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Table 1 Socio-demographic characteristics of the total participants

From: Measuring parent proxy-reported quality of life of 11 rare diseases in children in Zhejiang, China

Variables

Frequency (%)

Types of rare diseases

 Patent ductus arteriosus

40 (6.1)

 Infantile agranulocytosis

67 (10.3)

 Autoimmune thrombocytopenia

120 (18.4)

 Polysyndactyly

66 (10.1)

 Hirschsprung disease

118 (18.1)

 Cleft lip and palate

51 (7.8)

 Tetralogy of fallot

56 (8.6)

 Myasthenia gravis

42 (6.5)

 Guillain–barre syndrome

33 (5.1)

 Glycogen storage disease

30 (4.6)

 Langerhans cell histiocytosis

28 (4.3)

Gender

 Male

373 (57.3)

 Female

278 (42.7)

Age group

 2–4 year

310 (47.6)

 5–7 year

220 (33.8)

 8–12 year

103 (15.8)

 13–18 year

18 (2.8)

Household registration place

 Hangzhou

350 (53.8)

 Other cities

301 (46.2)

Household type

 Urban areas

474 (72.8)

 Rural areas

177 (27.2)

Family monthly income per capita

 < ¥5000

288 (44.2)

 ¥5000–¥10,000

259 (39.8)

 > ¥10,000

104 (16.0)

Total

651 (100)