Patients’ and clinicians’ perspectives on item importance, scoring, and clinically meaningful differences for the Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS)

Table 3 Relative importance of ESD items/concepts reported by patients and clinicians

Item/concept	Patient rankings (1–7, where 1 is the most important and 7 is the least important)								Clinician mean constant sum (0–100)
	Number of patients (N = 24^a) attributing item to each ranking							Patient median rank
	1	2	3	4	5	6	7	Patient median rank
Worst overall pelvic pain	11	4	4	2	2	0	1	2	28.75
Worst constant pelvic pain	8	6	2	2	3	3	0	2	22.5
Pain associated with bleeding^b	2	4	3	4	4	4	3	4	10
Worst short-term pelvic pain	5	1	5	4	3	3	3	4	13.75
Pain due to sexual intercourse^c	4	1	3	4	4	3	1	4	11.25
Avoidance of sexual intercourse due to pain^d	1	4	2	1	6	5	4	5	7.5
Pain medication use	2	0	5	3	2	2	10	5.5	5

^aN = 24, as one patient had trouble understanding and thus was unable to provide meaningful responses
^bNote that pain associated with bleeding was calculated by considering responses to ESD item 1 (“worst pelvic pain”) and rating of bleeding severity by ESD item 4
^cN = 20, as four patients stated that they were unable to provide a ranking for this item as they did not experience pain during sex (N = 3) or were not sexually active (n = 1)
^dN = 23, as one patient stated that she was unable to provide a ranking for this item as she was not sexually active
ESD = Endometriosis Symptom Diary

ISSN: 1477-7525