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Table 8 COSMIN ratings of the relevance, comprehensiveness, and comprehensibility of instruments used to assess carer quality of life in DMD

From: Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

Instrument Instrument development study Reviewer ratings Overall ratings Quality of evidence
Relevance Comprehensiveness Comprehensibility Relevance Comprehensiveness Comprehensibility Relevance Comprehensiveness Comprehensibility
BDI ? ? ± (+) + ± + Very lowa
CarerQoL ± + + ± ± ± ± ± ± Very low
CSI ± ? ? ± ± (+) ± ± ± ± Very low
CSI+ ? ? ± ± ± ± - Very low
CWBS ± ? + ± (+) ± (−) + ± ± + Very low
DUKE ± ? ? ± (+) ± (+) ± (+) ± ± ± Very low
EQ-5D-3L ? ? ? ± ± (+) ± ± Very lowa
EQ-5D-5L ± ? + ± ± (+) ± (+) ± ± ± Low
ESS ± ? ? ± ± (−) + ± ± + Very low
ESSI ± ? ? ± ± (−) ± ± ± ± Very low
FAPGAR ± ? ? ± ± (−) ± ± ± ± Very low
FPQ ± ? ? ± ± ± ± ± ± Very low
FSFI ± ? ? ± ± ± ± Very low
HADS ? ? ± (+) + ± + Very lowa
K6 ± ? ? + ± ± (+) + ± ± Very low
PAS ± ? ? + ± (+) + ± Very low
PedsQL FIM ? ? + ± (+) + ± ± + Very low
PPC ± ? ? + ± ± (+) + ± ± Very low
PSQI ± ? ? ± ± (−) ± (+) ± ± ± Very low
PSS ± ? ? ± (+) + ± + Very low
QRS ± ? + ± ± ± (−) ± ± ± Very low
SCL-90-R ± ? ? ± ± (−) ± (+) ± ± ± Very low
SF-12 ? ? ± ± ± ± Very low
SF-36 ? ? ? ± ± (−) ± (+) ± ± ± Very lowa
SNQ ? ? ± (+) ± (−) + ± ± + Very low
STAI-X (state) ± ? ? ± + ± + Very low
STAI-X (trait) ± ? ? ± ± (+) ± ± Very low
SWLS ? ? ± (−) ± (+) ± ± Very lowa
WHOQOL-BREF ± ? ? ± (+) ± (-) ± (+) ± ± ± Very lowa
WAC-DBMD ? ? ± (+) ± ± + Very low
ZBI (4 item) ? ? ± (+) ± (+) ± ± Very low
ZBI (12 item) ? ? ± ? ± ± ? + Very low
ZBI (22 item) ? ? ± ± (+) ± ± Very low
  1. +, satisfactory results; −, unsatisfactory results; ±, inconsistent results; ± (+), inconsistent results trending towards satisfactory; ± (−), inconsistent results trending towards unsatisfactory; ?, indeterminate
  2. aDevelopment study and quality of evidence based on ratings in Powell et al. [20]