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Table 2 Characteristics of participants in Phase 1

From: Development of a measure for patients preparing to start dialysis and their partners: The Starting Dialysis Questionnaire (SDQ)

  Patients
(n = 22)
Partners
(n = 22)
Male n (%) 20 (91%) 2 (9%)
Age M (range) 63 (39–80) 62 (39–87)
Married n (%) 20 (91%) 20 (91%)
Ethnicity n (%)   
White British 19 (85%) 18 (82%)
Asian 1 (5%) 2 (8%)
Black 1 (5%) 1 (5%)
Other 1 (5%) 1 (5%)
Employment status n (%)   
Retired 12 (54%) 12 (55%)
Unable to work 7 (32%) 3 (14%)
Full-time employment 3 (14%) 6 (26%)
Part-time employment 1 (5%)
Phase of dialysis n (%)   
Pre-dialysis 8 (33%)
Starting 7 (29%)
Establishing 7 (29%)
Mode of dialysis* n (%)   
Haemodialysis 16 (75%)
Peritoneal dialysis 6 (25%)
  1. Phase of dialysis refers the point in the end stage renal disease (ESRD) trajectory the patients were in and defined as ‘pre-dialysis’ if receiving care for ESRD but not yet on a dialysis or a recipient of a renal transplant, ‘starting’ refers to patients on dialysis for < 6 months and ‘establishing’ refers to patients on dialysis for > 6 months but < 16 months
  2. * Current mode of those on dialysis or intended mode of patients in the pre-dialysis phase