Fig. 1

Participation in the initial and two follow-up surveys. Participation rate was operationally defined as the percentage of patients selecting the web link on the invitation text message and reaching the landing page after a successful identification. Percentages are from the level above for the corresponding survey number. For example, at baseline, 68.5% of patients did not participate, with 25.0% (3398/13,588) having full or partial survey completion, 3.3% reached the landing page but did not complete any survey item therefor had no scores, and 3.1% declined participation selecting reasons of not having IBD or not interested to participate, summing up to an overall participation rate of 31.5%. For those with full or partial survey completion, the distribution of score combination is shown for those with all three scores (global health, IBD-control, and IBD-VAS), or partial score combinations. 3 M first follow-up at three months; 6 M second follow-up at six months; IBD Inflammatory bowed disease; GH General health score from the Patient-Reported Outcomes Measurement Information System (PROMIS) general health item; IBD-C IBD-Control-8 scores; IBD-VAS IBD visual analog scale scores