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Table 1 Demographics of the family members/informal caregivers

From: Validation of the German version of the Family Reported Outcome Measure (FROM-16) to assess the impact of disease on the partner or family member

Family members

Test/t1

[n = 90]

Retest/t2

[n = 83]

Gender

 Male

34 (37.8%)

32 (38.6%)

 Female

56 (62.2%)

51 (61.4%)

Age (years)

 Mean (± SD)

59.6 (± 14.4)

59.6 (± 14.7)

 Median (interquartile range)

61 (51–71.5)

62 (51–72.3)

Relationship to patient

 Partner

54 (60.0%)

50 (60.2%)

 Parent

20 (22.2%)

18 (21.7%)

 Child

10 (11.1%)

10 (12.0%)

 Siblings

1 (1.1%)

1 (1.2%)

 Other

4 (4.4%)

3 (3.6%)

 Missing information

1 (1.1%)

1 (1.2%)

Living in one household with the “person to be taken care of”

 Yes

72 (80.0%)

64 (77.1%)

 No

17 (18.9%)

19 (22.9%)

 Missing information

1 (1.1%)

0

Civil status

 Single/living alone

8 (8.9%)

8 (9.6%)

 Married

67 (74.4%)

62 (74.7%)

 In a permanent relationship

6 (6.7%)

6 (7.2%)

 Separated

1 (1.1%)

1 (1.2%)

 Divorced

7 (7.8%)

4 (4.8%)

 Widowed

1 (1.1%)

2 (2.4%)

Level of education

  

 Education (≤ 10 years)

48 (53.3%)

45 (54.2%)

 Education (> 10 years)

22 (24.4%)

21 (25.3%)

 Higher Education (University, PHD)

20 (22.2%)

17 (20.5%)

Condition of the informal caregivera

 Fit/healthy

52 (57.8%)

48 (57.8%)

 Diseased

37 (41.1%)

35 (42.2%)

 Missing information

1 (1.1%)

0

Diagnosis of the patients whom informal caregivers take care of (multiple ticks were allowed)

 Cardiovascular

9 (10.0%)

 

 Old age frailty

2 (2.2%)

 

 Chronic pain

2 (2.2%)

 

 Endocrinology

8 (8.9%)

 

 Mental health

25 (27.8%)

 

 Neurology

45 (50.0%)

 

 Oncology

18 (20.0%)

 

 Respiratory

5 (5.6%)

 

 Orthopedics

4 (4.4%)

 

 Nephrology

2 (2.2%)

 

 Genetics

4 (4.4%)

 
  1. aThe health status of the family member was assessed with one closed question (“Are you currently ill?” [Answer options: yes/no]) and with one open question (“If yes, which illness do you have?”)