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  1. Research

    Informal caregivers experience of supplemental oxygen in pulmonary fibrosis

    Patients prescribed supplemental oxygen (O2) therapy face challenges as they adjust to being constantly “tethered” to an oxygen delivery device. Informal caregivers (ICs) of patients with pulmonary fibrosis (PF) ...

    Bridget A. Graney, Frederick S. Wamboldt, Susan Baird, Tara Churney, Kaitlin Fier, Marjorie Korn, Mark McCormick, Thomas Vierzba and Jeffrey J. Swigris

    Health and Quality of Life Outcomes 2017 15:133

    Published on: 1 July 2017

  2. Research

    The association between physical activity and health-related quality of life among breast cancer survivors

    The quality of life for breast cancer survivors has become increasingly important because of their high survival rate and prolonged life expectancy. The purpose of this study was to examine the association of ...

    Woo-kyoung Shin, Sihan Song, So-Youn Jung, Eunsook Lee, Zisun Kim, Hyeong-Gon Moon, Dong-Young Noh and Jung Eun Lee

    Health and Quality of Life Outcomes 2017 15:132

    Published on: 30 June 2017

  3. Research

    Patient-reported health state utilities in metastatic gastroenteropancreatic neuroendocrine tumours – an analysis based on the CLARINET study

    Gastroenteropancreatic neuroendocrine tumours (GEP-NETs) are rare cancers most often found in the gastrointestinal system or the pancreas. However, patient-reported health state utilities based on clinical tri...

    Yang Meng, Grant McCarthy, Anthony Berthon and Jerome Dinet

    Health and Quality of Life Outcomes 2017 15:131

    Published on: 29 June 2017

  4. Research

    Qualitative modification and development of patient- and caregiver-reported outcome measures for iron chelation therapy

    Compliance, palatability, gastrointestinal (GI) symptom, and treatment satisfaction patient- and observer-reported outcome (PRO, ObsRO) measures were developed/modified for patients with transfusion-dependent ...

    Erica G. Horodniceanu, Vasudha Bal, Harman Dhatt, John A. Carter, Vicky Huang and Kathryn Lasch

    Health and Quality of Life Outcomes 2017 15:129

    Published on: 23 June 2017

  5. Research

    Health-related quality of life effects of enzalutamide in patients with metastatic castration-resistant prostate cancer: an in-depth post hoc analysis of EQ-5D data from the PREVAIL trial

    The effect of enzalutamide on health-related quality of life (HRQoL) in the PREVAIL trial in chemotherapy-naïve men with metastatic castration-resistant prostate cancer was analyzed using the generic EQ-5D ins...

    Nancy Devlin, Michael Herdman, Marco Pavesi, De Phung, Shevani Naidoo, Tomasz M. Beer, Bertrand Tombal, Yohann Loriot, Cristina Ivanescu, Teresa Parli, Mark Balk and Stefan Holmstrom

    Health and Quality of Life Outcomes 2017 15:130

    Published on: 23 June 2017

  6. Research

    Healthcare utilization and costs for patients initiating Dabigatran or Warfarin

    Novel oral anticoagulants (NOAC) such as dabigatran, when compared to warfarin, have been shown to potentially reduce the risk of stroke in patients with non-valvular atrial fibrillation (NVAF) together with l...

    Shannon L. Reynolds, Sameer R. Ghate, Richard Sheer, Pranav K. Gandhi, Chad Moretz, Cheng Wang, Stephen Sander, Mary E. Costantino, Srinivas Annavarapu and George Andrews

    Health and Quality of Life Outcomes 2017 15:128

    Published on: 21 June 2017

  7. Research

    The effects of beliefs about AIDS-related death on quality of life in Chinese married couples with both husband and wife infected with HIV: examining congruence using the actor-partner interdependence model

    This cross-sectional study examined the actor and partner effects of beliefs about AIDS-related death on quality of life in Chinese married couples in which both were living with HIV.

    Nancy Xiaonan Yu

    Health and Quality of Life Outcomes 2017 15:127

    Published on: 17 June 2017

  8. Research

    Health-related quality of life and health preference of Chinese patients with diabetes mellitus managed in primary care and secondary care setting: decrements associated with individual complication and number of complications

    Health-related quality of life (HRQoL) and health preference of patients with diabetes mellitus (DM) are essential in health economic evaluations but data on Chinese population is rare. This study aims to eval...

    Fangfang Jiao, Carlos King Ho Wong, Rita Gangwani, Kathryn Choon Beng Tan, Sydney Chi Wai Tang and Cindy Lo Kuen Lam

    Health and Quality of Life Outcomes 2017 15:125

    Published on: 13 June 2017

  9. Research

    Evaluation of the impact of once weekly dulaglutide on patient-reported outcomes in Japanese patients with type 2 diabetes: comparisons with liraglutide, insulin glargine, and placebo in two randomized studies

    Standardized patient-reported outcome (PRO) questionnaires can be utilized to evaluate treatment satisfaction (subjective evaluation of treatment) in patients with type 2 diabetes (T2D). These outcomes are imp...

    Shuichi Suzuki, Tomonori Oura, Masakazu Takeuchi and Kristina S. Boye

    Health and Quality of Life Outcomes 2017 15:123

    Published on: 12 June 2017

  10. Research

    Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module

    Detecting change in health status over time and ascertaining meaningful changes are critical elements when using health-related quality of life (HRQL) instruments to measure patient-centered outcomes. The Peds...

