From: Psychosocial wellbeing among children and adults with arthrogryposis: a scoping review
Name of outcome measure | Purpose | Age group | Domains | Scoring | Cited in |
---|---|---|---|---|---|
Patient-Reported Outcomes Measurement Information System (PROMIS) 57 v2 profile | Evaluation of mental and physical health | Adults (> 18 years old) | Anxiety, depression, fatigue, pain interference, physical function, sleep disturbance, and ability to participate in social roles and activities as well as a single pain intensity item | The mean (T = 50) plus or minus one standard deviation (SD) is considered average (T = 40 to 60) | Altiok et al. [36] |
PROMIS general health | Overall evaluation of one's physical and mental health | Adults (> 18 years old) | Physical and mental health | The mean (T = 50) plus or minus one standard deviation (SD) is considered average (T = 40 to 60) | Altiok et al. [36] |
PROMIS pediatric | Evaluation of mental and physical health | Children (5–17 years old) | Depression, anxiety, peer relations | The mean (T = 50) plus or minus one standard deviation (SD) is considered average (T = 40 to 60) | Wall et al. [30] |
Satisfaction with Life Scale (SWLS) | Measure of the judgmental component of subjective well-being | Adults (> 18 years old) | Satisfaction with life | 7 point likert scale 31–35 Extremely satisfied 26–30 Satisfied 21–25 Slightly satisfied 20 Neutral 15–19 Slightly dissatisfied 10–14 Dissatisfied 5–9 Extremely dissatisfied | Altiok et al. [36] |
Pediatric Outcomes Data Collection Instrument (PODCI) | To assess changes following pediatric orthopedic interventions for a broad range of diagnoses, with a focus on function and quality of life in children and adolescents | Children (2–18 years old) | 1. Upper Extremity and Physical Function 2. Transfers and Basic Mobility 3. Sports and Physical Functioning 4. Pain/Comfort 5. Happiness with physical condition 6. Global Functioning | 0–100 (better score = better health) | Amor et al. [5], Cao et al. [27], Church et al. [28], Spencer et al. [7], Wall et al. [29, 30] |
Hospital Anxiety and Depression Scale (HADS) | Understand the experience of suffering in the setting of medical practice | Adults (> 18 years old) | Anxiety and depression | 0–3 (lower = better), a score for each domain over than 11 indicates anxiety or depression | Dai et al. [37] |
Child Health Questionnaire—Parent Form 50 (CHQ-PF50) | To assess health related quality of life for pediatric patients ages 5–12 | Children (5–18 years old) | 1. Physical Functioning 2. Role/social limitations 3. General Health perceptions 4. Bodily pain/discomfort 5. Family activity 6. Role/Social Limitations 7. Parent impact 8. Self-esteem 9. Mental Health 10. Behavior 11. Family Cohesion 12. Change in health | 0–100 (higher score = better functioning) | Eriksson et al. [31] |
Oswestry Disability Index (ODI) | Subjective percentage score of level of function (disability) in activities of daily living in those rehabilitating from low back pain | Adults (> 18 years old) | Pain intensity, Personal care Lifting Walking Sitting Standing Sleeping Sex life Social life Travelling | 0–5 scale (lower = better) then percentage calculated based on number of answers 0–20%: minimal disability 21–40%: moderate disability 41–60%: severe disability 61–80%: crippling back pain 81–100%: bed bound or exaggerating | Jones et al. [33] |
Euroquol five dimensions questionnaire: Adults version EQ-5D Youth version: EQ-5D-Y | To assess health relative quality of life. EQ-5D-Y | EQ-5D: > 18 years EQ-5D-Y: 4–18 years old | 1. Mobility 2. Looking after myself 3. Doing usual activities 4. Having pain or discomfort 5. Feeling worried, sad or unhappy | Five levels of perceive problem for each domain: No problem, slight problem, moderate problem, severe problem, unable to extreme problem | |
Medical outcome study short form 36 (SF-36) | A measure of health status | Adults (> 18 years old) | 1. physical function 2. Role/physical 3. Role/emotional 4. Energy/fatigue 5. Emotional wellbeing 6. Social functioning 7. Pain 8. General health | 0–100 (lower = better) | Jones et al., [33], Nouraei et al. [34], Sawatsky et al. [35] |