Skip to main content

Table 1 Sociodemographic and clinical characteristics of study participants

From: ‘I thought I had fibroids, and now I don’t’: a mixed method study on health-related quality of life in uterine sarcoma patients

  Uterine sarcoma (N = 13)
Sociodemographic and characteristics patients
Mean age at time of diagnosis (SD, range) 50.8 (7.3, 38–61)
Missing n = 1
Mean age at time of study (SD, range) 53.3 (6.4, 39–61)
Missing n = 1
 Country
  Germany 2
  Italy 1
  Jordan 1
  The Netherlands 4
  United Kingdom 5
 Relationship status
  Single 2 (15.4%)
  Married 8 (61.5%)
  Separated/divorced 2 (15.4%)
  Widowed 1 (7.7%)
 Living arrangement
  Alone 3 (23.1%)
  With partner 3 (23.1%)
  With children 18 years or older 1 (7.7%)
  With partner and children 5 (38.5%)
  Missing 1 (7.7%)
 Highest formal education
  Primary school only 1 (7.7%)
  High school 3 (23.1%)
  College or university 9 (69.2%)
 Employment status
  Full-time 2 (15.4%)
  Part-time 3 (23.1%)
  Unemployed 1 (7.7%)
  Home maker 1 (7.7%)
  Student 1 (7.7%)
  Retired 3 (23.1%)
  Sick leave 2 (15.4%)
 Clinical characteristics
  Histology
  Endometrial stromal sarcoma 2 (15.4%)
  Leiomyosarcoma 6 (46.2%)
  Rhabdomyosarcoma 1 (7.7%)
  Sarcoma NOS 1 (7.7%)
  Other* 3 (23.1%)
 Stage at diagnosis
  Localized 10 (76.9%)
  Metastatic 3 (23.1%)
 Treatment at diagnosis
  Chemotherapy 4
  Radiotherapy 2
  Hormonal therapy 1
  Surgery 12
 Stage at study enrolment
  Localized 3 (23.1%)
  Metastatic 7 (53.8%)
  Follow-up 3 (23.1%)
HCP characteristics
Sex
 Male 13 (56.5%)
 Female 10 (43.5%)
Mean age (SD, range) 47 (7.7, 33–60)
(1 missing)
Country
 Canada 2 (8.7%)
 Cyprus 1 (4.3%)
 Germany 2 (8.7%)
 Italy 1 (4.3%)
 Jordan 2 (8.7%)
 Spain 2 (8.7%)
 The Netherlands 7 (30.4%)
 United Kingdom 6 (26.1%)
Profession
 Medical oncologist 10 (43.5%)
 Nurse specialist 3 (13%)
 Physiotherapist 1 (4.3%)
 Psychologist 1 (4.3%)
 Radiation oncologist 2 (8.7%)
 Surgeon 4 (17.4%)
 Palliative care consultant 1 (4.3%)
 Clinical oncologist (UK) 1 (4.3%)
Mean years of experience in profession (SD, range) 14.5 (8.4, 3–32)
(2 missing)
Mean years of experience in sarcoma care (SD, range) 12.7 (7.0, 5–27)
(3 missing)
  1. *1 adenosarcoma, 1 PEComa, 1 undifferentiated spindle cell sarcoma