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Table 12 Results of studies assessing responsiveness of the instruments included in the review

From: Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

Instrument

N

Mean (SD) Age

% Female

Country

Results consistent with reviewer hypotheses

COSMIN rating

Quality of evidence

PAS [51]

205 at baseline (147 at year 1, 144 at year 2)

44 (8.7)

100

USA

3 out of 3

+

Moderate

PPC [51]

205 at baseline (147 at year 1, 144 at year 2)

44 (8.7)

100

USA

2 out of 3

Moderate

WAC-DBMD [51]

205 at baseline (147 at year 1, 144 at year 2)

44 (8.7)

100

USA

1 out of 1

+

Moderate

ZBI (12 item) [51]

205 at baseline (147 at year 1, 144 at year 2)

44 (8.7)

100

USA

0 out of 3

Moderate

  1. Citation next to instrument is for the study assessing this measurement property