Table 1 Overview of the included studies
References | PROM | Country | PROM language | Study design | Target population | Sample size | Year of development/validation | Measurement domain | Number of items | Total score range |
|---|---|---|---|---|---|---|---|---|---|---|
Akinboro et al. [63] | WHOQOL-BREF Nigerian version | Nigeria | Nigerian | Cross-sectional study | PLWH, mean age: 38.5 ± 9.7 Male: 144, Female: 347 | 491 | Between July 2010 and January 2011 | Physical health; psychological health; level of independence; social relationships; environmental health; spirituality, religion and personal beliefs | 31 | NR |
Ahmed et al. [56] | WHOQOL-HIV-BREF Urdu version | Pakistan | Urdu | Cross-sectional study | PLWH, age: < 25 years: 30; 25–50 years: 104, > 50 years: 48 Male: 134, Female: 48 | 182 | NR | Physical health; psychological health; level of independence; social relationships; environmental health; spirituality, religion and personal beliefs | 31 | (− 2)− 2 |
Brown et al. [70] | PozQoL | Australia | English | Cross-sectional study | PLWH, age: 18–34: 34, 35–49: 157 50–64: 208, 65 + : 66 Male: 378, Female: 14 Participants who either did not answer the question or indicated some other gender: 73 | 465 | Between March 22 and May 31, 2017 | Health concerns, psychological, social, functional | 64 | 1–5 |
Bucciardini et al. [69] | ISSQoL Italian version | Italy | Italian | Cross-sectional study | PLWH, Female: 118 (35.5) Male: 202 (60.8) Missing information: 12 (3.6), age Mean ± SD: 40.0 ± 7.3 | 332 | NR | Satisfaction with quality of life, physical well-being, role well-being, depression and anxiety, energy and vitality, health distress, cognitive functioning, social functioning, sexual life, social support, interaction with medical staff, treatment, impact, body changes, life planning, motherhood/fatherhood | 62 | 0–100 |
Connell and Skevington [51] | WHOQOL-HIV-BREF | Australia, Brazil, Bangalore, New Delhi, Thailand, Zimbabwe, Italy, Ukraine | Brazilian, Bangalore, New Delhi, Thai, Zimbabwean, Italian, Ukrainian | Cross-sectional study | PLWH, mean age: 33.4 ± 9.8 Male: 1271, Female: 652 | 1923 | NR | Physical health; psychological health; level of independence; social relationships; environmental health; spirituality, religion, and personal beliefs | 31 | 4–20 |
De Boer et al. [14] | HOPES Dutch and English versions | Netherlands | Dutch, English | Cross-sectional study | PLWH Mean age: 38 ± 7.8 Male: 99, Female: 7 | 106 | NR | Physical, psychosocial, medical interaction, sexuality, partner | 142 | NR |
Duracinsky et al. [12] | PROQoL-HIV English, Brazilian, Cambodia, Chinese, French, Senegalese, and Thai versions | Australia, Brazil, Cambodia, China, France, Senegal, Thailand, USA | English, Brazilian, Cambodia, Chinese, French, Senegalese, Thai | Cross-sectional study | PLWH, median age: 41 Male: 506, Female: 285 | 791 | Between July and December 2008 | General health perception, social, relationships, emotions, energy/fatigue, sleep, cognitive functioning, physical and daily activity, coping, future, symptoms, and treatment | 67 | 0–4 |
Fang et al. [22] | WHOQOL Chinese version | China | Chinese | Cross-sectional study | PLWH, age (years)  ≤ 30: 34, 31–40: 42  > 40: 24 Male: 96 Female: 40 | 136 | NR | Physical, psychosocial, social, environment | 26 | 1–20 |
Herrmann et al. [71] | PROQoL-HIV | Australia | English | Cross-sectional study | PLWH, mean age: 46 (37–53.8) Male: 87, Female: 15 | 102 | NR | Physical health and symptoms, emotional distress, health concerns, body change, intimate relationships, social relationships, stigma | 31 | 1–100 |
