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Table 7 Psychometric properties of the pre-dialysis Starting Dialysis Questionnaire

From: Development of a measure for patients preparing to start dialysis and their partners: The Starting Dialysis Questionnaire (SDQ)

  Patients
(n = 83)
Partners
(n = 83)
  Mean SD Skew Kurtosis Item-domain correlation Alpha (α) if item removed Alpha (α) Mean SD Skew Kurtosis Item-domain correlation Alpha (α) if item removed Alpha (α)
Expectations 3.35 0.67 0.31 0.23    0.90 3.17 0.48 0.00 0.00    .86
1. In 6 weeks, what do you think your quality of life will be like? 3.29 0.69 0.09 0.45 0.77 0.88   3.06 0.50 0.63* 0.00 0.65 0.84  
2. In 6 weeks, what do you think your physical health will be like? 3.27 0.71 0.42 0.87* 0.75 0.88   3.07 0.49 0.00 0.00 0.56 0.85  
3. In 6 weeks, what do you think your emotional health will be like? 3.23 0.80 0.53* 0.37 0.72 0.88   3.02 0.54 0.06 0.01 0.79 0.82  
4. In 12 weeks, what do you think your quality of life will be like? 3.43 1.02 0.75* 0.00 0.87 0.86   3.24 0.79 0.00 0.22 0.83 0.80  
5. In 12 weeks, what do you think your physical health will be like? 3.35 0.99 0.62* 0.00 0.81 0.87   3.13 0.68 0.00 0.00 0.77 0.82  
6. In 12 weeks, what do you think your emotional health will be like? 3.33 0.94 0.33 0.62* 0.78 0.88   3.15 0.80 0.00 0.06 0.78 0.81  
7. How would you rate your expectations of dialysis? 3.48 0.69 0.07 0.74* 0.25~ 0.93^   3.50 0.71 0.00 0.08 0.15~ 0.90^  
Accepting dialysis 3.29 0.61 0.46 .05    0.75 3.41 0.67 0.22 0.66*    0.81
10. How much have you come to terms with starting dialysis? 3.35 1.15 0.95* 0.04 0.62 0.68   3.78 1.04 0.28 0.01 0.70 0.77  
11. To what extent do you think you will be able to carry on with your daily life when you start dialysis? 3.26 0.75 0.32 0.12 0.55 0.71   3.30 0.83 0.73* 0.21 0.49 0.80  
12. How much do you think you will be bothered by dialysis? 3.05 0.87 0.01 0.62* 0.67 0.68   3.20 0.99 0.26 0.59* 0.48 0.80  
13. How bothersome do you expect dialysis to be for your partner? 3.04 0.95 0.86* 0.84* 0.22~ 0.77^   2.70 0.98 0.00 0.25 0.61 0.77  
14. To what extent do you think you will have the control of dialysis that you would like? 3.14 1.02 0.82* 0.38 0.30~ 0.76^   3.32 1.02 0.48 0.04 0.49 0.80  
15. How satisfied are you that dialysis is the best option for you at this time? 4.02 0.79 0.00 0.01 0.43 0.73   4.28 0.69 0.02 0.49 0.44 0.80  
16. How bothered would you be if dialysis became a long-term treatment for your kidney disease? 3.18 1.19 0.86* 0.02 0.55 0.70   3.28 1.25 0.79* 0.00 0.65 0.77  
Dyadic relationship characteristics 3.95 .06 0.03 0.58    0.92 3.85 0.59 0.08 0.64*    0.90
17. How much do you expect that your partner will be involved in your dialysis? 3.58 1.03 0.48 0.03 0.57 0.91   3.93 0.89 0.13 0.14 0.46 0.90  
18. How much do you think your partner’s involvement in your dialysis will match your needs? 3.89 0.94 0.01 0.62 0.62 0.91   3.94 0.97 0.02 0.87* 0.54 0.90  
19. How much do you expect dialysis will change your role in the relationship? 3.78 1.09 0.05 0.20 0.13~ 0.93^   3.76 1.11 0.03 0.19 0.34~ 0.90  
20. How much do you think you and your partner will act as a team when it comes to handling your dialysis? 4.16 0.87 .00 0.06 0.74 0.91   4.12 1.08 0.00 0.03 0.53 0.89  
21. How much do you think that you and your partner will be “on the same page” (share similar views) about dialysis? 4.0 0.87 0.19 0.01 0.72 0.91   4.11 0.86 0.01 0.84* 0.57 0.90  
22. How positive do you think you will be about dialysis? 3.88 0.85 0.61* 0.01 0.60 0.91   4.20 0.75 0.05 0.45 0.40~ 0.90  
23. How positive do you think your partner will be about dialysis? 3.94 0.93 0.17 0.01 0.66 0.91   3.78 0.94 0.17 0.06 0.58 0.90  
24. How well do you think you will be able to express your feelings about dialysis to your partner? 4.12 1.00 0.00 0.79* 0.71 0.91   3.95 1.04 0.00 0.53* 0.68 0.89  
25. How comfortable do you think you will be discussing issues related to dialysis with your partner? 4.30 0.87 0.00 0.36 0.70 0.91   4.24 0.90 0.00 0.07 0.69 0.89  
26. How comfortable do you think your partner will be to talk about dialysis-related issues? 4.20 0.87 0.01 0.46 0.71 0.91   4.00 1.16 0.00 0.38 0.80 0.89  
27. How willing do you think your partner will be to share his/her feelings about dialysis with you? 3.98 1.06 0.01 0.32 0.73 0.91   3.98 1.20 0.00 0.49 0.76 0.89  
28. How much do you think that your partner will listen to your views on dialysis related topics? 4.20 0.88 0.01 0.31 0.74 0.91   3.88 0.86 .99* 0.00 0.49 0.90  
29. Partner only@@How often do you think you will you get time for yourself once dialysis starts?   3.00 0.78 0.21 0.31 0.38~ 0.90  
30. How often do you think you will feel lonely because of dialysis? 3.80 0.81 0.07 0.17 0.56 0.91   3.60 1.05 0.20 0.24 0.57 0.90  
31. How often do you think you will feel isolated because of dialysis? 3.70 0.91 0.08 0.88* 0.49 0.92   3.67 1.00 0.10 0.83* 0.51 0.90  
32. How often do you think that you and your partner will do activities you enjoy together? 3.27 1.04 0.24 0.03 0.59 0.91   3.04 0.86 0.01 0.47 0.52 0.90  
33. How often do you expect that you and your partner will be able to find humour in small things or have a laugh? 3.91 0.96 0.19 0.00 0.55 0.91   3.73 1.06 0.21 0.18 0.53 0.90  
34. How satisfied are you with your relationship? 4.43 0.87 0.00 0.08 0.54 0.93^   4.38 0.73 0.00 0.56* 0.53 0.90  
  1. The wording of the items presented here are taken from the pre-dialysis patient version of Starting Dialysis Questionnaire. Items on the pre-dialysis partner version differ slightly in phrasing (see Additional file 4)
  2. *Item with minor skew or kurtosis, values > 0.5
  3. ^Item, that if removed, the internal consistency of the domain improves
  4. ~Item with low contribution to the domain, values < 0.40