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Table 12 Results of studies assessing responsiveness of the instruments included in the review

From: Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

Instrument N Mean (SD) Age % Female Country Results consistent with reviewer hypotheses COSMIN rating Quality of evidence
PAS [51] 205 at baseline (147 at year 1, 144 at year 2) 44 (8.7) 100 USA 3 out of 3 + Moderate
PPC [51] 205 at baseline (147 at year 1, 144 at year 2) 44 (8.7) 100 USA 2 out of 3 Moderate
WAC-DBMD [51] 205 at baseline (147 at year 1, 144 at year 2) 44 (8.7) 100 USA 1 out of 1 + Moderate
ZBI (12 item) [51] 205 at baseline (147 at year 1, 144 at year 2) 44 (8.7) 100 USA 0 out of 3 Moderate
  1. Citation next to instrument is for the study assessing this measurement property