Holmes and Shea [16] | HAT-QoL | US | English | Cross-sectional study | PLWH Mean age: 37.8 (8.9) Male: 78, Female: 28 | 106 | Between January and March 1996 | Overall function (physical function, role function and social function), sexual function, disclosure worries, health worries, financial worries, HIV mastery, life satisfaction, medication concerns, provider trust | 42 | 0–100 |
Holmes and Shea [76] | HAT-QoL | US | English | Cross-sectional study | PLWH Mean age: 37.8 (8.6) Male: 173, Female: 42 | 215 | Between May and August, 1996 | Overall function, sexual function, disclosure worries, health worries, financial worries, HIV mastery, life satisfaction, medication concerns, provider trust | 42 | NR |
Hsiung et al. [57] | WHOQOL-HIV-BREF Chinese version | China | Chinese | Cross-sectional study | PLWH in Taiwan Age: 36.3 (10.1) Male: 646, Female: 28 | 674 | NR | General health; physical health; level of independence; psychological health; spirituality, religion and personal beliefs; social relations; environmental health | 31 | 4–20 |
Hughes et al. [35] | MOS-HIV-34 | US | English | Cross-sectional study | Adult males, HIV-infected Mean age: 35.3 | 100 | Between September 14, 1992, and March 16, 1993 | Overall health, pain, physical function, role function, social function, cognitive function, mental health, energy/fatigue, health distress, quality of life, health transition | 34 | NR |
Kaplan et al. [26] | QWB scale | US | English | Cross-sectional study | PLWH Male: 400, Female: 114 | 514 | NR | NR | NR | NR |
Kemmler et al. [10] | MQoL-HIV German version | Germany | German | Cross-sectional study | PLWH, mean age: 37.8 ± 9.5 Male: 118, Female: 89 | 207 | NR | Physical, emotional, cognitive, social and financial aspects, sexual functioning, medical care | 40 | 0–100 |
Kohli et al. [23] | MOS Indic version | India | Indic | Cross-sectional study | PLWH, age: < 20:1, 20–29:28 30–39:52, 40–49:13, ≥ 50: 6, Male: 66, Female: 34 | 100 | Between February 2002 and March 2003 | Physical health, work and earnings, daily routine, social activities, cognitive function, feelings and emotions, pain, sleep, food and appetite, sexual life | 29 | 0–100 |
Kusterer et al. [19] | SF-36v2 Brazilian-Portuguese version | Brazil | Brazilian-Portuguese | Cross-sectional study | PLWH, mean age: 44 ± 11.3 Male: 219 (55.9) Female: 173 (44.1) | 392 | NR | Physical functioning, role-physical, bodily pain, general health, vitality, social functioning, role-emotional, mental health | 36 | NR |
Lau et al. [36] | MOS-HIV Chinese version | China | Chinese | Cross-sectional study | PLWH, age: (mean =  38.38, SD = 9.75) Male: 213 Female: 29 | 242 | Between January and April 2000 | General health, physical function, role function, social function, cognitive function, pain, mental health, energy/fatigue, health distress, quality of life | 35 | NR |
Leplège et al. [11] | HIV-QL31 French version | France | French | Cross-sectional study | PLWH, Male: 76, Female: 26 | 102 | NR | Sex, socioprofessional status, CMV, work status, mode of contamination | 118 | NR |
Liu et al. [37] | MOS-HIV Chinese version | China | Chinese | Cross-sectional study | PLWH, age (years)  < 20: 15, 20–30: 195 30–40: 158, > 40: 267 Male: 447, Female: 188 | 635 | Between May 2015 and March 2016 | General health, physical function, role function, cognitive function, pain, mental health, energy/fatigue, health distress, social function, quality of life, health transition | 35 | 44.1–85.2 |
Mast et al. [41] | MOS-HIV Lugandan version | Uganda | Ugandan | Cross-sectional study | HIV-positive women | 803 | NR | Perceived health, bodily pain, QoL, role functioning, social functioning, vitality, mental health, health distress, cognitive functioning, physical functioning, health transition | 35 | 0–100 |
