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Table 2 Examples of three different patient pain profiles

From: Patients’ and clinicians’ perspectives on item importance, scoring, and clinically meaningful differences for the Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS)

Patient ID

Daily pain not associated with vaginal bleeding

Pain prior to/following vaginal bleeding

Pain during vaginal bleeding

Pain associated with sexual intercourse

Patient quotes when asked “Tell me how endometriosis makes you feel physically?”

US-04

Constant mild pain

No different to rest of month

Severe

No different to rest of month

“On a daily experience, it’s not that bad. You kind of get used to the pain. It’s when your menstrual cycle comes that it’s really bad”

US-09

Unpredictable: Either no pain or severe pain

No different to rest of month

No different to rest of month

No different to rest of month

“Sometimes it happens, sometimes it doesn’t.[…] It might flare up, it might not.[…] If it happens, then it happens, and I’m just kind of out of the ballgame at that point”

US-17

Constant moderate pain

Severe

Severe

Severe

“…lately it has been pretty doggone constant”