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Table 2 Comparisons of PedsQL scores reported by parents

From: Measuring parent proxy-reported quality of life of 11 rare diseases in children in Zhejiang, China

Variables Physical functioning Emotional functioning Social functioning School functioning Psychosocial health Total
Types of rare diseases
 Patent ductus arteriosus 65.86 ± 8.88 84.38 ± 8.18 87.75 ± 8.91 88.88 ± 8.95 87.00 ± 6.16 79.65 ± 5.46
 Infantile agranulocytosis 97.01 ± 3.86 94.93 ± 6.18 97.76 ± 5.02 93.13 ± 9.8 95.27 ± 4.55 95.88 ± 3.48
 Autoimmune thrombocytopenia 73.33 ± 4.72 73.04 ± 6.16 75.75 ± 3.47 62.25 ± 7.21 70.35 ± 3.81 71.39 ± 3.27
 Polysyndactyly 90.39 ± 9.76 91.59 ± 9.49 94.09 ± 7.99 91.82 ± 9.27 92.50 ± 6.78 91.77 ± 6.35
 Hirschsprung disease 74.84 ± 10.44 78.56 ± 8.80 77.84 ± 10.16 74.28 ± 10.38 76.89 ± 7.20 76.18 ± 6.92
 Cleft lip and palate 99.02 ± 2.38 96.47 ± 6.35 92.75 ± 11.42 95.49 ± 7.09 94.9 ± 6.160 96.33 ± 4.22
 Tetralogy of fallot 72.38 ± 11.8 80.54 ± 10.77 84.38 ± 11.64 77.41 ± 9.72 80.77 ± 8.72 77.85 ± 8.90
 Myasthenia gravis 96.58 ± 4.72 94.29 ± 5.90 98.69 ± 3.83 94.05 ± 7.90 95.67 ± 3.97 95.99 ± 3.31
 Guillain–barre syndrome 74.34 ± 10.39 86.21 ± 8.48 96.52 ± 5.23 92.88 ± 4.68 91.87 ± 3.25 85.77 ± 4.56
 Glycogen storage disease 76.15 ± 6.69 85.50 ± 9.04 90.33 ± 6.81 84.00 ± 8.14 86.61 ± 4.58 82.97 ± 4.13
 Langerhans cell histiocytosis 73.10 ± 10.74 79.29 ± 11.44 90.89 ± 8.50 69.82 ± 8.44 80.00 ± 5.72 77.60 ± 5.15
χ2 400.95* 338.69* 371.83* 430.23* 471.05* 483.00*
P < 0.001 < 0.001 < 0.001 < 0.001 < 0.001 < 0.001
Sex
 Male 79.41 ± 13.45 83.67 ± 11.24 86.42 ± 11.63 80.44 ± 14.72 83.51 ± 10.86 82.08 ± 10.51
 Female 82.94 ± 13.65 84.98 ± 11.85 87.59 ± 11.77 81.94 ± 15 84.84 ± 11.25 84.18 ± 11.12
t − 3.29 − 1.44 − 1.26 − 1.28 − 1.52 − 2.43
P 0.001 0.151 0.207 0.202 0.130 0.015
Age group
 2–4 year 81.99 ± 14.39 85.45 ± 11.5 86.87 ± 12.43 83.92 ± 13.81 85.41 ± 10.78 84.22 ± 10.98
 5–7 year 80.24 ± 13.08 83.64 ± 11.87 87.11 ± 10.86 79.93 ± 15.59 83.56 ± 11.35 82.41 ± 10.85
 8–12 year 79.58 ± 12.63 81.65 ± 10.72 85.53 ± 11.18 74.76 ± 14.41 80.65 ± 10.73 80.28 ± 10.19
 13–18 year 78.30 ± 11.96 85.28 ± 9.31 93.33 ± 9.70 82.50 ± 13.2 87.04 ± 9.07 84.00 ± 8.03
F (χ2) 3.78* 3.16 2.32 32.11* 5.53 13.36*
P 0.287 0.024 0.074 < 0.001 0.001 0.004
Household registration place
 Hangzhou 85.24 ± 13.48 86.43 ± 11.96 89.49 ± 11.04 84.14 ± 14.58 86.69 ± 11.08 86.18 ± 11.13
Other cities 75.88 ± 12.01 81.68 ± 10.42 83.94 ± 11.74 77.52 ± 14.38 81.05 ± 10.2 79.25 ± 9.14
t 9.37 5.42 6.21 5.81 6.72 8.73
P < 0.001 < 0.001 < 0.001 < 0.001 < 0.001 < 0.001
Household types       
Urban areas 81.96 ± 13.72 84.66 ± 11.59 87.28 ± 11.82 82.23 ± 14.56 84.72 ± 10.95 83.76 ± 10.89
Rural areas 78.11 ± 13.06 83.08 ± 11.27 85.96 ± 11.33 78.02 ± 15.22 82.35 ± 11.12 80.88 ± 10.35
t 3.31 1.56 1.28 3.24 2.45 3.05
P 0.001 0.119 0.201 0.001 0.015 0.002
Family monthly income per capita
 < ¥5000 79.42 ± 13.79 83.44 ± 10.95 86.46 ± 11.69 81.77 ± 13.55 83.89 ± 10.32 82.33 ± 10.26
 < ¥5000–¥10,000 79.72 ± 12.82 83.53 ± 11.78 85.6 ± 11.69 78.71 ± 15.69 82.61 ± 11.48 81.61 ± 10.74
 > ¥10,000 88.04 ± 13.08 88.17 ± 11.68 91.49 ± 10.68 85.1 ± 15.18 88.25 ± 10.91 88.18 ± 11.08
F (χ2) 17.81 14.352* 20.343 15.451* 20.405* 15.26
P < 0.001 0.001 < 0.001 < 0.001 < 0.001 < 0.001
  1. *χ2 of Kruskal–Wallis H test