McDonne et al. [42] | MOS-HIV | US | English | Cross-sectional study | HIV-positive nonpregnant women, mean age: 33 | 287 | Between April 1993 and June 1995 | Cognitive functioning, physical functioning, social functioning, role functioning, mental health, health distress, overall QoL | 17 | 0–100 |
Meemon et al. [50] | WHOQOL-HIV-BREF Thai version | Thailand | Thai | Cross-sectional study | PLWH, mean age: 41.95 ± 7.82 Male: 146, Female: 183 | 329 | Between August and October 2014 | Physical health; psychological health; level of independence; social relationships; environmental health; spirituality, religion, and personal beliefs | 31 | 4–20 |
Namisango et al. [24] | MVQoLI Uganda version | Uganda | Ugandan | Cross-sectional study | Advanced AIDS Age (years) 18–29: 39, 30–39: 97, 40 + : 64, Male: 78, Female: 122 | 200 | NR | Symptoms, functional status, interpersonal relations, emotional well-being, transcendence | 25 | NR |
Nosyk et al. [28] | HUI3 | Canada | English | Cross-sectional study | Patients with advanced HIV/AIDS Mean age: 48Â years (SD: 8.5) Male: 361, Female: 7 | 368 | Between June 2006 and December 2007 | Â | Â | NR |
Patel et al. [18] | SF-12 Kiswahili version | Kenya | Kiswahili | Cross-sectional study | Kiswahili-speaking PLWH Male: 76, Female: 26 | 102 | Between May 2007 and October 2009 |  | 12 | 0.35–1 |
Paton et al. [43] | MOS-HIV English and Chinese versions | Singapore | English, Chinese | Cross-sectional study | HIV-infected patients Mean age: 38 Male: 156, Female: 7 | 163 | Between April and August 1998 | Overall health, pain, physical functioning, role functioning, social functioning, mental health, energy/fatigue, health distress, cognitive functioning, quality of life, health transition | 30 | 0–100 |
Pereira et al. [52] | WHOQOL-HIV-Bref Portuguese version | Portugal | Portuguese | Cross-sectional study | HIV-infected patients aged 50 years and older Mean age: 57.84 (6.79,50–81) Male: 120, Female: 65 | 185 | NR | Six domains (physical, psychological, independence, social relationships, environment, spirituality) and 29 specific facets | 31 | NR |
Pereira and Canavarro [75] | EUROHIS-QoL-8 Portuguese version | Portugal | Portuguese | Cross-sectional study | PLWH, mean age: 40.72 (SD = 9.71, range: 18–81) Male: 808, Female: 389 | 1197 | Between September 2007 and July 2008 | Overall QoL, general health, energy, daily activities, self-esteem, relationships, financial resources, living place | 8 | NR |
Pereira and Canavarro [75] | BSI Portuguese version | Portugal | Portuguese | Cross-sectional study | PLWH, mean age 40.72 (SD = 9.71, range: 18–81) Male: 808, Female: 389 |  | NR | NR | 53 | 0–4 |
Peterman et al. [15] | FAHI | US | English | Cross-sectional study | PLWH, Male: 307, Female: 54 | 361 | NR | Physical well-being, function and global well-being, emotional well-being/living with HIV, social well-being, cognitive functioning | 44 | 0–176 |
Remple et al. [66] | MQoL-HIV | Canada | English | Cross-sectional study | HIV-infected Women Mean age: 36.5 years (SD = 9.5) | 85 | NR | Mental health, physical functioning, physical health, social support, social functioning, cognitive functioning, financial status, partner intimacy, sexual functioning, medical care | 40 | 4–28 |
Reychler et al. [48] | WHOQOL-HIV French version | France, the francophone part of Belgium | French | Cross-sectional study | PLWH Male: 32 (64.0) Female: 18 (36.0) | 50 | NR | Six domains (physical, psychological, level of dependence, social relationships, environment and spirituality) and 29 facets | 120 items and 37 important questions | NR |
