Table 8 COSMIN ratings of the relevance, comprehensiveness, and comprehensibility of instruments used to assess carer quality of life in DMD
Instrument | Instrument development study | Reviewer ratings | Overall ratings | Quality of evidence | ||||||
|---|---|---|---|---|---|---|---|---|---|---|
Relevance | Comprehensiveness | Comprehensibility | Relevance | Comprehensiveness | Comprehensibility | Relevance | Comprehensiveness | Comprehensibility | ||
BDI | − | ? | ? | ± (+) | − | + | ± | − | + | Very lowa |
CarerQoL | ± | + | + | ± | ± | ± | ± | ± | ± | Very low |
CSI | ± | ? | ? | ± | ± (+) | ± | ± | ± | ± | Very low |
CSI+ | − | ? | ? | ± | ± | − | ± | ± | - | Very low |
CWBS | ± | ? | + | ± (+) | ± (−) | + | ± | ± | + | Very low |
DUKE | ± | ? | ? | ± (+) | ± (+) | ± (+) | ± | ± | ± | Very low |
EQ-5D-3L | ? | ? | ? | ± | − | ± (+) | ± | − | ± | Very lowa |
EQ-5D-5L | ± | ? | + | ± | ± (+) | ± (+) | ± | ± | ± | Low |
ESS | ± | ? | ? | ± | ± (−) | + | ± | ± | + | Very low |
ESSI | ± | ? | ? | ± | ± (−) | ± | ± | ± | ± | Very low |
FAPGAR | ± | ? | ? | ± | ± (−) | ± | ± | ± | ± | Very low |
FPQ | ± | ? | ? | ± | ± | ± | ± | ± | ± | Very low |
FSFI | ± | ? | ? | ± | − | ± | ± | − | ± | Very low |
HADS | − | ? | ? | ± (+) | − | + | ± | − | + | Very lowa |
K6 | ± | ? | ? | + | ± | ± (+) | + | ± | ± | Very low |
PAS | ± | ? | ? | + | − | ± (+) | + | − | ± | Very low |
PedsQL FIM | − | ? | ? | + | ± (+) | + | ± | ± | + | Very low |
PPC | ± | ? | ? | + | ± | ± (+) | + | ± | ± | Very low |
PSQI | ± | ? | ? | ± | ± (−) | ± (+) | ± | ± | ± | Very low |
PSS | ± | ? | ? | ± (+) | − | + | ± | − | + | Very low |
QRS | ± | ? | + | ± | ± | ± (−) | ± | ± | ± | Very low |
SCL-90-R | ± | ? | ? | ± | ± (−) | ± (+) | ± | ± | ± | Very low |
SF-12 | − | ? | ? | ± | − | ± | ± | − | ± | Very low |
SF-36 | ? | ? | ? | ± | ± (−) | ± (+) | ± | ± | ± | Very lowa |
SNQ | − | ? | ? | ± (+) | ± (−) | + | ± | ± | + | Very low |
STAI-X (state) | ± | ? | ? | ± | − | + | ± | − | + | Very low |
STAI-X (trait) | ± | ? | ? | ± | − | ± (+) | ± | − | ± | Very low |
SWLS | − | ? | ? | ± (−) | − | ± (+) | ± | − | ± | Very lowa |
WHOQOL-BREF | ± | ? | ? | ± (+) | ± (-) | ± (+) | ± | ± | ± | Very lowa |
WAC-DBMD | − | ? | ? | ± (+) | − | ± | ± | − | + | Very low |
ZBI (4 item) | − | ? | ? | ± (+) | − | ± (+) | ± | − | ± | Very low |
ZBI (12 item) | − | ? | ? | ± | ? | ± | ± | ? | + | Very low |
ZBI (22 item) | − | ? | ? | ± | − | ± (+) | ± | − | ± | Very low |