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Table 2 Demographics of the caregiver sample

From: Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy

Demographic CE sample CD sample
Total no. of caregivers (n = 7) Total no. of caregivers (n = 8)
Gender, n (%)
 Male 1 (14.3%) 1 (12.5%)
 Female 6 (85.7%) 7 (87.5%)
Age of individual with Duchenne cared for n, (%)
 6–7 years 2 (28.6%) 3 (37.5%)
 8–9 years 2 (28.6%) 3 (37.5%)
 10 years 3 (42.8%) 2 (25.0%)
Caregiver race, n (%)
 White 6 (85.7%) 6 (75.0%)
 Asian 0 1 (12.5%)
 Hindu* 1 (14.3%) 1 (12.5%)
Relationship with individual cared for, n (%)
 Parent/guardian 7 (100.0%) 8 (100.0%)
Work status, n (%)
 Working full time 6 (85.7%) 5 (62.5%)
 Working part time 1 (14.3%) 1 (12.5%)
 Full-time homemaker 0 1 (12.5%)
 Occasional consultancy work 0 1 (12.5%)
Level of education
 High school diploma 1 (14.3%) 1 (12.5%)
 Some years of college 2 (28.6%) 3 (37.5%)
 Cert program 1 (14.3%) 0 (0%)
 College or university 2 (28.6%) 1 (12.5%)
 Graduate or professional degree 1 (14.3%) 3 (37.5%)
  1. *Self-reported race as Hindu
  2. CD, cognitive debriefing; CE, concept elicitation