Riley et al. [72] | SF-36 | US | English | Cross-sectional study | PLWH, mean age: 39 Male: 274, Female: 56 | 330 | NR | General health perceptions, physical functioning, role limitations due to physical problems, role limitations due to emotional problems, social functioning, bodily pain, vitality, mental health | 36 | NR |
Saddkia et al. [9] | WHOQOL Malay version | Malaysia | Malay | Cross-sectional study | PLWH, mean age (years): 35.7 (7.50) Male: 94 (59.9) Female: 63 (40.1) | 157 | Between August and December 2007 | Physical, psychological, level of independence, social relationships, environment, spirituality | 31 | 4–20 |
Salehi et al. [53] | WHOQOL-HIV BREF Persian version | Islamic Republic of Iran | Persian | Cross-sectional study | PLWH, mean age: 38.06 (9.32) Male: 44, Female: 17 | 61 | NR | Physical, psychological, level of independence, social relationship, environmental, spiritual | 29 | 1.6–6.6 |
Schifano et al. [44] | MOS-HIV Italian version | Italy | Italian | Cross-sectional study | PLWH Males: 135, Females: 50 Age (years) 21–30: 35, 31–35: 65, > 35: 85 | 185 | Between October 1994 and April 1996 | Physical functioning, social functioning, role functioning, bodily pain, mental health, health distress, cognitive functioning, vitality, general health, health perception | 35 | 0–100 |
Schnall et al. [25] | PROMIS-29 | US | English | Cross-sectional study | PLWH, mean age (years) (SD): 48.5 (11.70) Male: 933, Female: 359 Transgender male/transman/FTM: 2 Transgender female/transwoman/MTF: 8 Genderqueer individual: 4 | 1306 | Between February and July 2016 | Physical functioning, anxiety, depression, fatigue, sleep disturbance, satisfaction with participation in social roles, pain interference and pain intensity | 29 | 1–5 |
Shim et al. [45] | MOS-HIV Korean version | South Korea | Korean | Cross-sectional study | PLWH, age  ≤ 40: 54, 41–60: 107, > 60: 40, Male: 179, Female: 22 | 201 | Between December 2016 and June 2017 | General health perception, pain, physical functioning, role functioning, social functioning, energy/fatigue, mental health, health distress, cognitive functioning, quality of life, health transition | 35 | 0–100 |
Smith et al. [65] | MOS SF-20 | US | English | Cross-sectional study | Women with HIV Mean age: 33.5 (± 7.69) | 202 | NR | Physical functioning, role functioning, social functioning, mental health, general health perceptions, pain | 20 | 0–100 |
Smith et al. [67] | MQoL-HIV | US | English | Cross-sectional study | PLWH Male: 95, Female: 26 | 121 | Between July 1994 and December 1995 | Mental health, physical health, physical functioning, social functioning, social support, cognitive functioning, financial status, partner intimacy, sexual functioning, medical care | 40 | NR |
Sousa et al. [26] | HAQ-DI | US | English | Cross-sectional study | PLWH, mean age: (39.35 ± 8.13) (61.57 ± 12.46) Male: 917, Female: 901 | 1818 | NR | Usual activities, reaching, grip, eating, dressing/grooming, hygiene, walking, arising | 20 | 0–3 |
Stangl et al. [46] | MOS-HIV Ugandan version | Uganda | Ugandan | Cross-sectional study | PLWH, Male: 237, Female: 710 Age 18–30: 159 31–40: 434, 41 + : 354 | 947 | Between May 2003 and May 2004 | Physical function, role function, general health perceptions, bodily pain, health transition, mental health, cognitive function, health distress, social function, vitality |  | NR |
Starce et al. [49] | WHOQOL-HIV Italian version | Italy | Italian | Cross-sectional study | PLWH Male: 105, Female: 46 | 151 | NR | Physical, psychological, level of independence, social relationships, environment, spirituality, religion, personal beliefs of PLWH | 28 | 0–100 |
Stasinopouiou et al. [34] | MOS-HIV Greek version | Greece | Greek | Cross-sectional study | PLWH, mean age (SD): 42.6 (9.4) Male: 118, Female: 36 | 154 | NR | Quality of life, pain, physical functioning, role functioning, social functioning, mental health, energy/fatigue, cognitive function, health distress, health transition | 35 | 0–100 |
