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Table 1 Characteristics of study participants, N = 286

From: EQ-5D-Y-3L and EQ-5D-Y-5L proxy report: psychometric performance and agreement with self-report

Characteristics

 

Patient mean age (SD)

11.2 (2.64)

Proxy mean age (SD)

40.6 (7.95)

Disease group

 

Beta thalassemia major

68 (23.7%)

Hemophilia (severe)

39 (13.6%)

Hemophilia (intermediate)

15 (5.2%)

Acute Lymphoblastic Leukemia

40 (14.0%)

Acutely ill

124 (43.5%)

Relation to the patient

 

Mother

228 (79.4%)

Father

41 (14.3%)

Elder sister/brother

5 (1.7%)

Other relatives (e.g., grandparent)

12 (4.2%)

Knows patient health, yes/no

286 (100%)