Table 2 Inter-rater and test–retest reliability

Section 2: Patient wellbeing

1. Is the patient experiencing unresolved physical symptoms (including problems with breathlessness, pain, fatigue, nausea, edema, insomnia, or cough)?

0.43

0.49

0.94

0.94

2. Does the patient have problems with daily living activities?

0.59

0.79

0.99

0.98

3. Does the patient have psychological symptoms that are interfering with well-being or relationships?

0.69

0.76

0.94

0.94

4. Does the patient have concerns about how to manage his/her medication and treatment regimens?

0.48

0.94

1.00

1.00

5. Does the patient have concerns about spiritual or existential issues?

0.88

0.96

0.90

0.97

6. Does the patient have financial or legal concerns that are causing distress or require assistance?

0.85

0.89

0.93

0.94

7. From the health delivery point of view, are there health beliefs, cultural, or social factors involving the patient or family that are making care more complex?

0.17

0.80

0.90

0.97

Section 3: Ability of caregiver or family to care for patient

1. Is the caregiver or family distressed about the patient’s physical symptoms?

0.83

0.98

0.83

0.98

2. Is the caregiver or family having difficulty providing physical care?

0.78

0.84

0.82

0.87

3. Is the caregiver or family having difficulty coping?

0.82

0.88

0.97

0.98

4. Is the caregiver having difficulty managing the patient’s medication and treatment regimens?

1.00

1.00

1.00

1.00

5. Does the caregiver or family have financial or legal concerns that are causing distress or require assistance?

0.66

0.87

1.00

1.00

6. Is the family currently experiencing problems that are interfering with their functioning or interpersonal relationships or is there a history of such problems?

0.57

0.79

0.96

0.97

Section 4: Caregiver wellbeing

1. Is the caregiver or family experiencing physical, practical, spiritual, existential, or psychological problems that are interfering with their well-being or functioning?

0.73

0.89

0.85

0.93