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Table 3 Patient characteristics

From: Individual quality of life in spousal ALS patient-caregiver dyads

 

Patient

Interview 1

Interview 2

Interview 3

MITOS stage

n

%

n

%

n

%

 0

21

75.0

18

64.3

13

46.4

 1

6

21.4

8

28.6

11

39.3

 2

–

–

2

7.1

2

7.1

 3

–

–

–

–

–

–

 Not available

1

3.6

–

–

2

7.1

Cognition (ECAS)

 Normal

21

75.0

20

71.4

18

64.3

 Non-normal

6

21.4

7

25.0

9

32.1

 Not Available

1

3.6

1

3.6

1

3.6

Behaviour (BBI)

 Normal

18

64.3

16

57.1

15

53.6

 Non-normal

8

28.6

10

35.7

11

39.3

 Not Available

2

7.1

2

7.1

2

7.1

HADS DISTRESS

 Mean

10.8

 

12.3

 

11.4

 

 Standard deviation

7.0

 

6.6

 

7.9

 

 Median

9.5

 

10.5

 

10.5

 

 Range

(0–27)

 

(3–26)

 

(0–30)

 

 % Above Cut-off

11

39%

12

43%

13

46%

SeiQoL Index (SIS)

 Mean

77.5

 

76.3

 

77.7

 

 Standard deviation

14.9

 

19.1

 

13.1

 

 Median

83.1

 

77.1

 

80.6

 

 IQR

(68.72–86.99)

(70.56–90.66)

(68.02–89.04)

 Range

(23.68–95.8)

(6.75–96.99)

(44.59–95.38)

  1. MITOS Milano-Torino Staging
  2. ECAS Edinburgh Cognitive and Behavioural ALS Screen
  3. BBI Beaumont Behavioural Inventory
  4. HADS Hospital Anxiety and Depression Scale
  5. SeiQoL Schedule for Individual Quality of Life