Table 4 Evidence synthesis on the content and structural validity of measures that have been used to assess quality of life in people with DMD
| Â | Content validity | Structural Validity | ||||
|---|---|---|---|---|---|---|
PROM | Relevance | Comprehensiveness | Comprehensibility | Quality of evidence | Rating of results | Quality of evidence |
BDI | ± | – | ± | Very low | ? | ? |
CALI | + | – | ± | Low | ? | ? |
DCGM-37 | ± | + | + | Low | ? | ? |
EQ-5D-3L | + | – | + | Very low | ? | ? |
FSS | ± | – | ± | Very low | ? | ? |
GAD-7 | + | – | + | Very low | ? | ? |
HADS | – | – | – | Very low | ? | ? |
HUI-2 / HUI-3 (15Q) | – | – | – | Very low | ? | ? |
INQoL | ± | ± | + | Very low | ? | ? |
KIDSCREEN-52 | + | + | + | Low | ? | ? |
KIDSCREEN-27 | + | + | + | Low | ? | ? |
KIDSCREEN-10 | + | + | + | Low | ? | ? |
LSIA | + | + | + | Moderate | ? | ? |
MDCHILD | ± | + | + | Low | ? | ? |
PedsQL 3.0 DMD | ± | ? | ± | Very low | ? | ? |
PedsQL 3.0 MFS | ± | – | ± | Very low | ? | ? |
PedsQL 3.0 NMM | ± | ? | ± | Moderate | – | High |
PedsQL 4.0 GCS | ± | + | ± | Low | ? | Very low |
PedsQL 4.0 SF-15 | ± | + | ± | Low | ? | ? |
PHQ-9 | + | – | ± | Very low | ? | ? |
PODCI | ± | + | ± | Very low | ? | ? |
PSQI | ± | – | ± | Very low | ? | ? |
SDQ | – | – | + | Very low | ? | ? |
SF-36 v1.0 | ± | + | ± | Very low | ? | ? |
SWLS | – | – | ± | Very low | ? | ? |
WHOQOL-BREF | + | + | ± | Very low | ? | ? |