Taylor et al. [47] | HAT-QoL Shona version | Zimbabwe | Shona | Cross-sectional study | Patients with HIV-related opportunistic infections Teens: 32, 20–29: 164 30–39: 136, 40–49: 52 50–59: 20, 60–69: 4 Female: 232, Male: 168 | 400 | NR | Overall function (physical, role, and social function), sexual function, disclosure worries, health worries, financial worries, HIV mastery, life satisfaction, medication worries, provider trust | 34 | 0–100 |
Taylor et al. [47] | MOS-HIV-35 Shona version | Zimbabwe | Shona | Cross-sectional study | Patients with HIV-related opportunistic infections Teens: 32, 20–29: 164 30–39: 136, 40–49: 52 50–59: 20, 60–69: 4 Female: 232, Male: 168 | 400 | NR | General health perceptions, physical function, role function, social function, cognitive function, pain, mental health, energy/fatigue, health distress, overall QoL | 35 | NR |
Tesfaye et al. [54] | WHOQOL-HIV-BREF Ethiopian version | Ethiopia | Ethiopian | Cross-sectional study | PLWH Mean age: 32.5 (7.9) Male: 38, Female: 62 | 100 | NR | Physical, psychological, independence, social relationships, environment, spirituality | 27 | NR |
Thompson et al. [64] | WHOQOL-BREF | US | English | Cross-sectional study | PLWH | 312 | NR | Physical health, psychological health, social relationships, environmental conditions | 24 | 26–130 |
Tran [55] | WHOQOL-HIV-BREF Vietnamese version | Vietnam | Vietnamese | Cross-sectional study | PLWH, age  ≤ 35 years old: 584  > 35 years old: 432 Male: 648, Female: 368 | 1016 | NR | Physical, morbidity, social, spirituality, performance, environment | 31 | 4–20 |
Tran et al. [20] | EQ-5D-5L Vietnamese version | Vietnam | Vietnamese | Cross-sectional study | PLWH, age  ≤ 35 years old: 584  > 35 years old: 432 Male: 648, Female: 368 | 1016 | NR | Mobility, self-care, usual activities, pain/discomfort and anxiety/depression | 25 | NR |
Turner-Bowker et al. [73] | SF-36 | US | English | Cross-sectional study | PLWH Male: 117, Female: 84 | 201 | NR | Physical function, role function (without physical or emotional attribution), bodily pain, general health, vitality, social function, mental health | 36 | NR |
Watanabe et al. [68] | MQoL-HIV Japanese version | Japan | Japanese | Cross-sectional study | PLWH, mean age (years) 36.5 + 10.3 Male: 344, Female: 31 | 375 | Between January and May 2000 | Mental health, physical health, physical functioning, social functioning, social support, cognitive functioning, financial status, partner intimacy, sexual functioning, medical service | 40 | 12–84 |
WHOQOL-HIV Group [13] | WHOQOL-HIV Australian, Indic, Brazilian, Thai, and Zimbabwean versions | Australia, India, Brazil, Thailand, Zimbabwe | Australian, Indic, Brazilian, Thai, Zimbabwean | Cross-sectional study | PLWH, mean age 32.3 (79.4) Male: 569, Female: 331 | 900 | NR | Physical, psychological, independence, social, environmental and spirituality | 25 | 4–20 |
Wu et al. [21] | EQ-5D | US | English | Cross-sectional study | PLWH Male: 931, Female: 59 Mean age: 38.5 (SD: 7.8) | 990 | NR | Anxiety/depression, mobility, usual activities, pain/discomfort and self-care |  | 0–100 |
Wu et al. [21] | MOS-HIV | US | English | Cross-sectional study | PLWH Male: 931, Female: 59 Mean age: 38.5 (SD: 7.8) | 990 | NR | General health perceptions, cognitive functioning, pain, physical functioning, role functioning, health distress, quality of life, mental health and energy/fatigue | 35 | 0–100 |
Zhu et al. [58] | WHOQOL HLV BREF Chinese version | China | Chinese | Cross-sectional study | PLWH, mean age: 39.62 (12.73) Male: 965, Female: 135 | 1100 | NR | General QoL, general health status, physical, psychological, independence, social relationships, environment, spirituality | 31 | 4–20 |
