Table 2 Raw scores of the eight subscales at baseline, follow-up and changes after 10 years, and norm-based scores of the eight subscales, MCS and PCS at baseline, follow-up and changes after 10 years
From: Health-related quality of life in Marfan syndrome: a 10-year follow-up
Baseline | Follow-up | Changes after 10 years | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
Raw scores | Norm-based scores | Raw scores | Norm-based scores | Raw scores | Norm-based scores | |||||||
Mean | SD | Mean | SD | Mean | SD | Mean | SD | Mean | SD | Mean | SD | |
Physical functioning | 76.6 | 19.7 | 47.3 | 8.3 | 63.5 | 28.6 | 41.8 | 12.0 | − 5.5 | 9.5 | − 5.5 | 9.5 |
Role physical | 53.4 | 40.5 | 43.1 | 11.5 | 46.8 | 43.5 | 41.2 | 12.3 | − 1.9 | 14.8 | − 1.9 | 14.8 |
Bodily pain | 59.9 | 21.4 | 45.6 | 9.2 | 54.3 | 19.8 | 43.2 | 8.5 | − 2.4 | 7.4 | − 2.4 | 7.4 |
General health | 50.8 | 21.4 | 40.9 | 10.0 | 51.4 | 21.3 | 41.3 | 10.0 | 0.3 | 11.7 | 0.3 | 11.7 |
Vitality | 44.0 | 18.8 | 43.9 | 8.9 | 42.7 | 19.2 | 43.2 | 9.1 | − 0.7 | 9.5 | − 0.7 | 9.5 |
Social functioning | 72.9 | 24.2 | 45.4 | 10.5 | 71.0 | 27.2 | 44.6 | 11.8 | − 0.8 | 11.4 | − 0.8 | 11.4 |
Role emotional | 78.0 | 34.9 | 48.4 | 11.0 | 75.2 | 37.7 | 47.5 | 11.9 | − 0.9 | 13.3 | − 0.9 | 13.3 |
Mental health | 73.5 | 17.7 | 49.0 | 10.0 | 74.7 | 15.3 | 49.7 | 8.7 | 0.7 | 9.4 | 0.7 | 9.4 |
MCS | 48.2 | 11.6 | 49.5 | 10.9 | 1.3 | 10.3 | ||||||
PCS | 43.1 | 10.0 | 39.5 | 11.7 | − 3.6 | 10.9 | ||||||