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Table 3 Patient characteristics

From: Individual quality of life in spousal ALS patient-caregiver dyads

  Patient
Interview 1 Interview 2 Interview 3
MITOS stage n % n % n %
 0 21 75.0 18 64.3 13 46.4
 1 6 21.4 8 28.6 11 39.3
 2 2 7.1 2 7.1
 3
 Not available 1 3.6 2 7.1
Cognition (ECAS)
 Normal 21 75.0 20 71.4 18 64.3
 Non-normal 6 21.4 7 25.0 9 32.1
 Not Available 1 3.6 1 3.6 1 3.6
Behaviour (BBI)
 Normal 18 64.3 16 57.1 15 53.6
 Non-normal 8 28.6 10 35.7 11 39.3
 Not Available 2 7.1 2 7.1 2 7.1
HADS DISTRESS
 Mean 10.8   12.3   11.4  
 Standard deviation 7.0   6.6   7.9  
 Median 9.5   10.5   10.5  
 Range (0–27)   (3–26)   (0–30)  
 % Above Cut-off 11 39% 12 43% 13 46%
SeiQoL Index (SIS)
 Mean 77.5   76.3   77.7  
 Standard deviation 14.9   19.1   13.1  
 Median 83.1   77.1   80.6  
 IQR (68.72–86.99) (70.56–90.66) (68.02–89.04)
 Range (23.68–95.8) (6.75–96.99) (44.59–95.38)
  1. MITOS Milano-Torino Staging
  2. ECAS Edinburgh Cognitive and Behavioural ALS Screen
  3. BBI Beaumont Behavioural Inventory
  4. HADS Hospital Anxiety and Depression Scale
  5. SeiQoL Schedule for Individual Quality of Life