    Julie A. Panepinto, J. Paul Scott, Oluwakemi Badaki-Makun, Deepika S. Darbari, Corrie E. Chumpitazi, Gladstone E. Airewele, Angela M. Ellison, Kim Smith-Whitley, Prashant Mahajan, Sharada A. Sarnaik, T Charles Casper, Larry J. Cook, Julie Leonard, Monica L. Hulbert, Elizabeth C. Powell, Robert I. Liem…

    Health and Quality of Life Outcomes 2017 15:124

    Published on: 12 June 2017

  11. Short report

    Physical health-related quality of life in relation to metabolic health and obesity among men and women in Germany

    This study examined sex-specific differences in physical health-related quality of life (HRQoL) across subgroups of metabolic health and obesity. We specifically asked whether (1) obesity is related to lower H...

    Julia Truthmann, Gert B. M. Mensink, Anja Bosy-Westphal, Ulfert Hapke, Christa Scheidt-Nave and Anja Schienkiewitz

    Health and Quality of Life Outcomes 2017 15:122

    Published on: 10 June 2017

  12. Research

    Validation of the Spanish version of the Amsterdam Preoperative Anxiety and Information Scale (APAIS)

    Preoperative anxiety is a frequent and challenging problem with deleterious effects on the development of surgical procedures and postoperative outcomes. To prevent and treat preoperative anxiety effectively, ...

    Manuel Vergara-Romero, José Miguel Morales-Asencio, Angelines Morales-Fernández, Jose Carlos Canca-Sanchez, Francisco Rivas-Ruiz and Jose Antonio Reinaldo-Lapuerta

    Health and Quality of Life Outcomes 2017 15:120

    Published on: 7 June 2017

  13. Research

    Validity and reliability of the Sri Lankan version of the kidney disease quality of life questionnaire (KDQOL-SF™)

    The disabling symptoms, various food and fluid restrictions, restrictions to social life and stigma and taboos attached to Chronic Kidney Disease (CKD), have shown to pose a significant bearing on a patient’s ...

    Sameera Senanayake, Nalika Gunawardena, Paba Palihawadana, Sanjeewa Kularatna and T. S. G. Peiris

    Health and Quality of Life Outcomes 2017 15:119

    Published on: 5 June 2017

  14. Research

    Post-traumatic stress disorder in parturients delivering by caesarean section and the implication of anaesthesia: a prospective cohort study

    Post-traumatic stress disorder (PTSD) occurs in 1–7% of women following childbirth. While having a caesarean section (C-section) is known to be a significant risk factor for postpartum PTSD, it is currently un...

    U. Lopez, M. Meyer, V. Loures, I. Iselin-Chaves, M. Epiney, C. Kern and G. Haller

    Health and Quality of Life Outcomes 2017 15:118

    Published on: 2 June 2017

  15. Research

    Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠

    Sickle Cell Disease (SCD) causes profound suffering and decrements in daily functioning. Demand is growing for valid and reliable measures to systematically document these effects, particularly in adults. The ...

    San Keller, Manshu Yang, Marsha J. Treadwell and Kathryn L. Hassell

    Health and Quality of Life Outcomes 2017 15:117

    Published on: 2 June 2017

  16. Research

    Psychometric properties of the original and short versions of the Falls Efficacy Scale-International (FES-I) in people with Parkinson’s disease

    Fear of falling is common in people with Parkinson’s disease (PD) and is associated with an increased risk for future falls, activity limitations and a reduced quality of life. The Falls Efficacy Scale-Interna...

    Stina B Jonasson, Maria H Nilsson and Jan Lexell

    Health and Quality of Life Outcomes 2017 15:116

    Published on: 31 May 2017

  17. Research

    Cross-cultural measurement invariance in the satisfaction with food-related life scale in older adults from two developing countries

    Nutrition is one of the major determinants of successful aging. The Satisfaction with Food-related Life (SWFL) scale measures a person’s overall assessment regarding their food and eating habits. The SWFL scal...

    Berta Schnettler, Edgardo Miranda-Zapata, Germán Lobos, María Lapo, Klaus G. Grunert, Cristian Adasme-Berríos and Clementina Hueche

    Health and Quality of Life Outcomes 2017 15:113

    Published on: 30 May 2017

  18. Research

    “Fibromyalgia and quality of life: mapping the revised fibromyalgia impact questionnaire to the preference-based instruments”

    The revised version of the Fibromyalgia Impact Questionnaire (FIQR) is one of the most widely used specific questionnaires in FM studies. However, this questionnaire does not allow calculation of QALYs as it i...

    Daniel Collado-Mateo, Gang Chen, Miguel A. Garcia-Gordillo, Angelo Iezzi, José C. Adsuar, Pedro R. Olivares and Narcis Gusi

    Health and Quality of Life Outcomes 2017 15:114

    Published on: 30 May 2017

  19. Short report

    Development of a 12-item short version of the HIV stigma scale

    Valid and reliable instruments for the measurement of enacted, anticipated and internalised stigma in people living with HIV are crucial for mapping trends in the prevalence of HIV-related stigma and tracking ...

    Maria Reinius, Lena Wettergren, Maria Wiklander, Veronica Svedhem, Anna Mia Ekström and Lars E. Eriksson

    Health and Quality of Life Outcomes 2017 15:115

    Published on: 30 May 2017

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