Cai et al. [59] | WHOQOL HLV BREF Chinese version | China | Chinese | Cross-sectional study | PLWH, mean age: 36.8 Male: 105, Female: 33 | 138 | NR | Physical, psychological, level of independence, social relationship, environmental, spiritual | 31 | 4–20 |
Chen et al. [60] | WHOQOL HLV BREF Chinese version | China | Chinese | Cross-sectional study | PLWH, mean age: 38.29 ± 10.92 Male: 72, Female: 30 | 102 | NR | Physical, psychological, level of independence, social relationship, environmental, spiritual | 31 | NR |
Dong et al. [38] | MOS-HIV Chinese version | China | Chinese | Cross-sectional study | PLWH, Male: 185, Female: 44 | 229 | Between April 2012 and April 2013 | Physical function, role function, general health perceptions, bodily pain, health transition, mental health, cognitive function, health distress, social function, vitality | 35 | 0–100 |
Guo et al. [82] | HIV QoL Scale-4 | China | Chinese | Cross-sectional study | PLWH, mean age: 42.67 ± 7.67 Male: 40, Female: 68 | 108 | NR | Physical function, psychological function, social function, general health | 49 | 1–5 |
Liu et al. [62] | WHOQOL-HIV Chinese version | China | Chinese | Cross-sectional study | PLWH, mean age: 43.83 ( ±) 7.44 Male: 32, Female: 56 | 88 | NR | Physical, psychological, level of independence, social relationship, environmental, spiritual | 31 | NR |
Luo et al. [61] | WHOQOL-HIV-BREF Chinese version | China | Chinese | Cross-sectional study | PLWH, mean age: 18 ~ 78 (38.29 ± 12.90) Male: 93 Female: 31 | 124 | Between September 2012 and June 2013 | Physical, psychological, level of independence, social relationship, environmental | 31 | NR |
Meng et al. [80] | HIV QoL Scale-2 | China | Chinese | Cross-sectional study | PLWH, mean age: 35.9 Male: 292, Female: 151 | 443 | Between July 2005 and October 2006 | Mental status, concerns of health and responsibility, family social support, hostile psychological trends, vitality, appetite and pain, economic concerns, doctor support, alienation, life satisfaction | 44 | 0–100 |
Su et al. [81] | HIV QoL Scale-3 | China | Chinese | Cross-sectional study | PLWH, mean age: 42.67 ± 7.67 Male: 40, Female: 68 | 108 | Between October 2004 and December 2006 | Physical function, psychological function, social function, general health | 49 | 1–5 |
HIV QoL Scale-1 | China | Chinese | Cross-sectional study | PLWH, mean age: 40 ± 9 Male: 195, Female: 162 | 353 | NR | Physical, psychological, social | 55 | NR | |
Yang et al. [39] | MOS -HIV Chinese version | China | Chinese | Cross-sectional study | PLWH, mean age 35.2 Male: 80, Female: 37 | 117 | NR | Physical function, role function, general health perceptions, bodily pain, health transition, mental health, cognitive function, health distress, social function, vitality | 35 | NR |
Yu et al. [40] | MOS-HIV Chinese version | China | Chinese | Cross-sectional study | PLWH, mean age: 40.77 ± 8.81 Male: 422, Female: 336 | 758 | NR | Physical function, role function, general health perceptions, bodily pain, health transition, mental health, cognitive function, health distress, social function, vitality | 35 | NR |
Zhang et al. [17] | HIV/AIDSQoL-46 Chinese version | China | Chinese | Cross-sectional study | PLWH | 240 | NR | Physical function, psychological function, social function, general feeling | 46 | NR |
Zhang et al. [74] | SF-36 Chinese version | China | Chinese | Cross-sectional study | PLWH, age < 35: 98, ≥ 35: 141, ≥ 45: 55 Male: 227, Female: 67 | 294 | NR | Physical function, role function, bodily pain, general health, vitality, social function, mental health | 35 | NR |