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Table 1 Characteristics of study participants, N = 286

From: EQ-5D-Y-3L and EQ-5D-Y-5L proxy report: psychometric performance and agreement with self-report

Characteristics  
Patient mean age (SD) 11.2 (2.64)
Proxy mean age (SD) 40.6 (7.95)
Disease group  
Beta thalassemia major 68 (23.7%)
Hemophilia (severe) 39 (13.6%)
Hemophilia (intermediate) 15 (5.2%)
Acute Lymphoblastic Leukemia 40 (14.0%)
Acutely ill 124 (43.5%)
Relation to the patient  
Mother 228 (79.4%)
Father 41 (14.3%)
Elder sister/brother 5 (1.7%)
Other relatives (e.g., grandparent) 12 (4.2%)
Knows patient health, yes/no 286 (100%)