Table 1 Demographics and clinical variables
From: Health-related quality of life using specific and generic questionnaires in Spanish coeliac children
CDDUX | KIDSCREEN-52 | |
|---|---|---|
CHILDREN (replies children/parents) | 480 (266/214) | 434 (255/179) |
Girls | 288 (60%) | 269 (62%) |
Age (years) | N (%) | N (%) |
8-11 | 188 (39. 2%) | 167 (38. 5%) |
12-15 | 225 (46.9%) | 206 (47. 5%) |
16-18 | 67 (14%) | 61 (14. 1%) |
Mean age (years) | 12.4 (SD 2.8) | 12.4 (SD 2.8) |
Median age at diagnosis (years) | 2 (IQR 2–5) | 2 (IQR2–5) |
< 2 | 60% | 61.3% |
3-7 | 22% | 20,3% |
> 7 | 18% | 18.4% |
Mean time since diagnosis (years) | 8.4 (SD 4. 2) | 8.4 (SD 4. 2) |
< 4 | 18. 6% | 17.3% |
5–8 | 33.4% | 32.9% |
> 7 | 48% | 49.8% |
Family history of CD | 20. 6% | 20.7% |
Disease manifestation at onset | ||
Classic form | 263 (61.4%) | 239 (61.8%) |
Non classic form | 160 (37.4%) | 143 (36.9%) |
Dermatitis herpetiformis | 2 (0. 5%) | 2 (0. 5%) |
During screening | 3 (0.7%) | 3 (0.7%) |
Associated conditions | 34 (12. 6%) | 34 (12. 6%) |
Medical follow-up | ||
• Every two years | 12. 1% | 10.9% |
• Once a year | 71. 5% | 71. 5% |
• Every six months | 11.4% | 13.4% |
• Every three months | 1. 6% | 1.7% |
• Occasionally | 1. 2% | 1.3% |
• Never | 2. 2% | 1.3% |
Adherence to the diet | ||
• Always 96. 6% | 414(96.7%) | 374(96. 6%) |
• Most times 3. 1% | 13 (3.03%) | 12(3. 1%) |
• Sometimes 0.3% | 1(0.3%) | 1(0.3%) |
Difficulties with the diet | ||
• No | 380 (88.7%) | 346(89.4%) |
• Economic | 4(0.93%) | 4(1%) |
• Social | 12 (2.8%) | 6(11%) |
• Eating out | 32 (7.4%) | 26(6.7%) |