in fibromyalgia (FM). The field lacks a sleep specific patient reported outcome (PRO) measure developed and validated in a FM population. The study objective is to gain...

    Authors: Leah Kleinman, Sally Mannix, Lesley M Arnold, Claire Burbridge, Kellee Howard, Kelly McQuarrie, Verne Pitman, Malca Resnick, Tom Roth and Tara Symonds
    Citation: Health and Quality of Life Outcomes 2014 12:111
  39. Numerous instruments are available to measure health-related quality of life (HRQoL) in patients with Chronic Obstructive Pulmonary Disease (COPD), covering a wide array of domains ranging from symptoms such a...

    Authors: Muirne CS Paap, Christina Bode, Lonneke IM Lenferink, Lianne C Groen, Caroline B Terwee, Sara Ahmed, Owis Eilayyan and Job van der Palen
    Citation: Health and Quality of Life Outcomes 2014 12:106
  40. Metastatic castration-resistant prostate cancer (mCRPC) and its treatment significantly affect health-related quality of life (HRQOL). Our objectives were to evaluate and compare patient-reported outcome (PRO)...

    Authors: Marci J Clark, Nimanee Harris, Ingolf Griebsch, Dagmar Kaschinski and Catherine Copley-Merriman
    Citation: Health and Quality of Life Outcomes 2014 12:104
  41. To compare biologics as monotherapy or in combination with methotrexate (MTX) in terms of patient reported outcomes (PROs) in RA patients with an inadequate response to conventional DMARDs (DMARD-IR).

    Authors: Jeroen P Jansen, Felicity Buckley, Fred Dejonckheere and Sarika Ogale
    Citation: Health and Quality of Life Outcomes 2014 12:102
  42. Interferon (IFN) therapy can cause significant side effects in chronic hepatitis C (CHC) patients; however, the health-related quality of life (HRQOL) of antiviral-treated CHC patients has not been established...

    Authors: Shu-Chuan Chang, Sheng-Shun Yang, Chiu-Chun Chang, Chun-Che Lin, Yueh-Chin Chung and Tsai-Chung Li
    Citation: Health and Quality of Life Outcomes 2014 12:97
  43. Few studies have evaluated health-related quality of life (HRQoL) of patients with chronic hepatitis B (CHB) in mainland China. We aimed at characterizing the impact of CHB on HRQoL in mainland Chinese and fin...

    Authors: Guihua Zhuang, Min Zhang, Yong Liu, Yaling Guo, Qian Wu, Kaina Zhou, Zhenhao Ji and Xiaomei Zhang
    Citation: Health and Quality of Life Outcomes 2014 12:101
  44. This study aimed to investigate the prevalence of abdominal obesity and its association with the health-related quality of life (HRQOL) in a randomly selected Chinese sample.

    Authors: Shunquan Wu, Rui Wang, An Jiang, Yingying Ding, Meijing Wu, Xiuqiang Ma, Yanfang Zhao and Jia He
    Citation: Health and Quality of Life Outcomes 2014 12:100
  45. Grass allergen immunotherapy (AIT) reduces symptom severity in seasonal allergic rhinoconjunctivitis (ARC) but its impact on general health-related utility has not been characterised for the purposes of econom...

    Authors: Chris D Poole, Christian A Bannister, Jakob Nørgaard Andreasen, Jens Strodl Andersen and Craig J Currie
    Citation: Health and Quality of Life Outcomes 2014 12:99
  46. Refractory angina is a severe chronic disease, defined as angina which cannot be controlled by usual treatments for heart disease. This disease is frightening, debilitating, and difficult to manage. Many peopl...

    Authors: Michael Hugh McGillion, Sandra Lee Carroll, Kelly Metcalfe, Heather Mary Arthur, Joseph Charles Victor, Robert McKelvie, Etienne Marc Jolicoeur, Marie-Gabrielle Lessard, James Stone, Nelson Svorkdal, John George Hanlon, Ada Andrade, Joel Niznick, Louise Malysh, William McDonald, Bonnie Stevens…
    Citation: Health and Quality of Life Outcomes 2014 12:93
  47. Mass screening could identify those with unrecognized celiac disease (CD), but the experience of being detected through screening and living with screening-detected CD should be explored before considering thi...

    Authors: Katrina Nordyke, Anna Rosén, Maria Emmelin and Anneli Ivarsson
    Citation: Health and Quality of Life Outcomes 2014 12:91
  48. Fatigue is a common symptom of chronic hepatitis C virus (cHCV) infection and a common side effect of interferon-based treatment for cHCV. This study provides confirmatory evidence of the reliability and valid...

    Authors: Kathleen Rosa, Min Fu, Leen Gilles, Karin Cerri, Monika Peeters, Jeffrey Bubb and Jane Scott
    Citation: Health and Quality of Life Outcomes 2014 12:90

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