From: EQ-5D-Y-3L and EQ-5D-Y-5L proxy report: psychometric performance and agreement with self-report
Characteristics | Â |
---|---|
Patient mean age (SD) | 11.2 (2.64) |
Proxy mean age (SD) | 40.6 (7.95) |
Disease group | Â |
Beta thalassemia major | 68 (23.7%) |
Hemophilia (severe) | 39 (13.6%) |
Hemophilia (intermediate) | 15 (5.2%) |
Acute Lymphoblastic Leukemia | 40 (14.0%) |
Acutely ill | 124 (43.5%) |
Relation to the patient | Â |
Mother | 228 (79.4%) |
Father | 41 (14.3%) |
Elder sister/brother | 5 (1.7%) |
Other relatives (e.g., grandparent) | 12 (4.2%) |
Knows patient health, yes/no | 286 (100%) |