Skip to main content

Table 1 Demographics of the family members/informal caregivers

From: Validation of the German version of the Family Reported Outcome Measure (FROM-16) to assess the impact of disease on the partner or family member

Family members Test/t1
[n = 90]
Retest/t2
[n = 83]
Gender
 Male 34 (37.8%) 32 (38.6%)
 Female 56 (62.2%) 51 (61.4%)
Age (years)
 Mean (± SD) 59.6 (± 14.4) 59.6 (± 14.7)
 Median (interquartile range) 61 (51–71.5) 62 (51–72.3)
Relationship to patient
 Partner 54 (60.0%) 50 (60.2%)
 Parent 20 (22.2%) 18 (21.7%)
 Child 10 (11.1%) 10 (12.0%)
 Siblings 1 (1.1%) 1 (1.2%)
 Other 4 (4.4%) 3 (3.6%)
 Missing information 1 (1.1%) 1 (1.2%)
Living in one household with the “person to be taken care of”
 Yes 72 (80.0%) 64 (77.1%)
 No 17 (18.9%) 19 (22.9%)
 Missing information 1 (1.1%) 0
Civil status
 Single/living alone 8 (8.9%) 8 (9.6%)
 Married 67 (74.4%) 62 (74.7%)
 In a permanent relationship 6 (6.7%) 6 (7.2%)
 Separated 1 (1.1%) 1 (1.2%)
 Divorced 7 (7.8%) 4 (4.8%)
 Widowed 1 (1.1%) 2 (2.4%)
Level of education   
 Education (≤ 10 years) 48 (53.3%) 45 (54.2%)
 Education (> 10 years) 22 (24.4%) 21 (25.3%)
 Higher Education (University, PHD) 20 (22.2%) 17 (20.5%)
Condition of the informal caregivera
 Fit/healthy 52 (57.8%) 48 (57.8%)
 Diseased 37 (41.1%) 35 (42.2%)
 Missing information 1 (1.1%) 0
Diagnosis of the patients whom informal caregivers take care of (multiple ticks were allowed)
 Cardiovascular 9 (10.0%)  
 Old age frailty 2 (2.2%)  
 Chronic pain 2 (2.2%)  
 Endocrinology 8 (8.9%)  
 Mental health 25 (27.8%)  
 Neurology 45 (50.0%)  
 Oncology 18 (20.0%)  
 Respiratory 5 (5.6%)  
 Orthopedics 4 (4.4%)  
 Nephrology 2 (2.2%)  
 Genetics 4 (4.4%)  
  1. aThe health status of the family member was assessed with one closed question (“Are you currently ill?” [Answer options: yes/no]) and with one open question (“If yes, which illness do you have?”)