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Table 2 Raw scores of the eight subscales at baseline, follow-up and changes after 10 years, and norm-based scores of the eight subscales, MCS and PCS at baseline, follow-up and changes after 10 years

From: Health-related quality of life in Marfan syndrome: a 10-year follow-up

  Baseline Follow-up Changes after 10 years
Raw scores Norm-based scores Raw scores Norm-based scores Raw scores Norm-based scores
Mean SD Mean SD Mean SD Mean SD Mean SD Mean SD
Physical functioning 76.6 19.7 47.3 8.3 63.5 28.6 41.8 12.0 − 5.5 9.5 − 5.5 9.5
Role physical 53.4 40.5 43.1 11.5 46.8 43.5 41.2 12.3 − 1.9 14.8 − 1.9 14.8
Bodily pain 59.9 21.4 45.6 9.2 54.3 19.8 43.2 8.5 − 2.4 7.4 − 2.4 7.4
General health 50.8 21.4 40.9 10.0 51.4 21.3 41.3 10.0 0.3 11.7 0.3 11.7
Vitality 44.0 18.8 43.9 8.9 42.7 19.2 43.2 9.1 − 0.7 9.5 − 0.7 9.5
Social functioning 72.9 24.2 45.4 10.5 71.0 27.2 44.6 11.8 − 0.8 11.4 − 0.8 11.4
Role emotional 78.0 34.9 48.4 11.0 75.2 37.7 47.5 11.9 − 0.9 13.3 − 0.9 13.3
Mental health 73.5 17.7 49.0 10.0 74.7 15.3 49.7 8.7 0.7 9.4 0.7 9.4
MCS    48.2 11.6    49.5 10.9    1.3 10.3
PCS    43.1 10.0    39.5 11.7    − 3.6 10.9