Name of measure/ key references | Country | Population | Language/translation | Completion time | Origin | Domains | Number of items | Scale (response options) | Mode of administration |
---|---|---|---|---|---|---|---|---|---|
1. PedsQL™ Family Impact Module Varni et al. [143] | USA | Parents and the family members of children with Pediatric chronic health conditions | English | NF | Developed and initially field-tested in families with medically fragile children with complex chronic medical conditions | Two domains—Parent functioning with 6 subscales measuring parents’ Self-reported functioning (physical, emotional, social, cognitive, communication worry); and family functioning with 2 subscales (daily, activities, family relationships) | 36 | 5-point Likert | Self-report |
2. Impact on-Family Scale Stein et al. [144]; Williams et al. [145]; Jalil et al. [146] | USA | Parents of children with chronic illness | English and Spanish | 10 min | Family members interview | Four domains—financial, Social, personal strain and Mastery | 27 (update to 15 items in 2003) | 4-point Likert | Self-report, interviewer administered |
3. Beach centre Family Quality of life Posten et al. [6]; Park et [147]; Hoffman et al | USA | Family members of children with disability | English, Spanish, French and Chinese | 15 min | Interview with family members/focus group | Five domains-Family interaction, Parenting, Emotional Well-being, Physical/Material Well-being | 25 | 5-point Likert  | Self-report |
4. Care related Quality of Life (CareQoL) Brouwer et al. [148] | Netherlands | Informal caregivers of Long term Care recipients | English/Dutch German Norwegian Swedish, Italian, Spanish and Portuguese | NF | Based on EQ-5D and evaluation of caregiver burden scales | Seven general quality of life question domains -five negative and two positive dimensions of providing informal care and VAS scale | 7 and VAS question | 3-point Likert | Self-report |
5. Family Quality of life survey-2006, Isaac et al. [149], Perry and Isaac [150], Samuel et al. [151] | Canada | Family members of people with intellectual and developmental disabilities | English, Bosnian, Chinese, Dutch, Farsi, Flemish, French, German, Italian, Japanese, Malaysian, Polish, Romanian, Slovene, Spanish, Telugu | 60 min | Expert opinion and previous research | Nine domains—health, financial well-being, family relationships, support from others, support from services, influence of values, careers, leisure and recreation, and community integration | 54 | 5-point Likert | self-report. Interviewer administered |
6. Family Reported Outcome Measure (FROM-16) Golics et al. [152] | UK | Family members of people with any health condition | English/Turkish, Thai, French and German | 2 min | Qualitative interviews with family members of patients with chronic disease, Focus group and Expert panel | Two domains- Emotional, personal and social | 16 | 3-point Likert | Self-report |