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Table 1 Sociodemographic and clinical characteristics of study participants

From: ‘I thought I had fibroids, and now I don’t’: a mixed method study on health-related quality of life in uterine sarcoma patients

 

Uterine sarcoma (N = 13)

Sociodemographic and characteristics patients

Mean age at time of diagnosis (SD, range)

50.8 (7.3, 38–61)

Missing n = 1

Mean age at time of study (SD, range)

53.3 (6.4, 39–61)

Missing n = 1

 Country

  Germany

2

  Italy

1

  Jordan

1

  The Netherlands

4

  United Kingdom

5

 Relationship status

  Single

2 (15.4%)

  Married

8 (61.5%)

  Separated/divorced

2 (15.4%)

  Widowed

1 (7.7%)

 Living arrangement

  Alone

3 (23.1%)

  With partner

3 (23.1%)

  With children 18 years or older

1 (7.7%)

  With partner and children

5 (38.5%)

  Missing

1 (7.7%)

 Highest formal education

  Primary school only

1 (7.7%)

  High school

3 (23.1%)

  College or university

9 (69.2%)

 Employment status

  Full-time

2 (15.4%)

  Part-time

3 (23.1%)

  Unemployed

1 (7.7%)

  Home maker

1 (7.7%)

  Student

1 (7.7%)

  Retired

3 (23.1%)

  Sick leave

2 (15.4%)

 Clinical characteristics

  Histology

  Endometrial stromal sarcoma

2 (15.4%)

  Leiomyosarcoma

6 (46.2%)

  Rhabdomyosarcoma

1 (7.7%)

  Sarcoma NOS

1 (7.7%)

  Other*

3 (23.1%)

 Stage at diagnosis

  Localized

10 (76.9%)

  Metastatic

3 (23.1%)

 Treatment at diagnosis

  Chemotherapy

4

  Radiotherapy

2

  Hormonal therapy

1

  Surgery

12

 Stage at study enrolment

  Localized

3 (23.1%)

  Metastatic

7 (53.8%)

  Follow-up

3 (23.1%)

HCP characteristics

Sex

 Male

13 (56.5%)

 Female

10 (43.5%)

Mean age (SD, range)

47 (7.7, 33–60)

(1 missing)

Country

 Canada

2 (8.7%)

 Cyprus

1 (4.3%)

 Germany

2 (8.7%)

 Italy

1 (4.3%)

 Jordan

2 (8.7%)

 Spain

2 (8.7%)

 The Netherlands

7 (30.4%)

 United Kingdom

6 (26.1%)

Profession

 Medical oncologist

10 (43.5%)

 Nurse specialist

3 (13%)

 Physiotherapist

1 (4.3%)

 Psychologist

1 (4.3%)

 Radiation oncologist

2 (8.7%)

 Surgeon

4 (17.4%)

 Palliative care consultant

1 (4.3%)

 Clinical oncologist (UK)

1 (4.3%)

Mean years of experience in profession (SD, range)

14.5 (8.4, 3–32)

(2 missing)

Mean years of experience in sarcoma care (SD, range)

12.7 (7.0, 5–27)

(3 missing)

  1. *1 adenosarcoma, 1 PEComa, 1 undifferentiated spindle cell sarcoma