Table 2 Key themes related to QOL and service provision
Themes related to QOL issues in GVHD | Themes related to patient experiences of the healthcare service provision |
|---|---|
Q1: ‘Restricted as to what I can do’ | E1: Personal care and close relationship with BMT nurses |
Q2: Troubling symptoms—‘you can sort of get GVHD anywhere’ | E2: Efficiency versus long waits—‘On the case straight away’ |
Q3: Confusion and uncertainty regarding GVHD symptoms—‘Is this the GVHD? | E3: Information provision—‘went into it with a bit of a rosy view’ |
Q4: Unpredictable course and uncertainty regarding the future | E4: The role of support groups |
Q5: Adapting to the sick role |