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Table 1 Socio-demographic characteristics of the total participants

From: Measuring parent proxy-reported quality of life of 11 rare diseases in children in Zhejiang, China

Variables Frequency (%)
Types of rare diseases
 Patent ductus arteriosus 40 (6.1)
 Infantile agranulocytosis 67 (10.3)
 Autoimmune thrombocytopenia 120 (18.4)
 Polysyndactyly 66 (10.1)
 Hirschsprung disease 118 (18.1)
 Cleft lip and palate 51 (7.8)
 Tetralogy of fallot 56 (8.6)
 Myasthenia gravis 42 (6.5)
 Guillain–barre syndrome 33 (5.1)
 Glycogen storage disease 30 (4.6)
 Langerhans cell histiocytosis 28 (4.3)
Gender
 Male 373 (57.3)
 Female 278 (42.7)
Age group
 2–4 year 310 (47.6)
 5–7 year 220 (33.8)
 8–12 year 103 (15.8)
 13–18 year 18 (2.8)
Household registration place
 Hangzhou 350 (53.8)
 Other cities 301 (46.2)
Household type
 Urban areas 474 (72.8)
 Rural areas 177 (27.2)
Family monthly income per capita
 < ¥5000 288 (44.2)
 ¥5000–¥10,000 259 (39.8)
 > ¥10,000 104 (16.0)
Total 651 (100)