|
Demographic
|
CE sample
|
CD sample
|
|---|
|
Total no. of caregivers (n = 7)
|
Total no. of caregivers (n = 8)
|
|---|
|
Gender, n (%)
|
|
Male
|
1 (14.3%)
|
1 (12.5%)
|
|
Female
|
6 (85.7%)
|
7 (87.5%)
|
|
Age of individual with Duchenne cared for n, (%)
|
|
6–7 years
|
2 (28.6%)
|
3 (37.5%)
|
|
8–9 years
|
2 (28.6%)
|
3 (37.5%)
|
|
10 years
|
3 (42.8%)
|
2 (25.0%)
|
|
Caregiver race, n (%)
|
|
White
|
6 (85.7%)
|
6 (75.0%)
|
|
Asian
|
0
|
1 (12.5%)
|
|
Hindu*
|
1 (14.3%)
|
1 (12.5%)
|
|
Relationship with individual cared for, n (%)
|
|
Parent/guardian
|
7 (100.0%)
|
8 (100.0%)
|
|
Work status, n (%)
|
|
Working full time
|
6 (85.7%)
|
5 (62.5%)
|
|
Working part time
|
1 (14.3%)
|
1 (12.5%)
|
|
Full-time homemaker
|
0
|
1 (12.5%)
|
|
Occasional consultancy work
|
0
|
1 (12.5%)
|
|
Level of education
|
|
High school diploma
|
1 (14.3%)
|
1 (12.5%)
|
|
Some years of college
|
2 (28.6%)
|
3 (37.5%)
|
|
Cert program
|
1 (14.3%)
|
0 (0%)
|
|
College or university
|
2 (28.6%)
|
1 (12.5%)
|
|
Graduate or professional degree
|
1 (14.3%)
|
3 (37.5%)
|
- *Self-reported race as Hindu
- CD, cognitive debriefing; CE, concept elicitation
