Comparing measurement properties of EQ-5D-Y-3L and EQ-5D-Y-5L in paediatric patients

Table 1 Characteristics of study participants

Description	Major Beta Thalassemia	Acutely ill	Acute Lymphoblastic Leukaemia	Haemophilia	All subjects
Number of patients
t_baseline	68	124	40	54	286
t_retest	66	94	39	44	243
t_followup	65	90	28	46	229
% female	54.4	43.5	42.5	1.9	38.1
Mean age (SD)	11.6 (2.4)	10.9 (2.3)	10.9 (2.5)	11.9 (2.6)	11.2 (2.4)
Age at first diagnosis	4.5 (3.2)	NA	7.6 (3.7)	3 (3)	NA
Patients eligible for analysis*
t_retest	19	8	6	11	44
t_followup	62	88	26	43	219
Hospital visit
Every week	–			27
Every 2 weeks	35	NA	NA	20	NA
Every 3 weeks	24			NA
Every month	8			6
Other	1			–

^*Patients eligible for analysis are the patients who report expected health status at retest (indicate no change) and responsiveness (improved). The large difference between eligible patients for retest and follow-up was because a small proportion of patients reported no changes in their health during the retest assessment

ISSN: 1477-7525