From: Measuring parent proxy-reported quality of life of 11 rare diseases in children in Zhejiang, China
Variables | Frequency (%) |
---|---|
Types of rare diseases | |
 Patent ductus arteriosus | 40 (6.1) |
 Infantile agranulocytosis | 67 (10.3) |
 Autoimmune thrombocytopenia | 120 (18.4) |
 Polysyndactyly | 66 (10.1) |
 Hirschsprung disease | 118 (18.1) |
 Cleft lip and palate | 51 (7.8) |
 Tetralogy of fallot | 56 (8.6) |
 Myasthenia gravis | 42 (6.5) |
 Guillain–barre syndrome | 33 (5.1) |
 Glycogen storage disease | 30 (4.6) |
 Langerhans cell histiocytosis | 28 (4.3) |
Gender | |
 Male | 373 (57.3) |
 Female | 278 (42.7) |
Age group | |
 2–4 year | 310 (47.6) |
 5–7 year | 220 (33.8) |
 8–12 year | 103 (15.8) |
 13–18 year | 18 (2.8) |
Household registration place | |
 Hangzhou | 350 (53.8) |
 Other cities | 301 (46.2) |
Household type | |
 Urban areas | 474 (72.8) |
 Rural areas | 177 (27.2) |
Family monthly income per capita | |
 < ¥5000 | 288 (44.2) |
 ¥5000–¥10,000 | 259 (39.8) |
 > ¥10,000 | 104 (16.0) |
Total | 651 (100) |