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Table 1 Proposed additional items

From: Item generation for a proxy health related quality of life measure in very young children

 

Age Group (years)

 

0–1 (n = 12)

1–2 (n = 12)

2–3 (n = 12)

3–4 (n = 12)

4–5 (n = 12)

5–6 (n = 12)

6–7 (n = 12)

Total

(n = 84)

Eating

9

8

5

4

6

4

1

37 (44%)

Communication

10

6

3

2

1

 

1

23 (27%)

Movement

12

2

1

2

 

2

 

19 (23%)

Toileting

 

2

4

3

3

4

 

16 (19%)

Sleep

7

2

2

    

11 (13%)

Play only

3

1

2

  

1

2

9 (11%)

Walking

2

 

3

2

2

  

9 (11%)

Discomfort

 

1

1

2

3

 

1

8 (10%)

Worried

1

1

1

1

1

1

 

6 (7%)

Independence

  

1

1

2

  

4 (5%

Upper limb movement

4

      

4 (5%

Cognition

1

  

2

   

3 (4%)

Emotion

      

2

2 (2%)

Kicking

2

      

2 (2%)

Motivation

  

1

  

1

 

2 (2%)

Self-esteem

  

1

1

   

2 (2%)

Sad

 

1

   

1

 

2 (2%)

Senses

2

      

2 (2%)

Socialize

2

      

2 (2%)

Crawling

      

1

1 (1%)

Dependence on Care

1

      

1 (1%)

Growth

1

      

1 (1%)

Hygiene

1

      

1 (1%)

Immunizations

     

1

 

1 (1%)

Perception

    

1

  

1 (1%)

Attitude

    

1

  

1 (1%)

Routine

     

1

 

1 (1%)

Sickness

  

1

    

1 (1%)

Unhappy

1

      

1 (1%)

Feeding

 

1

     

1 (1%)

Dexterity

      

1

1 (1%)

School Performance

      

1

1 (1%)

Achievement of Milestones

1

      

1 (1%)

Pride

     

1

 

1 (1%)

  1. N = 84, * Caregivers did not all suggest additional items, and some suggested more than one item
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Health and Quality of Life Outcomes

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